Posted 12/12/2017 11:17 PM (GMT -5)
Thanks all. There's not a lot of details in my initial post but hopefully my signature tells the story.
For those that haven't seen my story before -- Diagnosed in January 2013 with a PSA of 12.4 after almost 2 years of bone pain. Initial scans at diagnosis showed mets in lungs, lymph nodes, sternum, shoulder, pubic bones and more. Started on Firmagon then began taxotere in June 2013. Followed that by Etoposide & Cisplatin in late 2013. Had RP in January 2014 and started Xtandi and Lupron. Had a Thymectomy in May 2014. In June 2014 I began 36 radiation treatments.
My PSA was undetectable from January 2014 until early 2016 when it began creeping up. Scans were shoeung mets so I had proton therapy in late 2016. By December 2016, mets were widespread even with low PSA. Started Jevtana in January 2017 and had last treatment in May. Continuing on Lupron with the addition of Zytiga in August.
Feel very lucky. I have seen too many fellow warriors pass away from this disease or complications from it. But there are successes too and that's why I'm posting and keeping this thread alive. Lots of hope for us!!!