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When to declare ptoctitus

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Posted 8/24/2018 7:58 AM (GMT -5)
Little over 3 eeeks since EBR and brachytherapy...getting up all night to urinate ...every time I have gas and leaks....hsve to wear a pad cause I leak a bit out my ass during the day ...canthis get better or is it safe to say I have ptoctitusc
Posted 8/24/2018 9:10 AM (GMT -5)
It will get better with time.

Leave the diagnostic work to the doctors.
Posted 8/24/2018 10:17 AM (GMT -5)
From what I understand you have proctitus how long before you knewc
Posted 8/24/2018 10:53 AM (GMT -5)
2 years. I had the symptoms you're describing, but that cleared up a few months post treatment.
Posted 8/24/2018 11:08 AM (GMT -5)
oh wow came back 2 years later ...so can I ask you do ething personal ...are you physically fit..before all this I used to jog and hit the gym ...it seems like everyone that’s done radiation ...just plugs along now..that worries me
Posted 8/24/2018 11:14 AM (GMT -5)
I am above the fitness level I had prior to treatment. It dipped during treatment, but I still walk 3-4 miles a day and do heavy lifting in my shop without problems.

In fact, I generally feel better post treatment than before because the PC was a wakeup call and I've been proactive in improving my diet, exercise and general health.

I am also seven years older and approaching 60, so if I seem like I am slowing down - it's more likely that I'm getting old. This last weekend I cut 4, full sheets of plywood and about 30 board feet of oak lumber - my body hurt for days after that. Turns out that I can't lift 90 pound sheets of oak plywood like I could when I was 25.

Never blame anything on PC treatment that can be explained by turning into an old fart.

Andrew
Posted 8/24/2018 12:04 PM (GMT -5)
Of course, you have both proctitis and urethritis/cystitis. That only means your rectal tissues and your bladder/urethra is inflamed from the radiation. It's akin to getting a sunburn where the sun don't shine. That does NOT mean they are permanent conditions - they are almost always transient (like a sunburn). Talk to your doctor about sleeping pills to get you through this phase. I found one Rapaflo worked better than 2 flomax at night. Limit fluids, especially at night, and avoid caffeinated beverages, alcohol, and fruit juices. Try taking a probiotic.
Posted 8/24/2018 12:43 PM (GMT -5)
"oh wow came back 2 years later ...so can I ask you do ething personal ...are you physically fit..before all this I used to jog and hit the gym ...it seems like everyone that’s done radiation ...just plugs along now..that worries me"

everything worries you, Stan. Have you looked into your mental health yet?
Posted 8/24/2018 2:28 PM (GMT -5)
Stan, did you do any home work before your treatments? Did you really think that you would have radiation treatments and everything would be like before? You are in the worst stage of SE's right now, or two or three weeks after your treatments. Grin and bear it, and hope for the best. The people who come out with nary an se's are few and far between. You have months to go my friend.
Posted 8/24/2018 4:02 PM (GMT -5)
Tried Flomax for urinary problems? Magic bullet for me.
Posted 8/25/2018 10:23 AM (GMT -5)
Stan, what everyone said before me is correct and it's part of the process..you'll be fine with time!
Hang in there,
James
Posted 8/25/2018 12:19 PM (GMT -5)
Stan - I wouldn't say that I'm "just plugging along" now. All through SBRT treatment, I did not miss a day at work OR a day at the gym. I'm now almost 2 years post-treatment, and I am in far better shape now than I was before treatment -- and I was in pretty good shape back then. I'm 70 now, and my usual morning exercise routine includes 3 miles on an elliptical machine (in 30 minutes), about 20 minutes of moderate weight lifting (machines - 50-70 lbs.) and then a "cool-down" of another mile on a treadmill in 15 minutes. Then, 3 days a week I do water aerobics, play bocce, take long walks or bike rides. . . just about anything I feel like doing.

Just give it some time. ASSUME that you will make a complete recovery. If you plan for anything less, it just may happen that way.
Posted 8/25/2018 1:19 PM (GMT -5)

Paxton said...
Stan - I wouldn't say that I'm "just plugging along" now. All through SBRT treatment, I did not miss a day at work OR a day at the gym. I'm now almost 2 years post-treatment, and I am in far better shape now than I was before treatment -- and I was in pretty good shape back then. I'm 70 now, and my usual morning exercise routine includes 3 miles on an elliptical machine (in 30 minutes), about 20 minutes of moderate weight lifting (machines - 50-70 lbs.) and then a "cool-down" of another mile on a treadmill in 15 minutes. Then, 3 days a week I do water aerobics, play bocce, take long walks or bike rides. . . just about anything I feel like doing.

Just give it some time. ASSUME that you will make a complete recovery. If you plan for anything less, it just may happen that way.

you go boy. Your workout is my goal.
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