Advice needed - MCAS and electrolyte issues

Here's a list of mast cell stabilizers. (I know you said you don't tolerate vitamin C or curcumin, but I've left them on the list in case others are interested.)

DAO (porcine or from legumes)
L-theanine
khella
perilla
pine bark
luteolin
rutin
mangosteen
evening primrose
quercetin
curcumin
nettles
vitamin c
bromelain
ECGC/green tea
melatonin
milk thistle
butterbur
feverfew
baikal skullcap
DGL
cromolyn sodium (Rx)
ketotifen (Rx)
montelukast (Rx)
chamomile
moringa
NAC
cannabis (full-spectrum or CBD-only)
H1 blockers (Claritin, Zyrtec, Allegra)
H2 blockers (Pepsid, Zantac)
foods for DAO production (onions, green tea, galangal [thai ginger], peaches, Brazil nuts, fiber, sprouted lentils, sprouted chickpeas, olive oil, walnuts, omega 3s, saturated fat, avocado, almonds, white beans, leafy greens, legumes, cashews, pumpkin seeds)
supplements for DAO production (iron, zinc, phosphorous, B12, magnesium)
pomegranate
mango

Here's a list of practices that can help to regulate mast cell activity:

limbic system retraining
DNRS https://retrainingthebrain.com/
Gupta https://www.guptaprogram.com/
stress management
mindfulness and/or meditation https://www.calm.com/ or others
restorative yoga https://www.youtube.com/c/yogawithadriene or others
guided visualizations https://healthy.kaiserpermanente.org/health-wellness/podcasts or others
therapy https://www.psychologytoday.com/us/therapists
mind-body medicine (therapist who specializes in mind-body medicine)
Curable chronic illness app: https://www.curablehealth.com/
Book: Toxic by Neil Nathan https://bookshop.org/books/toxic-9781628603118/9781628603118
dry brushing (if it does not irritate your skin)
craniosacral therapy
lymphatic massage (if it does not irritate your skin) https://www.youtube.com/watch?v=QA-wi0d7-Ro
rebounding (swing, trampoline)
vagus nerve toning https://drarielleschwartz.com/natural-vagus-nerve-stimulation-dr-arielle-schwartz/#.XIRtRFNKg3E
tapping (EFT) https://www.thetappingsolution.com/#what-is-eft-tapping

If you take probiotics, make sure you are taking low-histamine strains only and avoid the following high-histamine strains:
Lactobacillus bulgaricus
Lactobacillus casei
S. thermophilus
Lactobacillus delbrueckii
B. Lichenformis
Lactobaccilus helveticus

Switch to a strict low-histamine diet. Avoid high-histamine foods, including:
bananas with brown speckles
ripe raspberries
ripe stone fruits (charry, peach, nectarine, plum, apricot)
citrus
tomatoes
alcohol
lion's mane mushroom
other mushrooms
tempeh
miso
sauerkraut
kefir
kombucha
kimchi
vinegar
pickles (pickled vegetables)
yogurt
nutritional yeast
coconut aminos
cultured cheese (including plant-based cheese)
aged meats (including some plant-based jerkies)
tamari
soy products
dried fruits
leftovers
canned foods
chocolate
coffee (caffeine, high in mold)
yeast
nut butters (high in mold)

Note: During an MCAS flare, eating and drinking can cause MCAS to worsen, even if those foods and beverages contain low or no histamine.

Avoid triggers as much as possible until your mast cell activity is under better control. Triggers vary from person to person, but common triggers include:
stress
exertion, especially cardiovascular exercise
mold and mycotoxin exposure
endotoxins from dying pathogens (tick-borne bacteria, parasites, candida, etc.)
allergens (pollen, dander, dust, mold, foods, poison ivy, etc.)
high-histamine foods, beverages, and supplements
skin abrasion (rough fabrics, massages, scratches)
showers
hot baths
heat (including saunas and hot weather)
cold (especially shivering)
toxins (air, water, body products, cosmetics, metals, cleaning products, food, laundry, etc.)
chemical exposure (particularly for people with multiple chemical sensitivities)
- possible to react to natural, nontoxic compounds, like essential oils
overloaded detox pathways (lymph, liver, biliary tract, kidneys, GI tract)
- make sure you are hydrated and having complete bowel movements every day
- make sure you move your body, even if it's just rebounding or restorative yoga
- streamline your supplement and drug regimens as much as possible
menstruation and estrogenic activity
immune system activation (exposure to a virus, other infection, vaccine, immune-boosting supplements)
- opt for immune-modulating supplements instead (reishi, quercetin, curcumin, etc.)
- take extra care toward the end of a virus, helping your immune system know when it's time to chill out again
antimicrobial drugs and supplements
barometric pressure drops

As for the mold, I think once you have a mold sensitivity, chronic inflammatory response syndrome, and/or mycotoxin illness, you really should stop exposure if at all possible. Do you think the pipes are leaking behind the wall, or is there visible mold under the sink? Do you have a basement? An area that is kept at less than 60% humidity will not grow further mold, but that's very difficult to achieve in a bathroom. Mycotoxins are released when mold is dying, disturbed, or threatened, so manage this carefully. All of that said, I was able to get much better while still living in a moldy house, so people do vary in just how big a role mold plays.

I hope some of this is helpful!

I know you’re still waiting to hear back from the new doctor. Looking into mold is definitely a good idea. Mold is a strong trigger for MCAS.

Are you living or working in a building that has mold or has had prior leaks or water damage?

ISEAI has a list of doctors who treat environmental illness. Some treat Lyme. There are 7 listed in Australia - https://iseai.org/physician-list/. Not sure if your new doctor is one of these, but you can take a look at the list.

Post Edited (WalkingbyFaith) : 6/25/2023 7:03:02 PM (GMT-8)

auzzie said...
the plumbing is leaking from behind the wall

^^^^^ This is your problem. The mold is behind the wall. Can you move to a place that had not had leaks or water damage?

Thanks for your suggestions,
My son did the kitchen for me last year I had the same problem there.
I had set myself up for him to do it but he travels so much for work now I cant ask him to take more time away from his family.
It is the breach that is leaking. I will get some quotes - it will be a relief to get it done. It is a timber house it may be something that can be dealt with from both sides.

Hi Goldifer
Welcome to the forum.

If you want to share your “story” here - feel free to start your own thread.