Hi. I'm a 55 year old man in Dallas in good physical shape who underwent a radical robotic prostatectomy on 3/16/09. My tumor was located left of center on the prostate, was invisible, and was caught early as I have had a history of elevated PSAs for the last three years, and it has been carefully monitored. According to my doctor, the tumor was little but aggressive. My Gleason was 3+4. All pathology after the surgery showed clear margins, and my first PSA was <.01 on June 22. I just had my second PSA test on 7/22, and am awaiting the results of it.
Post op, I was home the morning of the second day after surgery due to a small blood clot in my urethra that had to dissolve first. I felt mostly fine, but was tired feeling and needed a long nap in the afternoons of most days. I was lucky to have a good friend who came in from NYC on vacation to take care of all the cooking, cleaning, and chores that I had no business attempting. The catheter came out on 3/23/09, and by mid-May I was no longer wearing pads. Except for an occasional small "squirt" when I am at the gym (I go five days a week and work out hard), or forgetting to be sure I have emptied my bladder completely, I have virtually no continence problems. I started back to the gym on a limited basis the week of the catheter removal, and am back to full form and more now in late July. I'm even gaining in size. As for the five incisions, it appears that none of them is going to leave a noticeable scar, a fact that I consider a nice result, but not vital to self image.
However, with all that success, I'm in the same boat as so many men. In April, I started on Viagra (50mg) for three weeks, followed by 100 mg since then. Three doses a week, and I'm getting the same story as many of you. I'll get 2/3 to 3/4 erect on the Viagra with an erection ring in place. I can come to orgasm, but given how quickly I had recovered in the other ways, I guess I expected to come back in the erection department sooner.
During my post-op on 7/22, I shared all this with the doctor. His reply was that despite how I perceived it, it really and truly was still very early in the recovery process. I know he's right, but patience is hard to develop here. I'm too alpha for my own good, I guess. He said to get another appointment if I wanted to start injections immediately, so I returned the next day for the trial injection. He used tri-mix injected with an insulin needle (or so it appeared) on the left side of my penis. Within ten minutes I was 5/6 erect, but I was in pain all along the shaft of my penis. When he returned to the examining room, he explained that most likely that was the nerve damage residue coupled with the fact that my penis had not been erect in months, so a lot more blood was flowing through than it had been used to since early March when I last had sex. He has put me on a 10 ml. bottle of tri-mix with six refills and says not to use the Viagra with it due to the dangers of priapism. I see all that as logical. There is a residual bruise on the side of my penis from the trial injection that is painless.
Now that all my background info is there, I have a few questions for those of you who have been in these same warrior's sandals:
Do any of you have penile pain when you lightly squeeze your flaccid penis? I do, and it runs the entire length of the shaft from the very base and lower. I assume that's the nerve damage the urologist talked about, right?
In manipulation of my semi-erect penis, the same pain is slightly more intense but not awful. Anybody having that same issue?
Any advice or thoughts would be appreciated. While I'm doing great and feeling normal, I know I'm not totally healed yet inside. I'll be your cheerleader if some of you will be mine.