Back on duty, for now

SB, I don't know why you keep laboring the same point. No one is disputing your experience or knowledge in the CP world. I am dealing with an entirely different set of circumstances than you, and being an on-going cancer patient, and being a multiple time cancer patient that underwent a lot of bad treatments further complicates my situation.

This CRPS specialist, runs a pain and rehab clinic, and that's all he does. He has a great reputation, and his patients love him. His practice was bought up by the same hospital systems here that I love and trust, which is a huge plus in his favor.

If by the time I see my doctor again, if arrangements haven't been made, I will see if I can make my own arrangements, period. I don't intend to let this drag on and on.

Already e-mailed my doctor's nurse, so she can ask him point blank this Wednesday when he is in the area, if not, I will be seeing him the following Wednesday and will take care of it myself.

I take advice from many, many sources and people, then I think through things, and make lists to go over with my regular doctor visits.

I am open to anything that makes sound medical sense at this point, because I can't continue on fighting all the fights I am fighting in my body. Like most of us CP folks would offer, I would love for any skeptics or doubters to live a single day in our bodies, it would make a believer out of all of them, lol. If only it were that easy.

david

PURGATORY.
We are here ,so sound off , you are a special ,and have helped many others . I went through hellish pain after my surgery ,in the groin , it went on for weeks until I checked myself in ER ,they thought it was a pinched nerve gave me shots in the back ,no help , called a Dr in from outside the hospital and found a inguinal hernia , it got so bad I was taking diluadin and it barely touched it ,so I understand what your going through , i finally had it repaired after like 28 days of high level pain , couldn't even walk. I hope they get to the bottom of your ailment , you may need to get mean as I did ,almost got thrown out of the hospital ,but when the Dr I called in verified the hernia they had egg on their faces and treatment became much better.I will be praying for you and in my thoughts ,you might try touch therapy and meditation it helped me some when the pills were wearing off .
god bless were all pulling for you
gams

squirm, I can't honestly remember, is your father still alive? Sorry to read of his ordeal after HT ceased to work for him. HT, according to my doctor, can be in itself, a very traumatic event to the body, some men tolerate it more than others, but it can be very damaging in itself. When I was having the severe pain days I mentioned above recently, I was close to totally collapsing to the floor myself, it's a scare situation, my right side has become so weakened, despite being in oncology rehab for 2 years now, that I am afraid I will fall and break my hip or worse. I always walk with a cane outdoors, because I never know when my hip will give out. On the days that my left hip is in pain and weak, I really feel vulnerable.

gams, thank you for your kind words. I only wish I was dealing with a hernia (not downplaying what you went through), but at least that could be diagnosed and fixed. hope you are ok from that. I doubt I will be off of strong medications anytime soon, I am on them long term, and from the sounds of things, that will be a way of life for me it's been two full years nearly, and the meds have had to be increased every few months, since the area and scope of my pained areas still are increasing. there has been zero improvements. I feel like every 3 months or so, I go down another notch, and loose even more abilities and mobility.

ted,thanks also. wish I could get good and mad, lol. it's against my nature to ever show real anger and such, as I am a complete pacifist by nature, and try to take all of what I go through in stride. I am not afraid to make my case to my doctors, I do that on a regular basis. my oncologist mentioned even recently, that even he's having a hard time with my case. He says I have a much higher level of pain going on then with any of his other cancer patients, especially since there are no evidence of mets at this time. He's doing the best he can, with what he has to work with, and he's been very open with me at all times, and I feel he's doing a lot for me, most importantly, he believes in what I am going through. He knows I am not some kind of closet drug seeker. I hate being on meds, no matter what they are, and I assure you that I get no pleasure or elation from being on any of them. They either knock out some of the pain or they don't, its that simple with me.

david

Sorry to hear that, Squirm, I really couldn't remember. Mine died 20 years ago, of a rare blood type cancer, mostly caused by years of heavy chain smoking. Since I still can't speak well of mine, I will simply not say anything. Glad you had a great relationship with yours, that is how it should be.

Thanks for sharing that personal part of your life with me.

david

all options are on the table, nothing ruled out, just seems way more than regular radiation damage as was first thought, because nearly 4 years later, it is spreading further and further through my body, and picking up in intensity at times. factor in the bladder spasms, which are above and beyond the "normal" pain, and I have almost too much to deal with at times.

david

we are in the same boat, quincy, so I think we understand each one's struggles quite well. I will watch your back, if you will watch mine.

david

See I said a week. welcome back, again

thanks, tud.

ziggy - actually planned it to be a full month, after I had seen my oncologist again, and had hope to have seen this CRPS specialist in between. None of that happened, so it seemed pointless. plus if I am in the middle of a severe level pain day, as was the day I checked out, I get real edgy, sometimes on the point of panic, and at that moment in time, the whole world looks black to me. I am human too.

quincy, no problem, my friend. I am always around, because I get so little sleep, usually up 20 hours a day or even more

Good advice here, especially from Mel. Hope you start to feel better soon, David.

Welcome back david.....hope you find some pain relief soon.....as some have already stated.....that would be a top priority to take care of that pain issue....not something you should have to wait for. Hope the best for you...chris

David,
I spent some time over at CP...made me realize there are many with chronic pain...I just hope that one day there is an answer to end all that needless suffering.

David,
Check you email from me.

Thank you Billy, my good friend.

If I allowed myself to be that way, with my pain issues, I could be the biggest SOB on the planet and take it out on everyone else. But I am not that way, so I work hard at controlling things and my emotions on the really bad days. It's hard sometimes on the days my wife has long work hours and when I am alone much, that's when some of the pain turns to panic, and there's no one around to talk it through.

I have been through a lot, and its true the adage, what doesn't kill you makes you stronger. In my case, the "it" will probably kill me, but I will go down my way, on my terms, and will annoy Death all the way till the end.

david