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Parkinson's Disease
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Posted 4/3/2013 12:54 PM (GMT -5)
Well its been awhile since I posted,My husband and I went to see the Dr in the Parkinson center which is 8 hours away.My husband was on Mirapex and did nothing for him and is now on is on Levodopa Carbidopa 100/25,2 pills 4 times a day.He was on the last meds for about a year.And now they are not working for him as well.The Doctor said to take him off the pill and that he had nothing more to give him,so we are on our own. I found this in my mind not to be right He has head tremor at least once a day ,extra saliva, his balance is real bad he is falling all the time.He also has some dementia and I find him freezing when he is trying to throw the ball for the dog .He also has prostate cancer and is on hormone treatment for this,The HT seems to be doing its job for now.Any thoughts. I'm pretty much open to anything at this point.Thinking of going to a Natural Practitioner .We live in BC Canada.
Thanks for reading.
Deidre
Posted 4/3/2013 10:20 PM (GMT -5)

Waterloo,

Does your husband have a PD diagnosis? Is it just 'PD' or one of the more quickly advancing forms? Was he maxed out on Mirapex or could the dosage be increased? The Levadopa/Carbidopa you refer to is also known as Sinemet. I am not familiar with the dosages, but was he maxed out on it? I am NOT a medical expert-just a person with Parkinson's. I don't profess to understand any interactions regarding cancer treatments.

 

From what you wrote, it appears your husband's PD symptoms are: head tremor at least once a day, extra saliava and balance issues. I don't totally understand the tremor at least once a day. Is that between medication times ... or what triggers them? With the exception of balance issues and freezing, his PD symptoms seem like they would be manageable. Balance issues are another thing - there  really aren't any medications or other treatments (DBS) that deal with that one.  Freezing - there are some techniques (a walker/cane with a red beam/light that you 'step' across) that can help.

 

I'm with you ... I don't understand discontinuing the medications. At the least one would think they would continue as they are. Do you have an option of seeing a different neurologist or preferably a movement disorder specialist?  Canada has a socialized medical system, right? And you don't have the option of selecting your doc, right?

 

lizzy4451

Posted 4/5/2013 5:14 AM (GMT -5)
waterloo

I'll tell you what works for me most of the time in reducing,and eliminating my symptoms.

mirapex .75+stalevo 5x . I also take sinemet cr25 at bed time,and first thing am.

When taking sinemet or stalevo you should not do so when eating protein.The chemistry eludes me but protein intefers with the uptake of sinemet at the brain.These meds don't always work for me with some days worse then others .This may be stress related or diet or who knows what.Most important is not to get discouraged,and give your meds time to work.I wish you,and your husband the best.Ed
Posted 4/6/2013 1:55 PM (GMT -5)
Lizzy
Yes he has been diagnosis with it being a more advanced form of PD.The info on his cancer was just that.Maybe a little venting.The doctor he has seen is pretty much the top PD Dr in BC.He had seen two other neurologist before seeing the Dr at the Pacific Parkinson clinic in UBC.
Yekkimo (ED)
Thanks for the info.And for taking the time to respond ,its always nice to know your not alone in this battle.
Thanks
Deidre
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