BlazerGermany said...
Aw man. That is really a releaf hearing that mildly elevated ck-mb isnt the biggest risk factor ever. I just knew its for the heart so my first reaction was YIKES.
As concerning that DLco may be. It may be do to the oxygen transport difficulties that is brought by infection. My pulmonaligst test is next week wednesday so hopefully we will see further then.
overthinking is probably the biggest part of all. i sit here thinking constantly about this disease. i dream about it, i eat with it, i breathe it. maybe this is 50% of the problem. but trying to find a lyme literate pyschologist is very hard i suppose. i bet they will put me into asyulum right away lol
yep, its a natural response - anything novel, with high uncertainty, and wide ranging impact is going to trigger feelings of worry - but that part of the brain that handles emptions and these basic reactions is also inflamed and so it causes a tendency for a double whammy effect and the anxiety to get out of control.
the stress from all the worry is not helpful to recovery and can actually add fuel to the fire
my own feeling is that this needs to be tackled from both directions -
ie
1, improving the health of ones thought processes as we go through this challenging time - to help one process what is happening to them more rationally with perhaps also a bit better perspective (for example not getting lost in bad habits of worry loops) - its still challenging and stressful to be ill - but its doesn't have to be a waking nightmare every minute of every day
2, try to address the brain inflammation that drives a lot of the hyper reactivity in the first place - different things help more or less for different people - so some experimentation is required - and what helps you
the buhner herbs are supposed to help with that ( i cant really say if they did for me or not - as i don't know how sick i would have been without them - but i have the sense that they helped calm it down over time )
-amino acids like theanine and taurine help quite a bit for some
-some find herbs like valerian, passion flower and camomile help
-and brain calming things like time in nature help me a lot
just finding something that takes the edge off - combined with working on processing things better can be enough
for some people just the first one is enough
i don't think you need to find a lyme literate phycologist - as any good psychologist should be able to relate to and help someone process a challenging illness - and anxiety and fear is anxiety and fear.
You are not looking for them to treat your physical illness - so i would just find one that has helped someone you know - and speak to them about
it - the bond / connection with the therapist is the most important bit
you need to feel understood by them - not all the details of Lyme biology - but how its making you feel
there needs to be mutual respect
my partner and i found one via an online platform ( i think it was called "Bark" - not sure if its over there ) - we placed an enquiry -"looking for a counsellor to help us with xxxx" got 3 or 4 responses - spoke to them all for 10-15 mins - choose the one we felt most comfortable with - he was actually pretty good.
if worry is taking over i think i would be a good move
all the best