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MedicAlert Bracelets
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Ostomies
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PoucherInTO
Regular Member
Joined : Feb 2014
Posts : 156
Posted 3/23/2014 9:23 AM (GMT -5)
Hi Everyone
So, I've never given this any thought, but a friend of mine wears a Medicalert
bracelet - she has a perm ileo with anal closure.
Do any of you (jpouch, ileo) wear one?
Ymotso
New Member
Joined : Jul 2011
Posts : 17
Posted 3/23/2014 10:31 AM (GMT -5)
Hi Poucher.
I had an ileostomy and anal closure done at Mt Sinai 5 years ago and they recommended a Medicalert
bracelet.
I've worn one since just after I had it done.
PoucherInTO
Regular Member
Joined : Feb 2014
Posts : 156
Posted 3/23/2014 11:45 AM (GMT -5)
Hi Ymotso, thanks for the reply. I can see the benefit of wearing one, I do quite a bit of travelling so it might be a smart thing to invest in.
Can I ask - what does yours have printed on it?
Thanks so much!
Ymotso
New Member
Joined : Jul 2011
Posts : 17
Posted 3/23/2014 1:02 PM (GMT -5)
Hi again Poucher. My bracelet just says Ileostomy on the back.
I'm like you, my wife and I do a lot of traveling so it came highly recommended.
UCwhat?
Veteran Member
Joined : Dec 2012
Posts : 1042
Posted 3/23/2014 10:17 PM (GMT -5)
I have also thought about
getting one of these bracelets and was going to ask if anyone here had one. I just think it would be a good idea in case and accident or illness occurred suddenly, rendering me unable to communicate with whoever was attending to my emergency. I think I'll look into getting me a bracelet!
Eva Lou
Veteran Member
Joined : Sep 2006
Posts : 3444
Posted 3/24/2014 7:44 AM (GMT -5)
me too! I'd never thought of it, but it makes sense- I can picture it now, being unconscious & having an EMT do all this stuff, only to realize "Whoops...." once they lift your shirt! No thanks!
PoucherInTO
Regular Member
Joined : Feb 2014
Posts : 156
Posted 3/24/2014 9:15 AM (GMT -5)
I thought about
this a bit further. I'm on the Trauma Team at work, and with every trauma that comes in we do a digital rectal exam - check for blood and tone.
Some of us with ileos have had our anal closures, some have not. I don't want someone poking around down there trying to find a hole when there isn't one. Honestly, unless I pull my cheeks apart and am looking really hard, I can't even tell that things have been removed down there - I've healed really well.
Having an ileo does not = anal closure, and my friend who has the ileo has the following written on her bracelet:
- ulcerative colitis
- ileostomy
- anal closure
UCwhat?
Veteran Member
Joined : Dec 2012
Posts : 1042
Posted 3/24/2014 9:38 AM (GMT -5)
Good Point, Poucher! I do NOT have to closure, but my surgeon said it is important that no one ever try to give me a digital rectal exam. I'm pretty sure I'm stapled shut not too far up there. I would also want any medical professional to know to check my stoma and the area around it right away, in the even that I were very sick/injured. I guess I could specify on a bracelet "Do not attempt rectal exam"?
PoucherInTO
Regular Member
Joined : Feb 2014
Posts : 156
Posted 3/24/2014 9:49 AM (GMT -5)
@ UCwhat? : I was checking out the Medicalert
website, it seems that you give details about
your condition and then they work with you to come up with what to inscribe - so I'm sure they could write something like "do not pass anally" or something of the sort for you.
You have to pay a registration fee (it's small, $25 CAD) and then $5/month for the service. So someone can call the phone number on your bracelet to get all your details, 24 hours a day. And you can update your info as many times as you want at no additional cost. There are tons of necklaces and bracelets to choose from. Also, as soon as someone calls the Medicalert
hotline, the Medicalert
people will call your emergency contact person to let them know of your emergency. Seems like a good service for $5/month.
UCwhat?
Veteran Member
Joined : Dec 2012
Posts : 1042
Posted 3/24/2014 10:16 AM (GMT -5)
Thanks, Poucher...that makes sense. Which site are you looking at? The one I saw had yearly plans, ranging from $10 to $55 per year.
www.medicalert
.org/products/adults
PoucherInTO
Regular Member
Joined : Feb 2014
Posts : 156
Posted 3/24/2014 11:29 AM (GMT -5)
I'm looking at www.medicalert
.ca
It is a Canadian site - that could be the difference - are you in the US?
UCwhat?
Veteran Member
Joined : Dec 2012
Posts : 1042
Posted 3/24/2014 5:11 PM (GMT -5)
Yep, that would be the difference....I'm down here in the states!
ActiveUCer
Veteran Member
Joined : Jul 2012
Posts : 1685
Posted 3/24/2014 8:03 PM (GMT -5)
I have one but have been bad about
wearing it as I got it too small. The cost was $7 for the bracelet and $50.00 for the year (US). I use Medicalert
.
I'm not concerned as much about
exams and you can take one look at my stomach to know that I've had a TON of work don (one ten inch scar up/down, one six inch sideways, four lapro holes, a stoma). I've had someone say that if you come in unconscious from any kind of trauma/accident, then you go right into a CAT scan anyway.
But I have it because I want them to know who my surgeons and primary are. The hospital calls the number and they give them that information. You can pick what to inscribe from a huge list. My last one had ileostomy, pulmonary embolism, and needs stress dose steroids. Since the cheap ones are about
10 bucks with shipping, I have no issue reording when things change.
Shaz032
Veteran Member
Joined : Feb 2003
Posts : 1251
Posted 3/25/2014 6:53 AM (GMT -5)
I have one but it's because I got a lot of antibodies from one of the blood transfusions I had as a kid so need to be cross matched very carefully if I ever need blood again. I rang them to question why they didn't put my ileostomy on it and the answer was because it should be obvious to medical personnel due to the outside bag.
UCwhat?
Veteran Member
Joined : Dec 2012
Posts : 1042
Posted 3/25/2014 9:35 AM (GMT -5)
That's interesting, Shaz. I wonder if one can request what info is put on there. I don't really agree with their reasoning about
the ileo being that obvious. Unless they strip me naked at the scene of an accident, it could very well go unnoticed!
suebear
Veteran Member
Joined : Feb 2006
Posts : 5698
Posted 3/25/2014 10:06 AM (GMT -5)
I don't have one; I didn't want to wear a piece of jewelry that screams, 'I have a medical condition.' I'm more reserved about
that information. However, due to my international travel in countries where English is not spoken, I did have a tattoo done on my abdomen. It's in the universal language and says that I do not have a colon or rectum.
Sue
PoucherInTO
Regular Member
Joined : Feb 2014
Posts : 156
Posted 3/25/2014 10:59 AM (GMT -5)
I agree with UCwhat? - it isn't always obvious. We had a patient go into cardiac arrest, required CPR and it wasn't until we were well into the CPR that we noticed the ostomy (we concentrate on baring the chest and starting compressions - not pulling down pants) and in fact with the compressions the stoma was prolapsing into the bag. Nothing you can do about
that, it's going to happen with all the pressure put on the chest, and you do what you have to do to save someone's life.
No matter how rare or extreme the circumstance, if wearing a Medicalert
item makes you feel more comfortable, then that's whats you should do. You can always take it off and put it on as you feel necessary.
I'm definitely going to invest in one, especially because of travelling. I have also given my parents, sister and emergency contact in the city I live a detailed list of my medical history and meds, along with a list of my physicians and their contact info. I'd hope it would never have to be used, but it makes me feel better knowing this information is with my family.
ActiveUCer
Veteran Member
Joined : Jul 2012
Posts : 1685
Posted 3/25/2014 2:51 PM (GMT -5)
Oh wow Shaz - I recently found out that I'm a bit of a complicated blood match too (blood transfusions this summer). I never thought to include that warning.
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