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Total Colectomy Part 35

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Posted 6/4/2010 10:39 PM (GMT -5)
Hi Allie,

Thanks for update on Lizzie.

I ate heavier stuff today and had no issue. Then I panicked and drank grape juice, now have ileo diarrhea. Auuuugh!

Oh, well, Rosemary

Praying for Liz and all of you
Posted 6/5/2010 2:14 AM (GMT -5)
Question:

Yesterday morning I saw some green fluid in the pouch. Showed the surgeon who gave me permission to go back on a liquid diet. I'm now having those side stitch pain, the same ones you get when running. There is also gurggling noise going on down there.
Is the pain/gurggling noise good and is it a sign of my intestines waking up? So far the nurses say its good
Is pain killer medicine the only thing that helps? One nurse told me to try and lay on my side and bring my knees to my chest, I did this but it didn,t help.
I did have some other questions but I forgot them.
Posted 6/5/2010 8:06 AM (GMT -5)
Yes, lots of noise in your intestines is a good thing....they want to hear lots of grumbling! Not sure about the pain though. Hoping somebody else will come along and let you know about that. Is your stomach bloated? Do you ever feel nauseas? Just remember to walk alot. Hoping your intestines are waking up!

Riding, you really need to get a defogram to see how your pelvic floor is working when you poop. It is embarrassing, but really gives them a good idea of the function of the rectum. Can you empty your rectum if you can get the laxatives to work?

Rosemary, good that you had some pudding type output for a little while anyway. I understand your fear though. Just try to let it be thick for a little longer and a little longer each time. Maybe try to drink half the dose of grape juice so you don't get diarrhea. UGH, that diarrhea must make you so dehydrated. I am sure your doctor will not use barium. Just tell him, NO BARIUM so he won't use it. There are many of us that shouldn't have barium and I am one of them. LOL

I am getting anxious about my surgery! My date is loooming right over my head. YIKES!
Posted 6/5/2010 12:27 PM (GMT -5)
Shiny,

The bowel sounds are good, but the pain is not. Go very easy with tiny sips. Noise means bowel is trying to wake up, but pain means ileus still half asleep. Maybe just let some ice cubes melt in your mouth.

Tracy and all others: See my separate post. I think I called it HAS ANYONE WITH AN ILEOSTOMY EVER HAD A SMALL BOWEL FOLLOW THROUGH....I looked it up in a book and they inflate a balloon INSIDE YOUR STOMA to keep the contrast in while they take the xray. Even if I did not have the barium and the doc used a different contrast, I think I will skip this! Imagine the damage some radiologist could do to a stoma inflating a balloon inside it to keep contrast in. I have a cruise to go on in July!

All I gotta do Is avoid potato and other thick stuff; all else seems to pass just fine. I don't want to get screwed again medically when all I gotta do is avoid potato (be it mashed, in chip form, etc.)

Lord, I'm glad I have some professional text books. THe stuff docs don't tell you, I could write a book about it. I will call the radiology dept direct myself on Monday and be sure this is true before I say, "Gee thanks for the offer, sounded like a good idea, but don't want the balloon, too risky" or words to that effect.

Rosemary
Posted 6/5/2010 8:29 PM (GMT -5)
Not feeling good at all. have intense pain from my bladder and urethra..maybe another infections is rearing its ugly head on top of the basic issue/pain.
I am so fed up, I just want to go on with the surgery...i now it could be a fault but right now I am reaching again a point where I must say that my life is severely affected by the bladder issue in addition to the other problems and that's why I just want to get rid of the hurting, messed up part of my body....it does not feel right..it feels as if it is not thought to be a part of my body so it can go away...

Roemary,

I can't imagine why there should be a baloon inflated into your stoma.. A small bowel follow through always means following the barium that is either taken orally or inserted via naso-duodenal tube from the top to the end of the small bowel. So why they should do it the other way round? this would not be possible anyway I guess.

Maybe there is some confusion with the barium x-ray enema of the colon? With this procedure a tube/baloon is inserted into your colon and the colon is filled up with barium retrogradely. but there is no following, no observation of the barium trace and its transit.

Allie,

I can actually feel your frustrations about normal test results depite having severe symptoms. Before I underwent the motility tests colonoscopies. endoscopies (repeated several times) and all other common tests did not reveal ANY abnormality, beside marginal diffuse findings nobody could interpret. From retrospective these already indicated a motility problem but for sure nobody thought abou this option as the usual docs have not heard anything about motility issues before. Only in the end when the motility problem had been severe for two years there was morphological evidence of the severely impaired motility that could be even seen by common radiographic studies (gross chronic colonic dilatation). Furthermore since i was not taken seriously and since they could not have helped my anyway I never went into the hopsital even with severe bouts of pain when there might be a subileus that might have shown up in x-rays. But the dilatation from these episodes is mostly not chronic but intermittant and when x-rays were once done they looked normal. I was "lucky" that I had a severe subileus right before my stay in Italy which actually make me to go into the hospital...it cleared up under a massive regiment of oral laxatives, colon prep and enemas but I wasstill very miserable afterwards. In Italy they first took x-rays and they saw air-fluid levels and distended small bowel loops which finally proved my motility issues visibly... it may sound odd but I was really grateful for this episode giving me certainty about what was wrong with me and even more THAT i was INDEED very ill - physically and NOT mentally.
Posted 6/5/2010 9:22 PM (GMT -5)
Hi Peltz,

So sorry about your pain. I had one bladder infection in my life and it felt like a knife going up there. Your pain must be awful and I deeply feel for you.

Thanks for your feedback re my reading in that radiology text book that they inflate a balloon behind the ileostomy stoma to keep the contrast in the small bowel while they take pics of the small bowel. Your line of thought however was correctly verified by two other posters where I posted my concern on another thread. They were two ileostomates who had had small bowel follow through xrays and they just drank the contrast, xrays were taken, and the contrast just then went into the bag and they Both said no big deal.

I do know what I read in that book was specific to ileostomates. I do know what you are referring to with people with colons having barium xrays and they put a balloon in the rectum to keep the barium in there, but this article actually said they basically did the same thing with ileostomy stomas. Just goes to show you cannot believe everything you read even if in a current text book.

I am soooooooo glad we have one another to check things out with. Otherwise we could scare ourselves needlessly. I will talk to the doc monday, get this info straightened out and then likely proceed with the test.

I hope so much you get feeling better by whoever can help you.

Thanks again, Sincerely, Rosemary
Posted 6/6/2010 10:04 AM (GMT -5)
Hello All,

I am fairly new to this site. It was suggested to me that I talk to the people on this post regarding my concerns and issues.

I hope you all can help, or give some suggestions - I would so greatly appreciate it.

I am a 31 year old female and I have been dealing with slow transit mobility for as long as I can remember. about 2 1/2 years ago, I decided to pay more attention to my gi tract and wanted to help myself become more regular. So I started with the fiber, water, diet, exercise change and it only seemed to make things more heavy in my stomach. I tried miralax, stool softeners, laxatives, colonics, herbal teas, prescription meds and nothing is working to make me regular. Now, things have become much worse!  After a year or so of struggling, it seems as though my gi does not respond well to any meds or supplements.

When I take meds my bowel seems to just turn to mush and sit there or swim back and forth like a FISH BOWL, but no release. When I push on my right side its all mushy and swishy sounding and my stomach makes a lot of noise - like clogged drains.  When I don't take meds, I get very bloated and feel full all the time, constipated. It usually takes 4-5 days or more and then ill have a release. Most times very lil, and I still feel constipated....sometimes one big load. I feel sluggish and fatigued most days.

There are the procedures I have completed thru The GI dept:

*Colonoscopy - good

*Multiple Blood Tests - all good (checked thyroid, pancreaus, liver, etc etc)

*Endoscopy - good

*Small Bowel Transit

*Camera Capsule (for small bowel) - good

*Anorectal Neurophysiology exam: normal

*Sitz Marker (after 5 days they were spread throughout my colon - and some where still at the beginning section of my large intestines)

*Defecography exam: took 2 tries to release all the contrast in my rectum. ***more on thi**** rectocele??

*Manometry Exam: waiting on results, just took last Wednesday

Prescription Meds:

Amitza - didnt work

Zelnorm: didnt work

With all these tests down, the GI surgeon has scheduled my colon surgery: Total Colectomy (larposcopic) for June 24th. He explained to me that this surgery is highly controversal and that it is not done very often. That Colonic Inertia is a phenomonon and that doctors do not really understand it well enough. He also keeps reminding me that it is irreversable...It almost seems like he is not sure if he wants to do it or not....which worrys me.

Since he scheduled the surgery he called me and said that there may be a concern regarding RECTOCELE...I guess he is saying that I may have a 2 cm rectocele?? I am waiting to get for the GYN dept to call me to schedule an exam to determine if that is the reason for my constipation/slow transit issues.

I do not want to cancel or postpone the surgery, because I am so anxious and hopeful for recovery and the end of my constipation. I dont want to miss something at the same time. So, now I am going back and forth with what to do and how to move forward.

Questions:

1) For those of you who have had a TOTAL COLECTOMY, did your systems sound similar to mine? How did you feel before the surgery and how are you now?

2) For those of you with RECTOLCELE, what were/are your systems? Have you had surgery to repair the rectocele and if so how did you feel before and how do you feel now?

Any expereinces will help...I am up for some big decision making - and I want to try and make the most logical and sensible decision.

 

Posted 6/6/2010 10:31 AM (GMT -5)
Well the doctor called me back on saturday morning. I'm heading in for a CT scan next week. He is 99% sure I have a kink/swist in my intestine causing all my problems. So I'l have a tentative surgery date scheduled for 2-3 weeks. Too much surgery in too short of a time for me.. ughh oh well!



Barbeezee - it almost seems like you might have some pelvic floor issues too. Have you gone through any PT for it at all? If they remove your colon and you still have pelvic floor issues the surgery isn't going to be too successful. My doctor explained it as the cars on the highway aren't going to be able to travel if all the exits are closed
Posted 6/6/2010 11:52 AM (GMT -5)
Hi Jacoby,

Thanks. I believe that the Defecography and Manometry exams check for pelvic floor dysfunction....and all haven't said that was the issue. The only thing that is a possible concern is rectocele...which I am guessing is blocks the stool from passing.

I am frustrated becuase I do not want to have the surgery if I will still have the same issues, but it doesnt seem like the docs know for sure.

Posted 6/6/2010 1:08 PM (GMT -5)
Jacoby,

CT scan good idea. Good luck Rosemary
Posted 6/6/2010 1:15 PM (GMT -5)
Hello Rosemary,

Sorry...I forgot to mention I also have had 2 CT Scans completed in the last 8 months.
Posted 6/6/2010 1:45 PM (GMT -5)

Hi Everyone,

 

Here is the latest on Lizzie...

 

She asked me to post an update, and to send her love. She loves all of you, and is so grateful for all of your thoughts and prayers!!!

 

Saturday, June 5 - a home nurse has been coming to check on Lizzie; they're also doing at-home fluids. Her pulse has consistently been very high, she still has a lot of output from the tube, and she is still in a significant amount of pain. She is understandably weak and dizzy.

 

She was back in the ER in the afternoon getting more fluids. Even after getting fluids at home, she was weak, short of breath, and in pain. They gave her another two liters in the ER, and she was able to go home late afternoon.

 

Sunday, June 6 - the home nurse said that Lizzie is not stable enough to just get fluids at home. Her pulse is high and her blood pressure is low. She is on her way back to the ER right now. Even while packing a bag, she was very short of breath. She is also having pain and nausea when flushing the tube, so pray that she is only dehydrated, and that there is nothing wrong with the pouch or valve!!

 

Pray for wisdom for her doctors, that she would be encouraged, uplifted, strengthened, and HEALED. Also pray that the lines of communication between her local doctors and her doctors at Cleveland would be wide open.  She is so ready to have her life back, and she deserves nothing but the best.

 

I will update as I hear more.

 

Thank you so much!!! Love and blessings to you all!

 

Allie

 

Posted 6/6/2010 1:45 PM (GMT -5)
welcome Barbeezee, nice to meet you! what you're describing is exactly how my life used to look like before the colectomy. i had a severe chronic constipation and almost nothing helped me have felief. i used to take bottles of laxatives only to have little relief, felt miserably full, uncomfortable and in lots of pain most of the time. after 16 yrs i finally had the colectomy and very thankful i had it, i only wish i did it sooner. i had the colectomy Aug 2009 and feel much better since then. i do still have major issues with constipation, cause i also have a pelvic floor dysfunction - anismus and maybe it's rectal inertia too, so after thinking and rethinking and rethinking........ i've decided to have an ileostomy surgery. i'm planning to do it in July. i feel the main reason that causes me to still be constipated is my pelvic floor. but let me tell you, even if i don't have the ileostomy (which i believe will give me much better relief) the way i am now is so much better than before the surgery. i don't have now the unbearable pain i used to have before, i can eat better and it's easier to get relieved, only b/c i have a pelvic floor dysfunction, it causes me first of all to have devided bms, which bind me to the b/r for hrs every day and even after i'm "finished" i still have some amt of stools that won't come out and makes me very uncomfortable for the rest of the day...... meaning pooping is still controlling my life. so i believe that only a stoma can release me from being a slave to the b/r and i'm happy with my decision. this is my experience, but most of the women on here who had the surgery don't end up with a stoma and i hope you don't need it either. but there's really no way to know who will and who won't. i wish you the best of luck and a most successful outcome!
Posted 6/6/2010 1:51 PM (GMT -5)
Allie, we were posting together. thanks for the update. she's in my prayers always.
Posted 6/6/2010 2:01 PM (GMT -5)
Barb, hmmmm! I truly do not think a 2cm rectecele is the cause of your constipation....if this was the case, then the markers would have ended up in the rectum, not spread out throughout your entire colon. My sitz marker test showed 15 markers still in the ascending colon and the rest in the transverse colon on the 5th day. I have seen 3 colorectal surgeons and all of them agreed...a severe form of colonic inertia....but where I am lucky is that miralax is a miracle drug for me and still works.

Do you have trouble getting the poop out if it gets to your rectum? Do you ever need to use suppositories, enemas, splinting, or manual maneuvers?

I am having surgery June 21st....but I have chosen to keep my colon! I know, crazy, but we will see. I have more issues with getting the poop out than getting the poop to move. I have a rectecele, rectal intussuseception, and anismus. I am getting the sigmoid colon removed, the intussusecepted part of the rectum removed, a rectopexy, and will have a temporary ileostomy while all of that heals.

Welcome to the group. Looking forward to talking to you, Tracy
Posted 6/6/2010 2:16 PM (GMT -5)
Allie,

Thanks for update on Liz. Electrolye imbalance comes to mind, but it sounds like things systemic and mechanical may be so far beyond that. At this point ALL of her docs need to have an emergency meeting and put all their ideas together and work TOGETHER for the sake of saving this poor girl's life. I will pray that if there is any individual pride issues amongst these docs that they can just put it aside, put their hands in the air and utter the words "I don't know."

That is the first step in opening communications amongst docs. THen it allows for brainstorming of ideas and docs collaborating for the sake of the patient.

Her docs may already be at that point, but they sure need to be now for her sake.

I will continue to pray for her. Glad you are in touch with her and can be her voice as she is obviously too weak to post. Tell her we all love her. Rosemary
Posted 6/6/2010 3:41 PM (GMT -5)
Allie,

Next time you text Lizzie ask if they have tested her for C-Difficile, pouchitis, or other bacterial or viral infections. There has to be a reason for all this output and she has been without her colon for so long that it can't just be "dumping" as she is already adapted to not having the use of her colon.

Others without colons or without use of colon:

Get your vitamin K levels checked.. THis is essential for bone, blood clotting, brain, and heart health. Much of it come from green leafy veggies which most of us can't eat AND the rest of it is made by the microflora of our colons which we no longer have. I am supposed to take 1000 mcg per day that is 10 pills of it a day. My naturopathic doc put all this together. THis being without a colon/without use of colon really takes a team approach. Naturopathic docs are a good source for the nutritional part of this as they analyse what the body already has or has not then make recommendations based on that. Makes sense. SOmehow we have to bring them together with traditional docs (i have lofty dreams, huh?)

Rosemary
Posted 6/6/2010 5:03 PM (GMT -5)
SORRY for not getting back earlier, I have been working on my home AC with my dad all day. It is out, and it is 90 degrees in California, so....we gotta get this running!! Here are my replies so far....

2b ColonFree - Hello there! Thanks for your reply.

 

I do not believe that I have a pelvic floor issue, but I am not 100% sure. Which exam confirms that you have an issue or not?

I thought that after the Defecatory, Manometry, and/or the Anorectal Neurophysiology exam would determine whether I have Pelvic Floor Dysfunction or not. I was able to release the waterfilled balloon during the manaometry - and that doc said that he see's no issues with my rectum. I was able to release all the contrast in my rectum during the defecatory exam as well, it only took me two pushes.

It makes me feel a little more at ease about getting the surgery, when you say it was better to do it then not at all. I have been talking to my mom aboutit, and she said that anything would be better than how I have felt. I hope she is right. I really would love this to work for me. I believe that my rectum is fine....once it is in my rectum I have been able to release....it just doesnt like to get there....I imagine it getting stuck at the last to curves of the rectum. ??

Good luck with your second surgery, your ileostomy....that is a big decision, but I am hopeful that it will make you feel better in the long run. :) Ill be thinking of you!!

answers4me2- Hello to you too! Thank you for your reply as well...

Yes, I have to agree....2cm's is considered small from my research, and it doesnt usually cause constipation issues. And, yes my rings wouldnt be all over the colon. I even asked the surgeon that....and he said...."Well yes, but I still want to have this checked out, just incase". So...of course, I will do the exam. I will do any test the doc says I should do. I think that since it is such a controversal surgery, he may just want to get all of the "maybe's" out of the way.

Unfortunately, Miralax no longer works for me. It used to work, but after I used it for a while, it stopped. It was pretty much the same way with all the other colonn cleansers...and now with laxatives. Simulate laxatives work sometime and not others, but I always have left-overs..in the tummy.

I have also used GOLYTLY (the stuff we take before a colonscopy) and it worked pretty good the first time, but I have had to take it 2-3 times since...and it has gotten worse. The second to last time, I had a lot of excess fluid in my intestines - not all came out. The last time, I wasnt able to go for about 2 hours after finishing the bottle. I was having contraction type pains at the bottom of my tummy/large intestines...it was trying to move down and out. Finally it happened, but again I had excess fluid. Crazy.

Enemas leave me feeling awful. No bowel comes out...just the fluid and then I have excess fluid still in my tummy/large intestines.

Suppositories do not work either, I get the sensation to go so I do, and only when I try, practically nothing comes out. Maybe if I am lucky a small & thin 2-3 inch bowel movement.

Good luck with your surgery on June 21st. I will be right behind you, on the 24th!

Posted 6/6/2010 5:34 PM (GMT -5)
Lizzie, I hope that you continue to get stronger in your recovery. I miss your posts and will continue prayers for you.

Rosemary, thank you so much for your posts. They give me an inside look at ileostomies. You have answered a lot of the questions that I've had.

Janie, it's good that you're finally over your uti. I used to get them monthly and they're very painful. I am on a daily preventative now and haven't had any in a long time.

Hodaya, I am so very sorry that you're having to have another surgery, too. I am on the final leg of my journey now. My last day of work is tomorrow and my surgery is on Friday. I've had a busy weekend getting everything ready.

I take my showers in the evening and my husband helps put my gauzes, tape, and leg bag on. We laughed together tonite, because we only have 4 more nights of this!

I am so happy that my surgery is so near. I am nervous of the outcome, but am much more confident than before. I'm going into surgery with a positive focus. I really believe that an ostomy is better than my current life.

I have been having skin breakdown on my leg. The heat and medical tape are giving me blisters. It didn't happen last year, because I was in the hospital during the heat of the summer.

Love to all,

butterfly
Posted 6/6/2010 5:35 PM (GMT -5)
Lizzie, I hope that you continue to get stronger in your recovery.  I miss your posts and will continue prayers for you.

Rosemary, thank you so much for your posts.  They give me an inside look at ileostomies.  You have answered a lot of the questions that I've had.

Janie, it's good that you're finally over your uti.  I used to get them monthly and they're very painful.  I am on a daily preventative now and haven't had any in a long time.

Hodaya, I am so very sorry that you're having to have another surgery, too.  I am on the final leg of my journey now.  My last day of work is tomorrow and my surgery is on Friday.  I've had a busy weekend getting everything ready.

I take my showers in the evening and my husband helps put my gauzes, tape, and leg bag on.  We laughed together tonite, because we only have 4 more nights of this!

I am so happy that my surgery is so near.  I am nervous of the outcome, but am much more confident than before.  I'm going into surgery with a positive focus.  I really believe that an ostomy is better than my current life.

I have been having skin breakdown on my leg.  The heat and medical tape are giving me blisters.  It didn't happen last year, because I was in the hospital during the heat of the summer.

Love to all,

butterfly

Posted 6/6/2010 6:04 PM (GMT -5)
Barb, great news that you could push out the barium and the balloon. To me, it does not look like you have a pelvic floor problem, obstructive defecation syndrome.....hoping it is just the colonic inertia causing all of your problems!

One of the 3 colorectal doctors did say that removing the colon for constipation does seem barbaric, but they do not know any other way to treat it at this time.

You mentioned excess fluid getting retained in the intestines? What do you mean by this? How did you get the fluid out? How did you know? Did you ever have a barium enema? Sorry for so many questions, I am just trying to understand. Enemas don't work for me either. Either the water just comes out or nothing at all comes out. Never any stool????? Do you have any kids?

Butterfly, good luck with your surgery. And I am sure the traditional ileostomy will be a breeze to deal with after what you have been through with that leg bag. :)

Lizzie, still praying for you. Hoping your doctors get together to try and get to the bottom of this output issue! Love you!
Posted 6/6/2010 8:05 PM (GMT -5)
Just a qick note: Lizzie's condition might be related to metabolic complications arising from the internal pouch. I only know the possibility of having metabolic issues/electrolyte imbalances of the continent urinary pouch, but I think the two procedures may be quite similar and might similar possible complications sine the small bowel is not thought to be in contact with faeces/chyme/urine for a longer time.

here is a short extract dealing with the metabolic disturbances of urinary diversion but it might aplly to internal pouches in general/faecal Kock pouch as well.
"Most often, patients with complications of urinary diversion present with an appearance of obvious illness. In the 1950s, Ferris and Odel described the classic presentation of such patients, which consisted of easy fatigability, weakness, anorexia, weight loss, polydipsia, nausea, vomiting, and diarrhea.1 Additionally, these patients may be bacteremic or septic due to overgrowth in their often-colonized urinary reservoirs or conduits.

The hallmark metabolic abnormality observed in a patient with a jejunal conduit is hyperkalemic, hypochloremic, hyponatremic metabolic acidosis. Patients with ileal conduits, colon conduits, or continent reservoirs tend to present with hyperchloremic metabolic acidosis with normal or low potassium levels."

and that is a generel explanation for acidosis (that is the general name):
Symptoms of metabolic acidosis are not specific. The respiratory center in the brain stem is stimulated, and hyperventilation develops in an effort to compensate for the acidosis. As a result, patients may report varying degrees of dyspnea. Patients, especially children, also may present with nausea, vomiting, and decreased appetite. The clinical history in metabolic acidosis is helpful in establishing the etiology when symptoms relate to the underlying disorder. The age of onset and a family history of acidosis may point to inherited disorders, which usually start during childhood. Important points in the history include the following:

this is the whole article on medscape: http://emedicine.medscape.com/article/242975-overview
Posted 6/6/2010 8:10 PM (GMT -5)
here is another article delaing with another cause for dysfunction of the continent ileostomy.
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1419942/pdf/gut00400-0031.pdf

"This complication also plagued the continent ileostomy operation during its early development ... hyperchloremic acidosis developed 1 month postoperatively. ...!
Posted 6/6/2010 8:21 PM (GMT -5)
an understandable description of the causes and clinical picture/symptoms of metabolic acidosis http://en.wikipedia.org/wiki/Metabolic_acidosis

even her bone/muscle pain and aspitration problems could be related to an acidosis as well as their stomach pain and nausea and excessive output. maybe she has had this problem since pouch surgery and it has got progressively worse so that the pouch output is now massive.
Posted 6/6/2010 8:49 PM (GMT -5)
WOW! PELTZ,

Great research! I do understand what you are saying about these internal pouches having these common metabolic issues. Wonder if Lizzie was informed of the possibility of any of this prior to her signing consent for the internal pouch. I BET NOTTTT!

Anyway, It sounds like you are right. One of my friend's mom died of this acidosis issue. They better get together and figure out a cure for Lizzie as she's so young.

Butteryfly,

Glad you are feeling better about your upcoming surgery. I pray for you it goes well and that your new normal ileo works perfectly.

Prayers to Lizzie.

I gotta call tomorrow and get the details on my upper GI and small bowel follow through to look for narrowings due to those food clogs. I may skip the upper GI as that has no relation to the small bowel narrowing possibility as far as I know anyway. BUT I will ask. Don't want to get into trouble with testing. Even if I do have a narrowing what can be done? Unless it's right under the stoma and can be finger dilated. Am good with living on gush if I have to. As I'm such an internal adhesion former I'd have to be back into out and out small bowel adhesion obstructions before I'd have any more surgery. Hope we don't go there! Gotta be on my cruise July 13...hopefully. Rosemary
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