Now A Strange, Few Times a Day Pulsating in Ears

I and others here in the past did not have hearing loss but we did have the pulsating in ears usually when laying down.

I called the ear beet, because it was timed with my heart. Back then my LLMD said this was not uncommon and you hear it in your left ear cause that’s closer to your heart. I did go away with lime treatment ABX.

It was really annoying when trying to sleep. By the way I went to some ear specialist and They could not figure out what my beats were.

If my phone has memory by now it should remember how I write lime but apparently it doesn’t so much for auto correct ha ha.

Post Edited (astroman) : 12/11/2022 3:36:20 PM (GMT-8)

yep - i have it too - comes and goes -

tends to become louder when treating - but in my opinion its not connected to hearing loss

its just a temporary tinnitus type thing - that will go with treatment

My response seems like I don’t appreciate the comments. I do and didn’t mean to seem without appreciation.

running wild said...
...I have slowly developed a strange pulsating in ears that happens only every once in a while during the day... .

ah OK, i had taken the "pulsing" you describe to be hearing a loud pulsed woosh, woosh woosh noise - in your ears - in time with your actual pulse - lots of us have that - and as i say its not necessarily linked to hearing loss

but since you later say its not in time with your pulse - i think you are describing a kind of tinnitus - like a buzzing/whining/humming etc noise - that comes and goes randomly - not linked to pulse - but comes in short lived short 10 seconds to 1 minute pulses

i have that too - have had for years now of and off - and again - its not caused or linked to hearing loss for me
just another odd Lyme type symptom.

the thing is - this is what lyme does - causes lots of unexplained odd symptoms to crop up and just as often go away again.
just like the physical stuff - a pain in a knee or an ankle or your neck or a few days latera shoulder.
or a pain when urinating for a week - then that fades and something else crops up a week later

i sympathise - its concerning and frustrating - but since this is what Lyme is -
if you let your mind focus on the list of problems and "what ifs" - it will drive you into a spiral of worry and depression

that will all take energy away from you and hinder your ability to face the hard work ahead to treat this thing - which is hard enough without torturing yourself with worry.

i would say
first, acknowledge the reality of the situation - its a tough place to find yourself in - but what has happened has already happened - the situation is what it is - and there may be risks involved in treatment of these conditions. But there will also be significant risk of not treating - so, in my view, you cannot let that paralyse you from making and acting on a plan to move forward.

Instead - try to focus on what you can do - and accept there will be some risk associated with any forward plan,
but the only other option is going backwards - in other words no option.

so if it were me - i would
-Do the IVIG - sounds like a good idea to me
-make a plan to treat the infections alongside trying to calm the immune system
-accommodate your co-morbidities as best you can - i.e. focus on the lower risk drugs for kidneys
-use mitigation strategies for the risks - eg scheduled safety labs
-get help with the mental aspect of this illness if you find yourself drawn into worry and rumination on negatives
-some doctors use hydrocortisone to calm the overactive immune response while treating infections - so that could be something to discuss with your doctor ( ref Dr M and Babesia Treatment with Dr L )

Good Luck RW!!

After IVIG Friday, I had moments of feeling normal - thinking positively, no pain, wanting to socialize, etc. But I think I did too much too soon by staying up late twice at events and working in yard a bit much.

Your point of treating along with IVIG is good, Garzie. Problem is what I can take. Zithromax is fine, but Mepron not good because of kidneys. Bicillin in limited doses is okay, but it doesn’t do much for Bart and is a stand alone treatment. Cats Claw not allowed because of kidneys. Trying to figure what to do.

Believe it or not, even probiotic (Tru Flora) causes a reaction with migraine. Lost on how to treat.

Medical Nerd - I started low dose B vitamins so we’ll see how that goes. Thanks for idea.

running wild,

Hearing loss can absolutely be neurological. I have had hearing loss since infancy. It can be conductive or neurological in nature. I had thought mine was a combination, but in recent years was told it was mostly neurological.

My mother is 85. She had minor hearing loss and got hearing aids several years ago. This past spring, I noticed she wasn’t hearing and took her to the audiologist. They retested her hearing, and she had incurred a dramatic drop in her hearing levels from the year before. It went from having like 90% hearing to 60%.

I was shocked, because I thought it was a problem with the hearing aids or wax in the ears. I had also noticed a cognitive decline in her for about 4-5 months prior to this. The audiologist said the concurrent hearing and cognitive declines were related and the hearing loss was neurological.

Have you had your hearing tested and evaluated by a licensed audiologist? If not, I highly recommend it. Hopefully you have already had a baseline test before that a current test could be compared to.

The other thing I would suggest is getting an MRI. If you have had a past MRI of the brain, you will have something to compare it to and see what changes have occurred in the brain.