Brain slows down physically

Does anyone else have this symptom?

My brain slows down physically. Like my head feels weak (dr's look at me like i'm nuts when i describe it this way). At my worst, speech is slow (not slurred) and its hard to get words out. At times I can't even speak, even if i try, its like its too much physical exertion for my brain. Thoughts are slow too, I know this is brain fog but when my brain is physically slow everything else slows down too. This happens when I'm triggered by smell or other certain stimuli. Sometimes my head flops to one side or forward, no head and neck stability. ALso the entire body feels weaker too, I had severe episodes of this and if i tried to stand up, i would fall, my legs gave up.

What is this called? Mostly asking about the head weakness part, and if anyone else has experienced it.

Hi sunfun, I agree with astroman that it sounds like two different set's of symptoms but they could be caused by the same thing

I have the first one which is known as cognitive dysfunction, you said your cognitive dysfunction is triggered by smells, do you have multiple chemical sensitivities also known as MCS? I have MCS and it does trigger the brain fog when I inhale fragrances. I also get it from stimuli as well which is known as 'sensory overload'

and the second one I have as well which for me is caused by cranial cervical instability also known as CCI, have you looked into this? it's usually triggered by a neck or head injury of some kind

brain fog, cognitive dysfunction, MCS and sensory overload can be caused by tick borne infections and they can also be caused by CCI

If you scroll down on this link to Dr Ian smith and Prof Francis Smith, there are some really good webinars and associated pdfs you can look at if you want to know more about CCI

https://aonm.org/view-past-webinars/

I also thought the same thing as Walking By Faith re CFS/ME, I have severe CFS/ME with the weakness of the head and neck and not being able to stand - with severe CFS/ME these symptoms would be all the time, they wouldn't fluctuate much in terms of severity or come and go. So someone would be bed bound / wheelchair bound pretty much all the time with severe CFS / ME, if that is what is causing this level of extreme weakness and I assumed that sunfun would have said that if it was the case. But I could be wrong!

EDIT - when someone has this extreme weakness with CFS where they are unable to hold their head up or stand then they usually are about 20% or less on the CFS functional ability scale. here is the scale -

[url]https://www.actionforme.org.uk/uploads/pdfs/functional-ability-scale.pdf

Post Edited (emma blonde voyage) : 2/13/2024 6:47:53 AM (GMT-8)

Sounds exactly like CCI to me.

No one wants to treat me because I am very sensitive to treatments and highly reactive.

I only have another place to consider where I can stay temporarily, its another basement apartment. I don't know if it will help. Ideal situation would be to sleep outside but its impossible because of the climate (Canada). Still researching the mold possibility although I have my doubts given the mild test results (posted in another thread). Dr Nathan wants me to do another mold test, this one through Real Time labs. Won't accept the Great Plains one. Is it worth forking out $500 US (more in Canadian $) for this? I keep wondering if its not mold related. Anyway, got an expensive organic mattress, its off gassing too and I can't handle it. So it was suggested to me by a practitioner to remove it and sleep on the floor It is just non stop and I am done with this. I am at the absolute end and ready to throw in the towel. I can't handle it anymore and hate being even more of a burden on my family. I've tried so much to make my residence tolerable, air purifier, organic mattress. Trying the non toxic cleaners (Seventh Gen brand) now, lets see. Can't use vinegar even though the smell dissipates, i react to it. Whats left y'all?

I have had CFS for the last 10 yrs. No Dr has suggested CCI, they just think its something psych and labelled me with Conversion Disorder

In CCI (craniocervical instability) these things are all related. The instability of the craniocervical area causes compression of nerves, blood flow, and other issues that can influence the whole body and brain. POTS, blood pressure issues, brain fog, cognitive slowness, memory issues, vision issues, dizziness, etc. are typical with CCI, not just the neck weakness and pain at the base of the skull. Hyper-reactivity and diagnoses of CFS/ME are typical as well. CCI can only be diagnosed with an MRI that is done with the person in an upright position. An MRI done in the usual lying-down position will not show CCI.

This might be helpful for anyone curious about CCI: https://www.jenniferbrea.com/my-story