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Posted 9/10/2022 4:16 PM (GMT -5)
Every year this formum gets less and less new members, I’m guessing a lot of people go to Facebook which I cannot stand , ask questions there and they never get answered in depth.

It would be interesting to see an honest guesstimate percentage of how much people are healed in correlation to how long they had the symptoms. 90% was pretty common from what I’ve read. Of course we blame everything on lyme so this makesGuessing more inaccurate than what it already is.

Back when this forum was busy , “healed” people would come back now and then with a few symptoms, .....but the majority of them you never hear from again.
Posted 9/10/2022 4:31 PM (GMT -5)
It’s difficult to discern what’s active infection vs damage/weakness that is leftover - and may or may not be with the individual for ever.

In my case - my back has been one “leftover” symptom - but it does seem it’s slowly getting less painful as time goes on.
Second one is short term memory issues. It has improved over time but I do wonder if it’s permanent and I’m stuck with it.
I don’t think the short term memory issues are active infection.
The back pain? Not sure - it does get worse when I treat - so maybe active infection?
BUT how can that be - with all the treatment I have had?
Posted 9/10/2022 5:27 PM (GMT -5)
I wish there was more information on this topic.

Yes it’s very hard to figure out and why I like to consider myself functional instead of saying I’m healed. Plus the older I get other health issues overlap so it’s hard to tell what caused what. So it comes down to an educated guess.

In my case with a lot of structural muscle and tendon problems , Injuries and daredevil tactics I Acquired in the past certainly Didn’t help.

My memories not the best, names are the hardest thing. Some days are brighter than others. After asking and observing other people over 50 I’d say that affects a good 25% of that population.
Posted 9/10/2022 6:38 PM (GMT -5)
since there are no tests that can tell the difference between
- completely cleared the infection
and
-still infected but mostly under control -

we may never know

it all just comes down to what people prefer to believe at that stage - no objective facts available

it may be that we never actually clear the infection once we have it - but some manage to put it back in the box and the immune system back in command - and symptoms are minimal

personally i could live with that

after all we all have chicken pox and ebv etc in us without them taking over our lives
Posted 9/10/2022 8:29 PM (GMT -5)
Once you reach that point where I’m at and have been there for a few years, you don’t wanna mess up a good thing.

Every now and then I think about trying some herbs that kill the Little critters, and then I chickened out.

Like an old mechanic saying dealing with old cars, “if it ain’t , broke don’t fix it!”

——————

And now that I can move and do things I feel that I need to make sure that I keep on doing it. It’s kinda hard for me to sit still anyway but I feel like if I don’t keep moving I might slide backwards. I have two speeds first gear and fifth.

I’ve had a lazy Saturday so far and then made myself go outside and ride my bike in the low fall sun. Feels good now that I did it, Even though I didn’t really feel like it at first. And now that it’s 630 the sun is already behind the tree line. ...Summers gone.

Post Edited (astroman) : 9/11/2022 9:23:41 AM (GMT-7)

Posted 9/11/2022 8:18 AM (GMT -5)
I'm highly functional but I won't say I'm ”healed” in maybe 1-2 years from now. I perform well at a demanding job and just got hired directly instead of through a consulting firm. My cardio capacity is increasing, I'm getting stronger and I got in 6 workouts this week.

But my lymphatic system is not working as it should and I have trouble with dry eyes. I can eat a lot more things the before but I still have some sensitivities around food and other things. I also herx from treatment. But I will just keep on working on my health and over time I think my problems will go away. With some new insights around my dry eye problem and some changes in the office environment + less stress financially, I do believe I will soon go into a stage where my suffering is pretty low.
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