Hi running wild,

Are you still doing the IVIG? I'm only asking because I've been wondering if that's making things worse for you?

Of course, you know your body better than anyone, but it's something to consider taking a break from, to see how you feel without it.

Rainy - I took a non-planned three week break from IVIG but started back on a shorter time schedule to take them last week. Timing does seem to indicate that could be playing a role. It was more at a faster rate.

Seems I had started burping before that, but can’t remember for sure. I’ve had this happen before, as mentioned. The people on the IVIG site I visit think it’s meningitis, which I’m not sure of, since it’s happened before.

Garzie-,Right now, I couldn’t do another round of IVIG, if that is where you are going. Between that and the knot on my arm where the infusion needle was that won’t go away keeps me from even thinking about it.

Totally lost on all this.

info here on side effects / adverse reactions

https://www.uptodate.com/contents/intravenous-immune-globulin-ivig-beyond-the-basics#

"...Other side effects include chills, fever, flushing, flu-like muscle pains or joint pains, feeling tired, having nausea, vomiting, and rash. For the most part, these reactions typically happen with the first dose of IVIG or if you change to a different brand of IVIG. You will be watched for these and other reactions."

has anything else changed in the weeks before thsi flaring up

-diet
-supplements
-medications

had any viruses / covid? - i ask about this as i have had 3 bouts in the last 12 months - each getting progressively milder in terms of respiratory symptoms - to the point where the last one was more like a v mild cold

but each time - my gut gets upset afterwards - not quite full on nausea - but very gurgly after food, uncomfortable and loose bm's

turns out COVID is known to infect the cells that line the gut - and cause blooms of unfriendly bacteria and SIBO

just an idea

tummy bug from while in hospital ?

running wild said...
Good thought, but this is too similar to episodes I had before in 2019 and 2017. One was caused by Rawls formulas in 2017! The other I’m not sure about. I found it in an old post I made in February, I think, of 2019. Stomach issues always cause depression when it hits and migraines.

Then there’s Sjogrens and possible autonomic issues. So much sheite to consider. Also another recent positive for Lyme by PCR.

So what do you think is causing your return cases of COVID?

my thoughts are that any stomach upset - regardless of the cause could cause similar symptoms -
eg mild food poisoning could cause sibo - and drive burping, nausea etc
a stomach bug or virus could cause sibo and the same
antibiotics could cause sibo or dysbiosis - and drive nausea etc

and for example sibo can defo cause depressive symptoms, and systemic symptoms like fatigue
so that was my thought process

i am not sure the PCR lyme test has any real significance - so if it were me i would park that one - and in fact not test for it any more as it just seems to cause stress for no new actionable data - after all you have tested positive before and still have symptoms - so that's what we would expect - right?

ref repeat COVID - i think i am just susceptible because of Lyme messing with my immune system - and there has been a lot of it around here in the last 12 months - as waves of the latest variants sweep through

then i am also trying to be a bit more sociable as i have been out of circulation for some years - and the combination of exposure and susceptibility means i pick it up

thank fully its not causing any severe symptoms now - just the stomach issue - which tends to mess with my sleep and cause a bit of extra fatigue each time

Reason I ask is I have only had COVID once, despite my immune system being challenged all the time. Also, have still been coaching and around a lot of people.

Maybe it’s because there has been very little COVID where I live and also how our immune systems all react differently to infections/viruses. What may impact someone may not having any impact on another.

Haven’t had the flu since I was a kid, yet my own kids and friends I’ve been around have. Yet, there may be something else that would put me down but you would handle it fine.

Such intricate systems.

Thanks, Rainy. Will take a look. You feeling any better?

I suspect it's just that the chronic infections lead to elevated interferon levels, which triggers a bunch of responses that limit viral replication by breaking down RNA and limiting protein production. This does seem to reduce the risk of some common infections, but I still got covid. The problem is that interferon makes you feel sick.

Bartonella herx caused me stomach issues, mostly painful diarrhea that smelled real bad.

Dizzy and nauseated seems more like adrenals or blood pressure. Maybe try hydrocortisone or naltrexone?