For Those with Migraines, A Possible Answer

One of the first symptoms of Lyme I had when all this started 20 years ago was a right-sided migraine. It has been a problem ever since. Rare I have relief from it for more than 5-6 days. Many have been off the charts,m pain wise.

It has always gotten worse when I started a new treatment or ate something like sugar or something with gluten. Re-started azith a week or so ago and no pain. Probiotics also can cause them, and I also started probiotics when I started azith.

The only thing different I am doing is I doubled the CoQ10 I have been taking. Why?

I have been having IVIG infusions for 5 straight days now for most of five months, and it has created migraines, despite pre-medicating. A nurse in the infusion center heard I was having the migraines and came up to talk.l She asked me if I have tried coQ10. Had never heard of that helping before. I told her I use it at 100 milligrams a day. She suggested I move that up to 200 mg a day to try and help with migraines. She also said, like me, nothing else touches the migraine, but her migraines are all but gone since a week or so after starting Coq10.

While Excedrin migraine will usually stop a migraine for me, I am not supposed to use it because of a problem with kidney function. Out of desperation (and a highly skeptical thought about doing so), I started 200 mg of the Co Q 15 days ago. Since then, I have had only one migraine that was about a level 7, and came after eating a doughnut (I was out with my daughter to see "It's a Wonderful Like" at a renovated old theater in our town) and just wanted to celebrate).

Bottom Line: That is the only migraine I have had in 13 days and can tell I'm not going to have one tonight.

Wanted to mention that as there are a good number on this site who deal with migraines. It may not work for you, but I doubted it would help me, and right now it appears it is making a difference.Living without migraines changes my whole day, as they usually start setting in late afternoon.

If you try it, I hope it makes a difference for you. Like everything with Lyme, there are no guarantees, and you may need to give it a little time.

Thanks very much for sharing this information, running wild!

I'm a long-time migraine sufferer, too, though mine aren't nearly as bad or as frequent as years past. Cleaning up my diet seemed to help, though it didn't resolve them completely.

I've taken Jarrow Formulas Co-Q10 in the past, though at 100 mg and not for any significant length of time. As I wasn't taking it for migraines, I didn't give that any attention. Doubling to 200 mg seems a reasonable protocol.

Wishing you continued success and relief!

Isn’t that a Great feeling when you find a supplement that does awesome things!?

I used to take CoQ10 Per my LLMD’s recommendation. I used a medium quality brand at Walmart,.... it was not Walmarts brand lol.

I don’t remember what it was for. It certainly didn’t feel any benefit from it. I think I still have some so next time I get what I call a back of head upper neck, “tension headache” I’ll try doubling the dose of it and see what happens.

So I get what I call “tension headaches” now and then they are way way less than the number that I used to get. I called them a tension headache because the very thin 1/8 inch thick muscle on my skull just starts to pull down on my neck and it is insane.

I’ve asked migraines suffers where they actually feel the pain and they say it’s deep within their head so that is not the same as what I get.

That said, when it happens it’s usually late night and I take one Excedrin and one ibuprofen before i go to bed and I sometimes have a blue cold pack on that part of my neck which is usually the left side, and I wake up in the morning feeling fine.

Next time that happens I’ll try my leftover CO Q 10 and see what that does.
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I just snow blowed and shoveled 10” of wet, heavy March like snow. ( That’s nothing compared to the east side of the great lakes though, it’s crazy snow over there!) I try my best to shovel to the right ...and the left , otherwise it can make one side of my body tight. And then sometimes start a left side neck tension headache, which is possibly similar in agony to a migraine but different.

(I feel pretty good right now, but I just spiked some Gatorade with some vodka, so I’m sure I’ll be pain-free for the rest of the night lol!!!!)

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Added next morning, today:

Surprisingly felt great this AM. No tension headache from all the snow removal, .which is unusual. Very surprised.

(No vodka hangover either....But thats known as the non- hangover clear pure booze).

Running- Opps, sorry for kinda derailing this post. I just read about the possible need of coq10 to build up in you. Hmmm. BUT if I find that it works for that too, I'll put it here.

Post Edited (astroman) : 1/4/2023 2:54:13 PM (GMT-8)

I don’t know that it is an instant answer for a migraine or headache. From what I’ve read, it has to build a little in the body to work.

But it would be interesting to see if that did work instantly.

The Dude Abides said...
Oh, Astro...haha...I live vicariously through your posts!

Were you wearing a Hawaiian shirt while you shoveled?

https://youtu.be/corecc0hmng

Aloha!

Haha!,...I’ll have to dig it out next time if its not too windy. (Had my grumpy old man ear flap hat on. It rocks.)

Post Edited (astroman) : 1/4/2023 2:46:15 PM (GMT-8)

WBF - I have been taking it in the morning, sometimes before eating anything and sometimes after. I take the 200 mg all at once. Have been using Nature's Made brand, but not sure if it really matters. The nurse who told me about it said she uses CoQ gummies.

In a couple studies, migraines were cut by 50%. While we would always wish for total elimination, any relief has been good. Ironically, today I am feeling one building. Will post again if that stops in one day or keeps going. Like I said, it just doesn't seem to be a coincidence the migraines backing off coincided with taking more CoQ10. Guess we are about to find out. I also have been taking fish oil for a couple of years.