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Mycotoxins test/glutathione test

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Posted 9/12/2022 7:53 PM (GMT -5)
My llmd just told me in order to do the mycotoxin urine test, I need to take 2 glutathione pills for 6 days and on the 6th day do my 1st urine of the morning. They said if I herx before the 6 day then to use that urine instead and to stop the glutathione. I'm using the essential pro glutathione brands which is good for allergies. My llmd office says they don't use great plains lab but they use real time lab. Anyone have to do this before a myco test?
Posted 9/12/2022 9:04 PM (GMT -5)
I have heard of lots of people doing this, yes, as a way to mobilize stored mycotoxins and make sure they appear in the sample. Some do other things as well, such as using a sauna.
Posted 9/12/2022 11:03 PM (GMT -5)
Yes. I took liposomal glutathione before my tests.
Posted 9/13/2022 9:10 PM (GMT -5)

saraeli said...
I have heard of lots of people doing this, yes, as a way to mobilize stored mycotoxins and make sure they appear in the sample. Some do other things as well, such as using a sauna.

Okay thanks, I figured it was to catch the mycotoxins on the test.
Posted 9/14/2022 7:54 AM (GMT -5)
I am sorry to contradict what your LLMD has said - but

unless the lab you are using for mold testing specifically recommends this glutathione approach - i think it is poor practice

the reason is simple

a positive result in a mold toxin test is only positive when compared to the reference levels found by that lab in their previous tests to establish normal range in the population.

anything you do prior to the test that may impact the result will put you at odds with the reference population and make it impossible to properly interpret that result

for instance - we do not know because that testing has not been done - but taking glutathione prior to a test may push all your results up 30% 50% or 200% - and could well do that to anyone in the normal population - we don't know because the lab has not done this test - unless its specifically outlined in their recommended approach

so lets say you do the test - and get a positive result - how do you now decide if its positive because you have more mold toxins in your body than the general population - or positive because you took something that increases the amount a person excretes and in fact he level in your body is not elevated ?

think it through -

i think this practice has grown up because it gives both LLMDs and their patients something to act on - something that often aligns with the beliefs they go into the testing with in the first place - so are the most prone to confirmation bias.

looking at it logically, from the perspective of what is likely to help a person determine a good treatment direction - this approach actually undermines the true usefulness of the tests (rather than increases it).

mold testing already has a problem with high false positive rates.
Posted 9/14/2022 8:54 AM (GMT -5)

Garzie said...

mold testing already has a problem with high false positive rates.

Garzie,

You have proof of false positives, or is that your assumption?
Posted 9/14/2022 9:02 AM (GMT -5)
well there are always false positives in any test

but in terms of numbers - members here who have spoken to the lab directors of great plains and real time labs report even them saying that the vast majority of tests come back positive - so you could consider that proof of false positives

it certainly raises the suspicion of a high proportion - unless you believe almost everyone who tests is being made ill by mold toxins - and then we are just into belief systems again.

also anecdotally - how many have you seen posted here that are all clear ?

in any case - regardless of your or my beliefs around the likely level of false positives - the point about doing a pre-test treatment outside of what the lab themselves used for their control population still stands.
Posted 9/14/2022 9:24 AM (GMT -5)
I tested twice with Real Time Labs. My initial test was with them, and I did a follow up test 18 months later. I had already been started on glutathione before the initial test and was continuously on glutathione throughout the 18 months between the tests.

My first test was done 5-6 weeks after moving out of my parents’ moldy house and in with a relative. My initial test was positive for gliotoxin. At my follow up test, gliotoxin levels were zero and aflatoxin, ochratoxin, and trichothecene levels had all risen but were still negative.

My mother tested at the same times I did and also moved with me. She took glutathione before her tests as the doctor instructed. She did not take glutathione for treatment and only had a month of Welchol as treatment. Her levels did not improve.

Getting and staying out of out of exposure will be the most important treatment.
—————
EDIT:

Just to clarify, ERMI tests were done on my parents’ moldy house and the relative’s house. The HERTSMI-2 on parents’ house was 10 and relative’s house was 4 at the time we moved in. I compared my mom’s and my mycotoxin results to each other’s, to the ERMI’s, and to initial vs follow up test results. I concluded that the changes in the levels of aflatoxin, ochratoxin, and trichothecenes on our results were most likely due to the changes in the mixture and levels of molds in the relative’s house vs our house.

While living with the relative, several water incidents occurred - leaking hot water heater, leaking toilet seal, and a leak under the kitchen sink. All repaired after being found, but no mold remediation took place or removal of water damaged materials.

I initially improved a little with Buhner’s protocol, but felt myself “herxing” or flaring that seemed different. After a couple of years of being stuck, I tested mycotoxins with Great Plains lab and did a HERTSMI-2 on the relative’s house. My gliotoxin levels were through the roof. So was zearalenone (not included in Real Time’s test panel). Aflatoxin and ochratoxin were present, as well. HERTSMI-2 had gone from 4 to 18.

I moved into my car at that point and had SEVERE unmasking symptoms for weeks afterwards. After 6 months I started improving after starting TUDCA.

Post Edited (WalkingbyFaith) : 9/14/2022 7:40:58 AM (GMT-7)

Posted 9/14/2022 2:10 PM (GMT -5)
A few thoughts to add to this dialog..

Dr. A.C. Says she does see RTL tests come back negative after working with her patient base..

I personally feel less concerned with mold as time goes on. I started from mold since I had several false negatives on all infections. Not that it can’t be a key player.. I do these RTL tests every 2-3 months with her and have found practically no trend. Something spikes and I have no clue why. Next test it’s back down and something else is high etc..

Putting a highly stressed patient through that who hasn’t worked on their limbic system could do more harm than good IMO. A doctor then asks “have you been around mold?” How does someone know unless you’re one of those people who is highly reactive..

Now we’re back to stressing the limbic system to figure it out etc.. how many people could have clogged detox pathways from an undiagnosed or an under addressed infection? How many could have genetic activation for MSH HLA susceptibility triggered by an infection? I don’t have the mold gene.. or Lyme gene..

So much we still don’t understand about these things..
Posted 9/14/2022 7:04 PM (GMT -5)
Thnx for your input, loski. I’m surprised she would have you test that frequently. I am all for a follow up test, but it was out of pocket for me. My mom’s tests were covered by Medicare.

Speaking of genes, I have one of the “dreaded” multi susceptible genes and the Lyme gene. Some docs say they don’t find the genes that relative to whether or not the patient gets better.

Post Edited (WalkingbyFaith) : 9/14/2022 5:07:14 PM (GMT-7)

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