Posted 4/29/2013 12:19 PM (GMT -5)
Well, I just posted a long despairing rant about how awful my experience has been with the appliances, only to get a phone call this very day from the scheduling nurse at my surgeon's office, informing me that I will likely go in for my next surgery in June, a full 6 months before I thought I would.
I am overjoyed!! Woop woop!! (I hate the stoma, in case you haven't picked up on that). Actually I should say I don't hate the stoma, but the technology has failed me again and again, and I'm fed up with the whole thing.
So my post is really about language. I should have written down what the nurse said, but basically the conversation went like this:
Nurse: I'd like to schedule you for the [insert incomprehensible medical jargon here] surgery in May.
kc: !!!!! Okay... this is the j-pouch, right?
Nurse: well, I have you down for an ileo-something something blah blah
kc: I know it as the j-pouch. Is that the same thing?
Nurse: uh, well it's a [repeat jargon] and stoma relocation.
kc: Um okay, whatever.
There was more to it than that, but that's about the gist of it.
Many of you have more experience and knowledge about this than I do. My understanding is that, I've had the colectomy and I now have the ileostomy. Next step is the j-pouch (ileo-pouch? some other funky pouch?) construction, and I'll still have the stoma for a while (but it sounds like, in a different spot). Then, at some point, the stoma will be removed and things will be reconnected (take-down?)
Do I have this right?