Update with bad news on Mets related PCa

I have been having nasty back pains and had previous radiations to spine over the last 2 yrs., recent pain was constant and not going away. Went in to emergency for pain relief mainly, given hydoncon (like percoset) and it actually worked on the pain (finally), discharged went home. Next day leg numbness setting and toes tingling (redflag), back to emergency and an MRI found spinal canal fluid pressing on cord like an hour glass so had back surgery, Kyhoplasty procedure also used and some cancer cells 'sucked away by the cord'. I did have some feeling and toes movement post surgery for a few days and had some promise for recovery. Well shft and a day or so ago had back spasms and pains, looks like maybe hemmorage or other causes, maybe even a clot.......the new story is I am now an para-paylegic situation (horrible outcome). So, for others pay attention to all pains and mets and especially numbness or any losses of normalcy.

Keeping it short right now, thanks for your past support. I am on Xtandi now and have a port for future chemo, did do one low dose chemo already and may continue with weekly low dose soon or soon enough. Waiting to see what psa level is, a while back it was 14, then 14m 30 or so.....so mets can get back a low psa's especially in higher risk/gleason patients.

Sorry to hear of your excruciating pain and your bony mets diagnosis.

I did hear that Xofigo is back in production after a factory shut down for a few months due to quality control issues.

Hope you get some relief, zufus.

LupronJim

Bob, that sucks man. I hope things get better for you and hope that the paralysis is temporary. My best to you old friend. Todd

I'm so sorry you are facing this. Wish there was something we could do or say to help out. It's just miserable, and I hate this whole thing.

Dang. I just read about one guy that lost his battle, followed by a post delineating your struggles.

I hope the chemo kicks in and knocks the PC for another loops -- and hoping your symptoms resolve quickly.

Mel

Zufus
I am saddened by your update. But as I look at your posts I know you are a warrior. Keep up the fight. I am rooting for you.
Take care,

Bob, I hope things improve. You are in my prayers.

Zufus, Im praying for your, man. You are such a good man!

Zufus, that really sux. That must be really difficult to cope with, and I'm really sorry to hear you're having these issues.

Can the clot or pressure point or whatever possibly dissipate to relieve the nerve pressure? Maybe it will improve with some time?

You remain an inspiration, especially since you have the distinction of being the absolute senior member of the Gleason 9 Crew!

Jerry

My heart is heavy as I read this....
Keeping you in thoughts and prayers, Bob!

zufus, I stumbled on here in 2007 desperate for some hope, not understanding much of anything about what my husband would be facing. You arrived here the following year. I believe we're among the old timers on this site. You both have been through so much.

I'm deeply saddened to read your post and hold the hope that you'll be on your feet again before long, zufus.
I read carefully what you said about paying attention to changes, thank you for reminding us not to be complacent. Never be complacent.

Your in my thoughts and you must know that everyone here is fighting with you.
Susan

Zufus,

Just know we are all in your corner. Here's hoping for some healing so you can come back in a few weeks and post about some out of the box therapy we should all consider.

Get some rest.

Jerry L.

So sorry, Zufus. The number of replies to your posting demonstrates how well respected you are from your contributions in the past. I am sure you will find a way to keep on going forward!

Houseboy