Radiation LT Side Effects

better living through denial.

garyi said...
Should we tell him now that between 6 and 12 months his penis will shrivel up and fall off?

Let me debunk this right now. It is false. Nothing falls off. It just gets a little hard to find is all.

I had another bout with blood in my urine yesterday. Happened while straining for a bowl movement and pretty bad, as the toilet bowl water was almost all red. Stool softener had been doing the job, but didn't yesterday.

Before radiation, I used to have a bowl movement once a day - now 2-3 times is normal with stools that are flat.

If the SRT works I'll be happy to live with these SE's, but that's yet to be determined.

Bobby Mac

Bobby Mac-

I've had issues with hemorrhoids, even before radiation. After radiation, they got inflamed and would break and bleed if I strained too much. I went to a proctologist who injected a very soothing phenol solution into them. Inside of a week, they were all gone. No bleeding since.

Hey listen you really don’t hsve a choice here like I did ...unfortunately I was sucked into this mess ..just find the best and hope fir the best...I thought I had the best a so called expert atUCSF San Francisco ...and he lied like hell yo me....very upsets and still haven’t got over it...is it safe to say or am I out of line ...if you did surgery and unfortunately failed ..well u hsve no choices........if you are choosing this as primary treatment I think he should hsve told me more especially when I to,d him I dint sleep much ,I have anxiety,and I asked about all these side effects to .....I knew it was bullcrap when I asked about secondary cancers bad he said the chances of secondary csncer is like dying on the operating table ...I am sooo
Pissed at him I don’t want to see his face again ever ..yes I’m getting help professionally even though what’s done is done .

Post Edited (Stan1961) : 8/27/2018 11:55:08 AM (GMT-6)

Prat and all the mods - this poster's behavior is bordering on trolling and becoming disrespectful.

Stan,

We mods have been sort of taking turns fussing at you. I think it's my turn now.

Right now, this minute, you find yourself in a place that sort of sucks. We get that. But the side effects you have are more-or-less expected a couple of weeks after treatment, in varying degrees, and they usually get better relatively quickly, where relatively quickly is three to six months. You may have an unusually bad case of those things, the ones that most guys have to put up with... you may have -- but it's a little hard for us to tell since you seem a little freaked out and we can't know how much to allow for your being a bit nervous.

But none of the problems you are having now are likely to be long term issues. Your feeling that you are doomed forever because you are miserable now is mistaken. There are long-term problems that occur after treatments like yours but they have rates of occurrence in the low single-digits. (Bladder cancer is about 1.5% and is usually easy to treat.)

And your idea that there is some sort of get-out-of-jail-free card for prostate cancer, and you didn't have it because you chose radiation, is foolish. All the treatments have side effects. As I sit here I have a plastic bulb by my right testicle that I squeeze when I want to pee. I also have a bulb by my left testicle that pumps up my penile implant. I have these courtesy of the side effects of my robotic surgery in 2012. I'm fairly happy with appliances but nobody gets that sort of thing on a whim so you can imagine that I had some side effects that I struggled with.

So, hang in there. Things will get better. And in the meanwhile, please try to spend less time rattling your chains like Marley's Ghost, trying to warn men away from radiation.

I am more like Andrew.. I have had chronic radiation enteritis and with a recent colonoscopy, confirmed radiation proctitis (I had rectal bleeding). I also have Dysuria (burning while peeing). I take Flomax twice daily and Pyridium when it gets too bad. I am over 2 years past HDRBT/IMRT. I can't say it has been a cake walk, but I have a new normal. There are bouts of time that things seem to settle a little then I get hit with another round of constipation or diarrhea. I am on a program for those from a doc at UCLA. So I am told by a couple of RO that I talked to that I am one of the unlucky ones... bummer. But onward as cancer control is good at this point. -JR

Moderators: I believe Stan is becoming increasingly negative to the point of doing damage to vulnerable people. I can block him but the newbies don't know that yet and he just might cause someone to make a very bad decision.

Stan I am sorry but your comments no longer carry ANY value. If you want to help people here at HW never post again. JMHO

Roger

Artist Mark said...
He is not being helpful...only disruptive....IMHO

Ditto....and who couldn't see that coming many weeks ago?

John_TX said...

Pratoman said...
In JohnTx thread, he talked about blood in urine, i didnt want to hijack his thread, but it made me think....

No more bloody urine streams since I shot the clot out a few days ago thank goodness. Now if my butt would stop hurting ...

John, glad to hear it. Keep on truckin'!