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Going to the Incontinence Specialist today at 1:00. Need advice.

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Posted 5/12/2010 10:46 AM (GMT -5)
Jeff,

I've vented about this previously, almost the same situation as yours. My Uro was 100% uninterested in my incontinence, told me at 5 months I would never improve, had no suggestions about any further tests or treatment, and said I could see his partner who does slings but he didn't even know which one was used. I would take pa69's advice and hang in for some months longer to see what happens. I'm now at 6+ months, still leaking 2-3 pads, but as miserable as it is, my thinking is to hold out for months more if necessary.

Your leaking bro,

Steve

P.S. The reason for the hold-out is that I know how slowly nerves heal, up to a year+, and I think it's possible my problem or part of it is the Pudendal nerve enervation of my sphincter was damaged and needs more time.
Posted 5/12/2010 12:58 PM (GMT -5)

Worried Guy said...


Hey Goodlife.
I have to tell you, it is hard for me to resist taking my own pictures. I already used it to check out my sinus cavities before I had nasal polyps removed. I was sitting on the floor in the family room watching the display on the TV as I pushed it past the nose hairs and straight back into my nose. I swear I could see second grade in there. The nose was easy since it is such a large cavity. Theoretically, my wiener schnitzel should be easy too since it's not much longer than a gherkin but the opening size and sensitivity are a little different. Barb won't let me try it. (Whew)
Next time you guys are here, I can give you a demo. Maybe even a free colonoscopy. With the 90 degree tip I can tell you if you're doing your kegels correctly. Everyone gets their own VHS recording to take home and dazzle their wives. It's GFMPH.

Kegelling as I write this,
Jeff

If you're as much fun in person as your posts are I'd love to stop by but I have to say I'd pass on the intimate looks. smhair

Posted 5/12/2010 5:48 PM (GMT -5)
Jack,

He's more fun in person. He has like a man's candy store. Guns, tons of scientific gear, beautful part of New York, even a geocache a stones' throw from his house.

But to top it all off, he has a pea pressure tester range in his back yard.

I would heartily recommend a visit to his place. Next September would be a great time !
Posted 5/12/2010 5:48 PM (GMT -5)
Jack,

He's more fun in person. He has like a man's candy store. Guns, tons of scientific gear, beautful part of New York, even a geocache a stones' throw from his house.

But to top it all off, he has a pea pressure tester range in his back yard.

I would heartily recommend a visit to his place. Next September would be a great time !
Posted 5/12/2010 6:50 PM (GMT -5)
Aw shucks. I'm blushing.
In all modesty, I can't disagree. I do have unusual toys here. You can pretty much do or make anything. (If you recall at last year's event I had enough material so everyone could make their own Cunningham incontinence clamps as their camp take-home project.)
Now that I have a contract with a branch of the military it will only get crazier.
Best of all, if I want to make a noise big enough to rock the house off its foundation, (like detonating David's catheter bag) all I have to do is tell one neighbor so she can put her dog outside so he doesn't pee on the floor. Everyone is so understanding.
True story... While on vacation, my house was struck by lightning. When I returned home and noticed the damage I ask my neighbor why he didn't call me. He said. "We all thought you were home and just experimenting."

Just for the record, Goodlife and Paul1959 are no slouches in the fun department either.
The "Sense of humor" and PCa genes must be attached to the same chromosome.
How else can you explain the way we all joke about this subject?

Mark your calendar. If my linear forecast is right I will be dry the last week of Sept. That will be something for me to celebrate.

Jeff
Posted 5/13/2010 9:24 AM (GMT -5)
Jeff,

When you say your Uro is going to do cystoscopy is he also going to do FUDS/Urodynamics testing. This is when they pump liquid into our bladder and test your ability to hold and urinate. I went through all of that and three different doctors reviewed the results and told me I was a good candidate for sling surgery. This included my local Uro in Michigan, Dr. Victor Nitti at NYU and Dr. Angermeier at Cleveland Clinic (the one John mentioned). Both Nitti and Angermeier are nationally known. My local Uro did the cysto/FUDs test and I sent the information to the other two. I ended up choosing Nitti because he had tons of experience with both Virtue and AdVance and my local Uro had most experience with InVance (bone anchored sling). Nitti also successfully did a Virtue sling for Rapids who is on this forum prior to mine. Except, mine has not worked at all and there seems to be no explanation as to why. I am getting the AUS implanted the first of July.

If you are not getting the FUDs test I would think you should. Perhaps others know about this test also?

Posted 5/13/2010 10:23 AM (GMT -5)
I have a friend that has everything under the sun.   For a special event I drove myself crazy, (more crazy) trying to find something for him that he didn’t have.   I ended up getting him a “Deluxe Duck Plucker” he does not even hunt. But he has the electric deluxe duck plucker, displayed in an obvious place in his shop.   But now….......I’ll have to tell him that I know a guy that has a          “ pee pressure tester range”  in his back yard!!! You just cant make stuff like this up! LOL
Posted 5/13/2010 11:56 AM (GMT -5)
Hey Tallguy and Hero
I can reply to both of your comments with one explanation.

I do my own version of urodynamics testing every few days. I drink an extra 12 oz mug of green tea and then sit down and either do work or read HW for a while. After about an hour, I get that "I have to pee feeling" but resist the urge for an extra 1/2 hour if I can stand it. Then I run outside, stand at the edge of the patio, whip my underpants to the side and let fly onto the marked area in the so aptly-named pea gravel my wife lovingly placed in the garden. By using basic hydraulics theory I then calculate the pressure based upon penis height above ground and the distance the pee flies. I have an excel spreadsheet set up with my height already entered so all I need to do is enter the distance and it tells me the exit pressure. With my substantial flow I assume the pressure drop is minimal. I have watched my pressure increase from 2" H20 (0.5 kPa) to 10" H2O (2.5 kPa)during the first 4 months post RP. It has leveled off at 10-11 " about the same as when I was 15 years old if I remember correctly.
I measure bladder capacity just like everyone else: by peeing into an empty 8 oz Kraft Parmesan Cheese container and weighing it.
I'm sure Dr. Mayer might have gotten a laugh out of my data, but he certainly couldn't argue with it. (And he certainly wasn't going to charge me for his testing. It would undoubtedly show the same results and he knows I would post the results here. Soon everyone on this site would be buying pea gravel at Lowe's and that would be the end of the Urodynamics testing world as they know it. The whole medical system would fall apart.)

He did say 200ml/day is near the limit where a sling will help.
Surprisingly over the past two days, my flow has dropped to the 175 ml / day range. That brings me to within striking distance of 1 very, very, very full pad per day.

Is my bladder sphincter scared?

Jeff

Post Edited (Worried Guy) : 8/26/2010 2:41:56 AM (GMT-6)

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