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Phantom rectum
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Ostomies
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GC4249
Regular Member
Joined : Apr 2016
Posts : 127
Posted 6/2/2016 7:20 PM (GMT -5)
For those who have their rectums removed, have you experienced phantom rectum? For how long? Did it affect your quality of life?
Christine1946
Veteran Member
Joined : Aug 2008
Posts : 5988
Posted 6/3/2016 8:33 AM (GMT -5)
I did for a bit. Never affected my quality of life because I knew I didn't have to go out my butt anymore.
Sunny13
Veteran Member
Joined : Feb 2014
Posts : 1120
Posted 6/3/2016 12:21 PM (GMT -5)
I sometimes feel like I need to pass gas from my "back end" but then I remember I can't, and even though it feels weird, I try to just ignore it.
I'm 1 1/2 years post surgery but still feel that occasionally. I would never say that it affects my quality of life.
cupcakespinkgal
Veteran Member
Joined : Jun 2010
Posts : 1566
Posted 6/3/2016 4:14 PM (GMT -5)
I am 13 weeks out and have felt it a couple times. It's very mild just feels like I might need to fart and then the feeling passes. It doesn't cause any pain or issues so definitely doesn't affect my quality of life at all.
GC4249
Regular Member
Joined : Apr 2016
Posts : 127
Posted 6/3/2016 6:28 PM (GMT -5)
Thanks for the replies.
Cupcake what is life like 3 months after surgery? Able to work, get out and about
without much pain?
cupcakespinkgal
Veteran Member
Joined : Jun 2010
Posts : 1566
Posted 6/3/2016 7:19 PM (GMT -5)
Life is good right now. I feel completely healed at this point which surprised me because I was very sick at the time of my surgery and my surgeon thought my healing might be slower.
I have been back to work full time for 2 weeks. Exercising and going to the gym for 6 weeks. My energy is great even after working all day. I have already traveled for short weekend trips twice with no issues. No pain and I am eating a normal diet.
I would say all my abdominal pain was gone by 6 weeks and butt pain really was a non issue around 10 weeks.
I was most worried about
the butt healing but I feel very grateful for the skill of my surgeon and that I had no complications. I would ask your surgeon how he closes the bottom. Some sew and some staple. It seems from patient feedback and my research that sewing/sutures produces better results, quicker healing and less pain.
GC4249
Regular Member
Joined : Apr 2016
Posts : 127
Posted 6/3/2016 11:22 PM (GMT -5)
I hope you continue on the upward climb. I know how IBD strips the life from a person, so it's always nice to see someone get their life back.
Thanks for the surgery tip. If you have any other tips, they would be appreciated.
I guess you adapted to a bag fairly quickly because you had a temporary one with previous surgery? Have leaks been an issue?
cupcakespinkgal
Veteran Member
Joined : Jun 2010
Posts : 1566
Posted 6/4/2016 9:05 AM (GMT -5)
Yes, I did adapt quickly to the bag and having the loop ileostomy in the fall did help make this time easier.
I have been very lucky and not had any leaks with either ostomy. I attribute that to a few things. My surgeon making a perfect stoma (twice), an awesome ostomy nurse, and my anatomy.
My stoma is just over an inch long and sticks out. A lot of people with leaking issues have a short or flush stoma. When my ostomy nurse saw my stoma she said "oh you have a good one!". That is something else i would ask your surgeon is how long he makes his stomas. The ideal stoma is 1 - 1 1/4 inches long. What I was told when researching was the outcome of a good stoma is 50% the surgeons skill and 50% the patients anatomy.
My ostomy nurse in the hospital ordered my samples for me before I left the hospital so I had samples at my door literally the day I got home. She requested samples of bags she thought would work best for me. That really helped because there is so much to choose from and at that point I had no idea what appliances would work best for my body and stoma.
I feel very lucky to have had such a good outcome and while some of that is chance I do attribute most of this to my surgeon and nurses. I felt very prepared and supported before and after my surgery and received excellent care.
GC4249
Regular Member
Joined : Apr 2016
Posts : 127
Posted 6/4/2016 9:19 AM (GMT -5)
Thanks again.
Do you mean an inch in diameter or an inch protruding from the abdomen?
cupcakespinkgal
Veteran Member
Joined : Jun 2010
Posts : 1566
Posted 6/4/2016 10:12 AM (GMT -5)
You are welcome. I asked a lot of questions and watched a lot of you tube videos just for my temporary ostomy!!
I meant an inch protruding from the skin. I don't think the diameter matters much.
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