My healing diary - Lyme + Bartonella

Anna44965

Regular Member

Joined : Nov 2023

Posts : 23

Posted Today 4:48 AM (GMT -5)

Hello everyone
I wrote here on the forum recently that I have come far in my healing journey after few years on herbs but never near 100%. Now I have decided to take antibiotics to hopefully end this war.

I am fighting chronic Lyme and Bartonella, now together with LLMD.
I started this post to be a place for my and your reflections about my healing journey.

The plan is to start quite mild, apart from probiotics, supplements and detox:
- Doxycycline twice a day
- Fluconazole once a week for candida
- Tinidazole on weekends (for now to see, to avoid strong reactions on weekdays)
- I will add Bactrim after two weeks
This will be adjusted as needed.

I started on Wednesday, February 5th just with Doxy.
The first dose gave me a lot of nausea but I started taking Doxy after food and it helped a lot!
Two days after starting, my mood changed a lot, and it’s shifting from irritability, anxiety to crying.

This was one of my biggest symptoms at the beginning of the disease a few years ago, which was unbearable!
I haven't cried (for no reason) and was stable for many months until now, so I believe this is due to Doxy.

I feel like I've awakened the beast, I'm not sure if I did the right thing 😅

I just hope that this is ”just” a herx and that it won't last the entire treatment because then I definitely won't survive this 🫣

I said that 2025 will be my year, I hope that after the treatment I will be able to live to the fullest as I did before 🤞

I will update this post at least weekly!

Garzie

Forum Moderator

Joined : May 2017

Posts : 6568

Posted Today 6:41 AM (GMT -5)

good Luck Anna

i also started with herbs and added antibiotics later and it has resulted in ongoing improvement

the emotional symptoms you mention sound very much like the signs of a herx reaction and are to be expected ( worsening of existing symptoms and arrival of new ones ) these typically reduce over time

in terms of overall plan - from my experience i would suggest a few things to consider that have helped me considerably - and you may also find helpfu:

1, consider keeping some form of detailed treatment and progress tracker - when we go into treatment we often think of it as rather binary ( it either works or doesn't work) and relatively short term (a few weeks to a few months) - but in reality, in people who have been sick for years with lyme and co - it's much more often often nuanced and long term ( many months). in these circumstances having a tool that can show objectively - if there is progress or not - which symptoms might be related to which intervention and help steer my treatment decisions especially when self treating has been utterly indispensable to me and pivotal to my progress.
(i have posted guides and even templates for doing this on the forum )

2, lyme and bartonella are both biofilm forming infections - and chronic infections always involve biofilm - so you may wish to include biofilm disrupting agents in your protocol. most LLMD's now incorporate biofilm disrupting agents into their protocols. there are many of them to choose from and they often work best in combination, but be aware they will typically increase herx reactions ( they increase the effectiveness of antibiotics ) and so you may want to add them in a phased approach.

i hope its of some help
all the very best !

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