not really improvement

Alright im at the End of my third Week of treamtent with abx. I have to say still no herx at all. I mean there are some stronger Neurologic Symptoms and my muscle are quite in pain. but its not really bother me at all. I have more energy, my pots are getting better and better i have the feeling im more stabel since treating with abx. So i will stay on that for at least another 3 weeks and when nothing crazy herx are coming im gonna start adding Methyline blue. Im still taking my buhner stuff and a lot of antiviral herbs.

hey time for an update! So im in my 6 week of treatment, the last two weeks where a bit more rough, but still not crazy rough. So im quite tired and exhausted and my neuro symptoms going crazy, but no crazy heart racing or different symptoms what makes me go to the ER. Also i had just 1, or 2 days, where i really could feel my mastecells are active as ****. But this dissapeard. I had my first appointment with dr reinhard. He seems to be a quite good doctor who understands the problems chronich people. He was very open for all treatments. We still waiting for a blood smear Test in Polen,because he is not sure if i got babesia, And he said he wanna be clear because he will treat it with 4 months of 2 malaria meds and stuff. So for now we contiunine treating barts and lyme with rifa and doxy, and after im feeling better we add tinidiziol. (but just pulsing for 10 days) I also read a lot of my old post from 2010, where i was treating with abx the last time, and i always felt bad/worse on Abx, over month. So i guess its quite normal for me,..I also added valtrex now, to get a bit the virus situation down, felt a bit improvenemt. So at the moment i am on doxy 300mg, rifa 600mg, valtrex 500mg and then alle the buhner and antiviral stuff. So i hope improvenemt will come soon! See you

I find tinidazole quite manageable.

I do 2x500mg for 2 days at the end of each 2 week pulse.
Sometimes 3x500

Would be interesting to hear how you get on with rifabutin vs rifampicin

Good luck!

ahh im bored today, so i will write an smal update! So first time i am in the 3abx club now! Its been day 5 on tinidazol, i started slow 2x250mg. Its manageble. No crazy herx, but some new symptoms, so i guess this stuff is working. The weird thing is, that my new symptoms are more bartonella symtpoms. (stiff neack, pain in foot sole) I will go up tommorow on 750mg and end of week 2x500mg. So at the moment i am still on doxy, rifa and tini. Reinhard said 20 days, i. will try to stick on it. if it will work out i will go off rifampicin and add rifabutin. It was quite a struggel to get rifabutin. But i order it from belgium, its also quite expsenive. 100 (250 euros). So i dont feel like crap but im also not great. I can go out ride a bit ebike and do some really smalll tiny hikes. My neuro symptoms are still on fire, but thats mostly the last sympomts that dissapers.

Hi Palermo, thanks for your update and good luck in your next steps! I have managed only 5 days pulsing on metronidazole, and going to higher doses of max 1200mg/day, it was tough but probably has done its job. Since then I did not repeat that kind of pulsing protocol, since I m on another abx protocol now. Still having neuro symptoms too. Probably still long way to go. Unfortunetally I m not very sure of whether this direction is correct and is actually working, not many herxes and symptoms still kind of continue...Best wishes and god luck, B

palermo said...
hey lyme group,

im quite new here. Short Story i got lyme for over 15 Years, but i lived quite well with it the last 10 Years.
Then covid and vac cames and it goes a bit down the road.
So i thought in september maybe i should try some abx. I took mino+plus differnt abs vor 5 Weeks and everyhing went worst. I had to break up because i got tachychardien and palpilations like crazy. So i stopped ABx and still two weeks i felt worst ever. After 3 weeks with no abx and not much herbs i felt better so i was starting my buhner herbs again. And crashed after a week. (guess it was herx) So i started low and slowly raise. I felt a bit better from time to time. But now 6 weeks after i felt worst again. My main symptoms are foggy brain dizzy, higher puls when im slowly moving my body, crazy tinitus and visual snow. i just feel so weak.
My herbs what im taking:
knotweed 3x600mg
cats claw 3xtp 3 times
sida acuta 15dropsx3
bidens 10x3
taiga 2x500mg
kudzu 3x1tb
hottunyia 3x600mg
andographtiis 3x600mg
crypto (normal but i stopped vor 3 days)
sasparila 3x500
baikal2x500mg
lions mane 3x500mg
reishi3x300 mg
hawtrhon berry. 3xtablespoon3x

And two antiviral tincutres mix with cordeyceps, cistus...

as supplement i took zinc, seelen, vitaminc, vitamin d, gluthtion, mnm, q10, nattiókinese, l lysin, liver detox and magnesium
i tested some virus last week and the titer vor ebv and herpes zoster was quite high.

So im not sure if its just takes so much time to recover or its just getting worst ;(or do i need to slow down and let my body detox, maybe its not detoxing enough... im just confused ;(

i do what i can i dont eat any shugar, milk or gluten. Just organic food, fresh vegatble and meat. I do my own bonebroth and eat it every day.
Its now 6 weeks after the abx and im feeling stil so crap, maybe you have some ideas for me?

thank you
(sorry for my bad english)
julian

Hi Julian. Your symptom picture and your herbal protocol is very similar to mine. Which herbs do you feel have been the most beneficial at addressing the brain issues such as dizziness? Gou teng made a noticeable difference for me and I recently added lions mane and it’s made the biggest difference so far. It’s possible I was going to get better with or without it but I don’t plan on quitting it to run that experiment.

Out of curiosity, are you similar to me in that herbs don’t cause much herxing? I guess I’m part of that 20% or so of people the Buhner says don’t herx. I also take large dosages like Buehner says they do in China. Thanks for any advice you can give me from your experience and I hope you are doing well.

palermo said...
hey rampage, i mostly was herxing on cryptolepsis. I would say crytpo and artemisia are in my opionen the strongest herbs with a hug broad impact of several infections. For neuro stuff, you taking already the right one, gou teng and lionsmane, you can try to add stephania? Also andrographis gave me some neuro herx. But none of them gave me a huge relaese, specily my visuel snow problem... Thats why i went for abx, but i hope it will work for you!

Thanks, bud! Have a great week.

So two weeks on Rifabutin now, and i added 3 Days ago Tini, that really kicks my butt! I went straight to 2x500mg, and i herx quite wild. I was from already 11.000 Steps in two days to almost bedridden. I read it a lot that people herxing more on second time on tini. So lets see wanna stay at least 3 weeks on this protocol.. Normaly im sipping on my lipsomale glutathion every 3 hours on a day like this, but i forgot to order it ;( Another plan is to start artemisin soon, (extract artemisa) its higher potent then just artemisia, and i hope it will hit my babesia.

haha sure im having a good spirit, if i learned something in my 20 years of lyme: if you take something and feeling 3 days later quite crap, is this stuff working ;) I feel you rampage is always a juggle between, spending all your money in therapy, or make yourself happy and buy something for your soul! I also just bought another camera last week, and still dont know how i will pay my next Invoices from my doc. But sometime you have to make yourself a bit happy!

ok last night was horrable. It started with chills then i had fever 38.5 and high puls. My head feels like exploding. Covid was negativ, i guess i need to slow down. My heartrate was the hole morning around 100. I think rifabutin kicked my ass. I skipped my dosage this morning, waiting for my doc to call me back, but probably will continoue with lower dose....

thank you garzie for you lovely words! im feeling already a bit better, tempeatur dropped to 37,2 and heartrate stays also around 80. Yeah i think i went a bit to fast with rifabutin, i read it a lot that it can kick your butt. Im happy that you are able to tolarate it. Yeaht its the biggest marathon of our life.. And to see that there is an reactions is also not the worst to be honest. I will keep you updated!

ok, the last 10 days were quite good, i made a new step per day records since treatment. I did 17.000 steps which is kind of good, so my energy is coming back slowly. I probably will start with an low workout next week. My feets are still hurting but its a bit better. My toes are still swollen, but i guess this wont go away so easily. So i started again to add tinidazol, and im on my second day, but its hitting me already. i guess i wont make 20 days, probably will try to pulse it like 4 days on 3 days off or something. In summary a lot of babesia symptoms where coming back. Higher heartrate, headace and some mild night sweats. I think its a good sign, because i also added more herbal babesia treatment. (sida, yarrow and higher artemisia) So i will do these kind of Tini pulsing till January, and then i will probably add tafenoquine and see how is it hitting my butt.

thanks garzie! Ok the last 2 weeks where quit fine. I did around 15.000 steps every day and didnt felt so tired in between. I could walk much faster then usually and also shorter time to recover from my walks. I also added tini the last 10 days, but stopped today. (Last 2 days was getting more and more herx and was just tired and didnt wanna get an crazy herx like last time.) Also tini makes my sleep so poor and it its so unpredictable. So overall was good, just tini is still hitting me hard. I also wanna share my protocol what im taking at the moment.
abx
300mg doxy
300mg rifabutin
1000mg tinidazol (10-20 days)
buhner herbs
3xcrypto
3xsida acuta
one cup of mixed powder (knotweed, cats claw, baikal and andrographis)
two cup mixed of yarrow and artemisia

I will add tafenoquine slowly next month

there is also a new symptoms of feeling cold, kind of anoyng me, but i read it could be related to sida acuta. My iron levels are fine.....