Quincy's Journey

WOW, I just got a fine fraternal rush from you guys. I had no idea that we 9s are so plentiful. That's a pleasant surprise for sure. My main method of keeping a low PSA is the love that my wife and I share. There was a recent article in Scientific American that was co-authored by a neurologist and a psychiatrist that emphasized the importance of spousal love in the fight against PC in particular. It was a mega study. of 8/9s and their self reports of the "strength" of their love for their spouse irregardless of gender. I also have an inseparable bond with the earth spirits which is renewed every Spring after the last frost . . . I am a wicked crazy gardener. The exercise couldn't be better and the fresh veggies don't hurt either. I'm glad to have winkled out you other 9s, just knowing that you're out there gives me strength . . . Q17
________________________________________________________Dx'ed age 52 PSA 511 G 5+4=9 age 58 PSA 2.5 mets in ribs and pelvis small HT therapy only, Lupron and Casodex

Thanks for the heads up gunfighter, I will continue the fine tradition because my Warrior is not only taking care of me, she is fully disabled herself. We manage to get by alright on SSDI and money from selling my Picture Framing business. What with being on Fentora ($12,000 a month) We qualify for catastrophic Medicare so no premiums,co-pays, or donut holes. Good to hear from you and I do plan on being around for quite a spell.
________________________________________________________Dx'ed age 52,PSA 511 Gleason 5+4=9 Biopsy 6rt 6 lft all cancerous
Currently PSA 2.5 and HT only, Lupron and Casodex

Welcome Quincy ...sounds like youve got your own small miracle going. As a fellow G9 I can only hope to achieve the same success you have. Hope your small miracle keeps going...good luck, chris

I'm a big Jack Klugman fan myself, that's the main reason I use one of my many middle names for my tag. I can't tell you guys and warriors how much all of you have done for my outlook. Especially all the 9's crawling out of the woodwork to. show me that I'm definitely not an anomaly.
I don't know about the rest of you but since I've been able to stabilize on Lupron for six years its gotten to the point that the musco-skeletal pain is so severe that I'm worried that its causing me c-apnea. That's like regular snoring apnea but is caused by taking CNS depressants like Oxycodone IR and Fentora which my onc has Rx'ed me for years to control this severe pain. I am a wicked gardener and do woodwork in the winter, if I don't keep myself busy then another Lupron SE, chronic depression sets in. Do any of you have this type of over the top pain from your HT? Thx again for all the support . . .

quincy17 said...
Casper, is the Eligard less harsh as far as the side effects go? This Lupron has me in severe pain and you PSaLevel is so low. I've never had any radiation as the small mets seemed to have gone away of their own accord.
Was your 12 core biopsy done in one go? Mine was and it is the pain level I use as "The most painful experience" #10on the self reported pain scale. How's your mental state? I am convinced that my super positive attitude is what keeps me going strong. I'll have to admit that the A/Ds, Cymbalta and Abilify help to keep me on the sunny side of life. those and my incredibly loving warrior wife that not only deals with me but her own full disabilities as well. I think that miracles are either earned or self made . . . you seem to be making a few of them yourself. Stay in touch!

 

Quincy...I dont think the side effects are any different...theyre both Luprolide drugs...only difference is the Eligard is every 6 months and its in the stomach.  SEs seem to be the same.

 

My biopsy was done at one time and quite painless...first one made me flinch a little only because I was anticipating it....the rest were easy. My mental state....I can only say Im more emotional at times...my memory is terrible now and I have lack of concentration at times. I have gained weight but am now on aa strict diet and started walking and working out 5 days a week...lost 8 pounds in 10 days.  I actually feel fine at this time....although my PSA went up from .16 to a .96....Dr. told me to wait because it could have been a bounce....so I check again next month.  I am a little anemic from my last lab work but not bad....Doc told me to eat lots of spinach so Im feeling like Popeye right now....about a can a day.

Casper, Thx for all that info. Like you said, you and I are pretty similar in treatments so I know that your post is like a gold standard for me. And, like I just wrote tc, the HT has lowered my pain threshold so I tend to whine a lot. This coming from a guy that once pounded himself right between the eyes with a 24 oz framing hammer . . . all I did was stick on a bandaid to keep the blood out of my eyes and went back to work. Man, I sure miss those days of youthful immortality . . . Q

Quincy -

I guess I'm weighing in a bit late here to welcome you to the list, but I wanted to do so to confirm what you have already been seeing, that this really is a great list both for information and for support.

I wanted to make this point for the reason that I myself am still something of a "new guy," having been a member here only since this past October. But I had done like you did, lurking around a number of PCa discussion forums on the net, and after a while it became quite obvious to me that this one here is really the best one. Great people, great advice advice, great support.

Welcome!

Special Lady, going by the #s and by what you say, your Dad looks like a real goer, wink wink, nudge nudge. Sorry, a bit of old Monty Python never hurts. Its folks like you and 81 GYGUY that make this place feel homey. Oh yeah, Yes Todd, I do plan on sticking around if just to read your posts. These compliments are meant to be universal across the PCa board . . . Q17

That's supposed to be my my excuse rad dad, lol. Yeah, this board really picks me up and we will beat this crap!
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1st Dx at 52 PSA 511 Gleason 9
current PSA 2.5