Max Vision said...

Boon1 said...
But I suspect there are quite a few undiagnosed G10s around, given the truncated biopsy process through which so many go. I started out diagnosed as a G7. It was only when I had an 85-core mapping biopsy that the tiny G10 tumors were found.

Boone, I was in a situation similar to yours. I was on AS as a G(3+4), monitoring with MRI guided biopsies. I made the decision to go with SBRT as a monotherapy and actually scheduled an appointment for treatment. Two weeks before the treatment, as a last "sanity check", I went to UCLA and asked to be examined as a new patient with no history of PC. Another MRI guided Bx confirmed the original G7 (left apex), but a grid biopsy performed at the same time found a core of G(4+5) invisible on the MRI and in a completely different area of the prostate. Scary thing is that my "medical team" was completely ready to treat me as a G7.

Max Vision, thanks very much for sharing your experience. You were so smart.

You experience parallels mine somewhat in that I was diagnosed as a G7 (4+3) after a 3T mpMRI and follow-up MRI-guided 3-core biopsy from the "index lesion" the MRI found. I got a second reading from Johns Hopkins. When JH pathology scored the cores a G9's, I did not stop there. I went for a tie-breaker and the transperineal 5mm mapping biopsy I mentioned in a previous post. You can't get properly treated if you're not properly diagnosed. Boon

Hi Hope,

The days and weeks after diagnosis is probably the worst part of this journey. My husband was is also a member of the G9 club, with a twist...his is a rare form called ductal prostate cancer. I'm began our journey 4 years ago and he is still cancer free!! Not been an easy trip, and he has good days and bad days. I suggest that once you have the scan results, find the best doctor you can and do some research yourself. BUT DO NOT get overwhelmed by all the info out there or bogged down on the doom and gloom part of it. According to what I read in the beginning, most doctors would not operated on Danny because of his age and the extent of cancer; especially, since it is a rare form with small percentage of survival. Thankfully, we were able to travel to MD Anderson in Houston. We were about as low as we could be...and SCARED!!! But we were able to get a great oncologist who wouldn't let us stay low. Didn't sugar coat anything, but made us feel like we have a fighting chance.
This has been a great forum for me to ask questions, ask for prayers, and vent frustrations with people who can relate to the anxieties that go along when battling cancer. No two cancer battles are the same, but the fear we all had/have is the same. I have a good core support team of friends and family that I can call on when things get hard on me, but they cannot understand because they haven't taken this journey. But with the forum, everybody here does understand and we help each other the best we can. Reading other people's post can help, even if you don't respond. Sometimes knowing that other are feeling the exact same way as you is reassuring at time.
Good luck and keep us posted. We're here if you need us.

Thanks everyone. My Doctor sent my CT scan results.


"Good news, the CT report does not show any convincing metastatic disease. We will see what the bone scan shows.

This is the summary:


1. No compelling evidence for metastatic disease in the abdomen/pelvis. No lymphadenopathy.

There is a small sclerotic focus in the right iliac bone, suspect benign bone island. Bone scan may be of value in this setting."


I'm still pretty worried because I've read the CT scan can also miss things. I'm getting anxious and would like to move to the treatment phase. The waiting and not knowing is very frustrating. I know many of you have been here before and I do agree that this is the worst time in my life. Many of my friends, family and co-workers are already treating me as if I only have a month left on earth. The hardest part was telling my son that I have PC and giving him reassureance that things will be ok. I'm trying to remain positive by reading your posts and comments but I can feel a few chinks starting to form in my armor.

I'm Currently in the process of changing medical providers so I can see specialists. I feel Kaiser did me a disservice by waiting so long to give me a biopsy as was stated by Todd1963. I can't change the past so I'm not going to waste emotions on it. I just know my best interests are not at Kaiser.

Bone scane tomorrow 1/24/17.