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Help im scared that i have ms and im only 17

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Multiple Sclerosis
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Posted 2/10/2013 7:28 AM (GMT -5)
So first I have chronic chest pain that radiates to my back with heart palpitations, which worsens with physical activity. Dizziniess sometimes. I am going to see a cardiologist again because they couldn't get a diagnosis last time and said I was fine.

Second I have tingling sensations that happen with pressure most of the time, physical activity and sometimes by them self down my arms and legs. Say if i lay on a arm or cross my legs they become pins and needles instantly. Also tingling in the knee caps and bottom of my feet and when tingling occurs in right foot 1 toe gets numb. I also have visual snow so it is hard to see at night.

My doctors and psychiatrist dont think its MS, they are not to concerned about it at all. But I am going to my doctors the 18th and im gonna get him to refer me to a neurologist. So i could get an MRI on my brain and spine. Is there anyway I could get him to refer me to the neurologist so that I could see him quickly.

Im really scared that I have it. 3 possiblities are MS, Peripheral neuropathy or a circultory disorder.... I hope i have the neuropathy I just dont know. I probably will kill myself in a drunken haze if I have MS... i really dont know please comment and help. my family and everyone else thinks im crazy im all alone in this..
Posted 2/10/2013 8:34 PM (GMT -5)
Some of your symptoms might be MS, but some don't seem at all related. I've never heard of heart irregularities being attributed to MS. Also, I have numbness but it doesn't come and go and it's never related to laying on a limb. My numbness developed over a period of days and then just stayed. It seems permanent. It is due to spinal damage (lesions).

I also suffer from chronic vertigo. Again, it does not come and go. It came and stayed. My MS symptoms can vary in intensity but they don't come and go. Your doctor could check your reflexes and screen for typical neurological responses. If you fail those, then a neurology referral would seem necessary.

It seems like you are self diagnosing. Do you suffer from anxiety or depression?
Posted 2/10/2013 10:07 PM (GMT -5)
Yes I do suffer from anxiety and depression, but finally my Psychiatrist has believed me that my symptoms are not all psychological. I took an extensive therapy(3 month program) and lots of medication and nothing seemed to help. My Anxiety and Depression is because of my physical pain. So I am going to see a cardiologist, a Gastrologist( my family doctor thinks my chronic chest pain is gas related) and I am going to try to get him to refer me to a neurologist because this pins and needles thing is really scarring me.

I have pins and needles in both my legs(feet) and arms(hands) The pins and needles sometimes happen on there own without pressure and they are more prone to happen on there own with physical activity. But the pins and needles are really bad when I put pressure on a limb or cross legs or something. But one of the reasons I am scared is that this pin and needle sensation is getting worse and my legs and arms will be in alot of pain sometimes.

And thank you for replying back, I really needed someone to talk to about this. I just assume it is MS because alot of my symptoms match it. Pins and needles, Peeing problem, visual snow(eyes), memory problems, cold hands and feet

But most of all is this pin and needles sensation. I dont know my doctor also said its not MS because tingling sensations or numbness is kinda permently there. It just doesnt come and go with pressure? is he correct?
Posted 2/17/2013 4:30 PM (GMT -5)
MS is scary and frustrating to live with, but, you will be a stronger person, find out who your true friends are, and an inspiration to others, EVENTUALLY.

I can relate to wanting to kill yourself. When I first found out that I had MS (age 22) I said the same thing. I reiterated that feeling when I heard that someone with MS may end up usng a wheelchair. I said "I"m not going to stick around for havng to use a wheelchair, F that!"

However, I broke my ankle (lost my balance) the night before graduating from college, and was forced to use a power wheelchair to traverse the stage to receive my diploma. Once my ankle finally healed, and I was back to walking, I was thankful that I had the chair to use!

Later, when it became difficult to walk long distance (even from the parking lot into and around the store and back) I chose to use a manual wheelchair to move around more quickly.

I'll tell you what, there are plenty of advantages to being deemed 'handicapped, or disable". Like the handicap parking spaces, not waiting in line at airports or amusement parks, and better views ( because people can see over me in a wheelchair, so I get up to the front of the line - like at the Luvre in Paris to see the Mona Lisa~ or at the AT&T Golf tournament at Pebble Beach.

Living with MS is about finiding and appreciating the little things in life. Living with MS is Majorly Frustrating, and will make you Mighty Stubborn *as if you weren't already!*. Living with MS is a huge challenge.

I've been living with my MS diagnosis for 9 years now. Got my Dx at 22 years old (but experienced symptoms for a few years before that).

Hang in there!
Posted 2/20/2013 2:08 PM (GMT -5)
For people looking for answers, please know that there are people who will tell you that MS doesn't exist. That MS, fibromyalgia, RA, Lupus, ALS and many other diseases don't exist. That all those diseases are simply undiagnosed Lyme disease. So do keep an open mind. Remember that some people say you have Lyme even if you've had extensive testing by Igenex and other reputable labs. They will say "no testing is perfect." And that you MUST see an LLMD who won't take your insurance but who will give you a clinical diagnosis based on your symptoms. Then that doctor will attempt to cure you if you have cash only. Think about it.

I have done my own research but alas I must be an idiot. I feel that my diagnosis is correct. I feel I have MS. I am responding to treatment. My MS is currently in remission. I am able to work full time. I have no cycles of infection. I respond favorably to steroids when I take them.

I do believe Lyme is a serious disease. It can be fatal and needs to be considered when looking for answers. It can be very difficult to treat. It can exist chronically.

Please remember that this is a forum of support. Telling people that their disease doesn't exist can be extremely unsupportive.
Posted 2/25/2013 12:33 PM (GMT -5)
Anon - hun , please do check in with a Lyme doctor. I came onto the MS page also b/c my symptoms were very neurological, shooting pains, brain fog etc. and then I started to have heart problems. I have Lyme disease but thought it was MS (which I do think is real) but if abx help than no, it is not MS.
Posted 10/9/2013 3:16 PM (GMT -5)
I don't think my posts are going through so sorry if this posts twice, but I'm 17 as well and I've been experiencing the same exact symptoms that you stated and I'm freaking out over MS as well, I'm going to the neurologist next week and I'm worried :( my reg doctor thinks some of its my anxiety but I know all if its not. So if you found out anything or what was causing it please let me know!!:(
Posted 10/9/2013 4:24 PM (GMT -5)
clean mri, clean emg... symptoms are alot worse. my skin tingles in heat from sunlight to hot showers. no answers. :(.
Posted 10/18/2013 4:40 PM (GMT -5)
Have you tried checking out the Lyme avenue Anon? Its worth getting checked out especially if your symptoms are getting worse. My symptoms would flare every time I took a hot shower - my legs would feel numb for a long time.
Posted 10/25/2013 3:26 PM (GMT -5)
Say if you walked out into the sunlight, would the sun light make your skin tingle. and do you have alot of muscle twitches. if i asked for a lyme test for blood work what would it be.
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