HealingWell
Search Close Search
☰

Rating and venting Chatplatform?

Support Forums
>
Lyme Disease
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 8/15/2023 3:03 AM (GMT -5)
Hey since uh lyme, Bartonella, Babesia, etc sucks quite heavily. I thought hey, maybe a Chat Platform solely for the purpose of venting and chit-chatting might be a good Idea aint it?

Questions would be still asked Here so nothing gets lost in the process but I found the Exchange with Others and Sometimes Just "crying and venting" about it usefull since other lymies tend to understand the Problem better

Whats your thoughts in this?
Posted 8/15/2023 8:17 AM (GMT -5)
That’s a good idea BlazerGermany…And then at the end of our post we can tell what has been helping us through all our struggles with Lyme, MACS, etc.

I’m a little frustrated with the fact that I seem to have to tell people that I have these issues with my health.

Maybe some of you can relate? I look perfectly fine…but I can’t eat what most people eat because of MCAS flairs…I can’t go in the sunshine or I’ll get an itchy rash…And then when I’m tired & laying on the sofa my husband wants me to help him with something outside…he doesn’t understand that I’m having a herx…

It was really upsetting over a year ago when this first started to happen…slowly getting better…it’s like learning how to live your life with Lyme, MACS, etc. while we treat ourselves with a barrage of “hit or miss” treatments.

If it wasn’t for my “Faith” I would really despair…Also, I’m so thankful that we have a platform here on these boards…I have been learning a lot.

Post Edited (MyJourney101) : 8/15/2023 5:38:42 AM (GMT-8)

Posted 8/15/2023 11:27 AM (GMT -5)
i thought more of a online interactive chat interface thing were people get reffered to healingwell forum for and back so however bumps into this chat gets referred into the forum anyway (no loss of people)

and on the platform you can see who is online and talk a bit, not only venting urself but listening to others and just helping each other enduring the stress.

i dont know if anyone's interested in this, maybe i am delusional, but i have always been very social and extroverted before this disease struck me so its very hard - and i seek that contact.

and yes i can agree, this platform has been very great and giving. specially people like rainycloud, garzie, bongo (even if he gets lyme raged very fast XD) , Quin, and all the other active users i forget to mention.

i got really confident on my hypercalcemia linked to bartonella only on this forum. Also complete german lyme network didnt know about this (LOL) and i posted it in my german lyme group and it was THE breaking news there haha.

people comming together and pushing themselves to keep going despite the many devastating symptoms we all expierence.
✚ New Topic ✚ Reply