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Botox cell injections for muscle pain

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Posted 9/23/2024 5:55 AM (GMT -5)
Has anyone had botox injections for muscle pain? I have tried everything for the knots in my neck/traps and shoulders. Alternative treatment helps for a couple days and then it is back.

Some places on the internet say that someone with Lyme should not get botox. Many years ago Dr. J said in an off-hand comment not to get botox.
Posted 9/23/2024 6:45 AM (GMT -5)
its a nerve toxin - so is not really treating the underlying issue - just mitigating the symptoms

i dont know if the toxin causes damage / changes that make lyme bart more likely to do further harm - as they tend to take advantage of damaged tissues / local inflammation
that could be why LLMD's might not be keen - but that's speculative on my part

i have had really severe spasms in the muscles of my neck and upper back on and off since getting lyme / bart
-massage helps - esp into the muscle bunches that are most susceptible
-exercise - done carefully - helps - and stretching
-my bed / pillows seems to be important - the best pillows i have found are microfibre

other than that i think its a matter of treating the underlying infections - as they are the driver
Posted 9/23/2024 7:47 AM (GMT -5)
I don't know about Lyme specifically but I know if you have MCAS it's usually not recommended

I use a theragun percussion massage device on myself which I find helpful

Also using topical creams like arnica gel, CBD oils etc

What have you tried so far? Dry needling? acupuncture? cupping? foam rollers? myofascial release? massage? tens machine? topical magnesium? heat pads?

Astroman on this forum has some good suggestions re trigger points

There is a pain clinic in London I was looking at who use botox for trigger point injections as I have Fibromyalgia and looking for an alternative to using NSAIDs for widespread chronic musclo-skeletal pain

click here for clinic info link

Post Edited (pinkblossom) : 9/23/2024 9:09:04 AM (GMT-4)

Posted 9/23/2024 10:08 AM (GMT -5)
I tried Botox for migraines and tightness in shoulders and right side of neck. Did nothing.
Posted 9/24/2024 5:45 AM (GMT -5)
I went to my chiro and asked him. He was very against it. A hard no. Why would I put a neurotoxin in my body? I am shutting down my nerves and wouldn't feel if I was injuring anything etc. For instance I could be holding my head in an incorrect position creating problems that I wouldn't feel. I may be paraphrasing him incorrectly but that is what I got out of it.

pinkblossom said...
What have you tried so far? Dry needling? acupuncture? cupping? foam rollers? myofascial release? massage? tens machine? topical magnesium? heat pads?


All that.

Chiro mentioned this new shock wave therapy he has. He thinks it will break up all the scar tissue I have. I did try it a while ago and it did help. But I needed 6-8 treatments and it was over $125 a treatment. And I am sick of dumping money into things where I get 2 days at most of some pain relief. If I knew it would help enough that I could sleep on my side I would do it.

https://www.webmd.com/pain-management/what-is-shockwave-therapy

My forward head posture is an issue. I need to strengthen the muscles in the front of my neck to support my head. I am going to do that and re-evaluate the shock-wave thing.
Posted 9/26/2024 10:33 PM (GMT -5)
Hi,

I don’t know if this interests you but have you tried a NUCCA chiropractor? I had extremely tight neck and shoulder muscles and was in pain 24/7 (it hurt from the base of my head to the bottom of my shoulder blades). I was told that I had thoracic outlet syndrome which I think a lot of people with Lyme have. I too tried a lot of treatments (acupuncture, massage, osteopath) but they would only provide brief temporary relief. Then I tried NUCCA and it was a complete game changer. For me, this treatment literally fixed my pain which I had for years within a few weeks. It was unbelievable! It is expensive at the start because they do X-rays (I think I paid around $1200). I got this done seven or eight years ago and knock on wood I am still pain free. I still have a lot of Lyme symptoms but NUCCA fixed my neck/shoulder issues which also greatly reduced my headaches so I can’t say enough good things about it and recommend it to anyone dealing with neck/shoulder issues.
Posted 9/29/2024 10:50 AM (GMT -5)
The ncca thing is interesting. Were you diagnosed with thoracic outlet syndrome or did you just treat it?
Posted 9/29/2024 4:27 PM (GMT -5)

KellyR said...
Hi,

I don’t know if this interests you but have you tried a NUCCA chiropractor? I had extremely tight neck and shoulder muscles and was in pain 24/7 (it hurt from the base of my head to the bottom of my shoulder blades). I was told that I had thoracic outlet syndrome which I think a lot of people with Lyme have. I too tried a lot of treatments (acupuncture, massage, osteopath) but they would only provide brief temporary relief. Then I tried NUCCA and it was a complete game changer. For me, this treatment literally fixed my pain which I had for years within a few weeks. It was unbelievable! It is expensive at the start because they do X-rays (I think I paid around $1200). I got this done seven or eight years ago and knock on wood I am still pain free. I still have a lot of Lyme symptoms but NUCCA fixed my neck/shoulder issues which also greatly reduced my headaches so I can’t say enough good things about it and recommend it to anyone dealing with neck/shoulder issues.

I’ve been seeing a NUCCA for many years now.
I’m thinking 10 years.
At first I was seeing him weekly but now I see him every 8 weeks.
Posted 9/30/2024 2:12 AM (GMT -5)
Hi,

I was diagnosed with Thoracic Outlet Syndrome by an MD (but he wasn’t a Lyme literate doctor). He put me on some strong prescription muscle relaxants and anti inflammatories for a few weeks but it didn’t do anything at all. Nothing helped until NUCCA. I actually haven’t been to an appointment for a few years now. I probably should go more often but I have zero issues with my neck and shoulder so I don’t even think about it.
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