Random thoughts

Hey Prato
You wrote: " I watched a 1 hour + full video of A RALP with only minor edits, on YouTube, last night. Don't ask me why, I have no clue, other than I'm crazy. I'm glad I didn't watch it before I was treated."

We already know you are crazy. You and me both, brother!
I watched a video of sling surgery - BEFORE I had it done! I saw them take the guy's legs, wrap them back over his head tie them in a pretzel knot and then tilt the table almost updise down so Mr Miracle didn't have to bend over an inch while slicing the patient open from butt to scrotum via the crotch. No wonder the patient is stiff and sore the next day! He got a free Yoga treatment!

Jeff

Jeff, sounds awesome, lol

WeightLoss,, thanks, the fibrous tissue thing confused me.

<<<I've never watched a video of the surgery>>>

Me either! My wife did and said it was "fascinating".

Not for me, before or after, and includes a total knee replacement (TKR) for sure!

So,I had my meeting with my surgeon/urologist, today. (Post op PSA's in my signature).

Takeaways...
He still calls recurrence at .2! He is aware of the studies that point to .03, which I printed out and brought with me. But his comment was there is no evidence that starting earlier, affects final the outcome (meaning survival).

The fact that my PSA is up doesn't concern him right now, but based on that, AND based on the fact that my final negative margin was preceded by a positive intra-operative margin, is why he wants to have me back in three months.

Even if I had a slight rise at the next visit , he wok;d not call it a clear trend

He thinks it was a smart thing that I went to see Zelefsky (he calls him "Mikey" lol.), on my own, and that the baseline MRI was done.

He still thinks there is a good chance THT I don't recur, ever.

His best advice to me for now is to eat healthy, watch weight, exercise, and calm my brain (I'm actually reading a book by that title right now)

He said he is a big believer that inflammation in the body can produce increase in PSA. (I think he meant can produce recurrence.) and he is also a big believer THT anxiety will cause inflammation.

And my big picture question.... if not from cancer recurrence, where is this minute (.033) amount of PSA coming from? His answer was it could be cancer cells, or could be produced by the cowpers gland or male breasts.

Lastly, he told me about a 2 day symposium at Mt Sinai (his hospital and that he put together), that takes place next week. Said speakers will be The Who's who of prostate cancer from all over the world. Suggested I register and gave me a brochure.

It is targeted to medical professionals. But he clearly saw that I was more knowledgeable than his average Joe patient, and that I was hungry for knowledge and answers.
I'm tempted, but I think I'm gonna pass. I really and truly need a mental health break from cancer. Too much of it going on between me and others in my family (which means I might disappear for a while, although not sure I'm capable of it)

Anyway that's what I got. It was a fruitful meeting. But I'm thinking that AS LONG AS MY PSA REMAINS STABLE, assuming it does, I might just get the tests done and not keep going back for visits unless I have more specific questions.

Post Edited (Pratoman) : 9/1/2017 1:52:02 PM (GMT-6)

Pratoman said...
Oh, just an aside...
Had a new PA today. Very hot. Short skirt, heels 👠. Comes in before the doc. Sits on the examining table, and does "the pose" you know... crossed legs. No effort to pull down skirt. And starts asking me about my erections.

The one cool thing about being on Lupron is that my first reaction would have been "Wow, where did you get those fabulous shoes?"

Congrats at least on your PSA being "stable". Maybe .033 is the new norm? Well, there is always hope.
And please please please enjoy your break away from prostate cancer for the long weekend at least.

Skypilot56 said...
Prato I think your in desperate need of the new prostate! Tooooo much imagination!! 😝😝😝

😂😂😂 ok just to be clear, I'm not saying it was an intentional pose. But it sure looked "interesting" . I realize I'm an old man and don't warrant that kind of attention.

Prato, Prato, Prato....where do I start?

Eating healthy, watch your weight, more exercise, and a calming outlook are all excellent. I too, believe anxiety (and OCD) will cause inflammation.

While I think a stable .033 is a good reading, who knows exactly where it's coming from. Just how large are your breasts anyway, and exactly what is cowpers??

The only way I'd suggest you attend that 2 day symposium at Mt. Sinai is if the sexy PA goes with you, speaking of which, do you have some photos? We could all use a little ED boost.

Please do take a physical and mental health break from PCa, and these forums, but stay on your diet and keep cool. I think I like your primary Uro better than your rock star, Mikey.

You've earned a break, my friend.

Pratoman said...
Oh, just an aside...
Had a new PA today. Very hot. Short skirt, heels 👠. Comes in before the doc. Sits on the examining table, and does "the pose" you know, the one where they lean to one side, with arm supporting them, and crossed legs. No effort to pull down skirt. And starts asking me about my erections. I'm like what the FLUCK?

But whatever. It was the bright spot of my day 😂😂😂😂😂😂

what's the deal with this guy.....he can't hire a PA is she's not a beauty queen....

it's good to hear about his take on those studies and his take on bcr. that's been my thinking as well....and it's good to hear perspectives from doctors outside of Healingwell. I don;t believe doctors are unaware of these studies. Healingwell just has it's own interpretation of what to do with them that's different from a lot of doctors

Skypiliot, I think we all look at ourselves as being younger than we are. It's an affliction if getting old. Actually, not, I have felt that way even when I was in my 40's