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Worried about wet gas passing

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Posted 4/20/2019 11:45 AM (GMT -5)
Hi Everyone. Well it has been almost a year and half since my surgery. Just completed 33 treatments of radiation and set to have my third lupron injection in July. I have received one every 6 months since surgery. Side affects have been pretty normal with the exception of the last couple of weeks, and I’m now finding I’m have lots of gas and some wet farts which I’m embarrassed to admit. My hands have pain, sleep is no more then 4-5 hours a night. My weight has increased several pounds. On the up side for my last two PSA test have been 0 not elevated at all which I’m very great full for. I guess my concerns now are what to further expect from the side effects from radiation treatments and will these wet farts pass. I seem to be peeing more and having the urge more so then before the radiation. Any info is appreciated. Thank you
Posted 4/20/2019 5:42 PM (GMT -5)
It's probably radiation proctitis or the less common radiation colitis. I was Dx'd with RC via colonoscopy at six months post ART. My gastro said it should clear up in about six months. It hasn't. I've had to stick to a low residue diet. Also I had noticed increased urgency and frequency of urination. That has been clearing up a little faster than the #2 problems.

My guess is that this too shall pass.
Posted 4/20/2019 6:36 PM (GMT -5)
radiation rule: Never trust a fart.
Posted 4/20/2019 6:59 PM (GMT -5)
Sounds pretty normal after radiation and Lupron. I would encourage you to walk as much as possible, drink a little more water, and as the guys say don't trust a fart. Read the ADT and SRT thread and you will see lots of the guys have had some of the same SE's your having. I consider a good nite if I can get 5 hrs of sleep, I have lots of joint pain mainly in my hands, and of course the Lupron belly and fatigue. Also some guys were tired from the radiation so everyone reacts a little differently but things will get better give it some time and keep walking! Keep the Hope!

Larry
Posted 4/21/2019 2:14 PM (GMT -5)
All I can say is that this is a common side effect after radiating (any flavor) the rectal area around the prostate..."rectal incontinence." More common that it shows up 5 or 10 years later as a "late-term" side effect. Urinary issues will likely subside soon.
Posted 4/21/2019 2:36 PM (GMT -5)
"More common that it shows up 5 or 10 years later as a "late-term" side effect. Urinary issues will likely subside soon."

untrue. more commonly men have rectal issues during and immediately after radiation and less commonly in the future.
Posted 4/21/2019 2:40 PM (GMT -5)

F8 said...
....more commonly men have rectal issues during and immediately after radiation and less commonly in the future.

Unfortunately, that has been my experience.
Posted 4/21/2019 2:47 PM (GMT -5)

garyi said...

F8 said...
....more commonly men have rectal issues during and immediately after radiation and less commonly in the future.

":Unfortunately, that has been my experience.

"

for many of us. "never trust a fart" refers to the ST side effects of radiation
Posted 4/21/2019 2:48 PM (GMT -5)
You are correct, too. It's a common short-term side effect AND a common late-term side effect...actually, the most common bothersome side effect following RT. This is probably the most typical reason for "younger" men who have a choice of treatment modes to NOT choose RT...because of the late-term side effects hitting while they are still relatively young. We see this over and over here at HW/PC and in the case studies when radiation oncologists steer some of our "younger" members away from RT in favor of surgery primarily because of their age. Unfortunately, when you need SRT, then you need SRT...but I would never jump the gun on it...there's clear signs above and beyond just PSA as indicators for SRT...

Post Edited (Blackjack) : 4/21/2019 1:56:22 PM (GMT-6)

Posted 4/21/2019 3:40 PM (GMT -5)
what's the proof of "common" long term rectal issues? I'm about 9 years out and I don't have any and haven't seen any mention that I recall on the board.

also, I haven't heard anything that I recall of radiation oncologists steering younger men toward surgery to avoid "common" LT side effects of radiation.

also, I think the guys who have surgery + SRT are better candidates for both ST and LT radiation complications.
Posted 4/21/2019 6:07 PM (GMT -5)
Roy,
It all sounds pretty normal to me, or least very similar to what I experienced. I had adjuvant RT starting like 10 weeks after surgery. I went from recovering surgery continence back to using many pads per day towards the end of RT and for some time after completion. And yeah be wary of the sharts. I tried to be near a toilet at all times.

I suspect that you will be back to near normal before long.
Posted 4/22/2019 5:54 AM (GMT -5)
Radiation side effects continue to grow for many of us until they hit a "nadir" (maximum) about 3 years after radiation treatments have ended. Nerve damage is a (possible) side effect of radiation.

6 years after beginning treatments, I still cannot 'trust a fart'. Also still have side effect issues. A friend who had radiation 25 years ago says she is still recovering and still notes improvements.
Posted 4/22/2019 10:22 AM (GMT -5)
Very occasional damp farts are a minor inconvenience, but long term rectal and colon secondary cancers are a real concern.

I don't get any comfort from superficial, self-serving RO studies or anecdotal statements from hopeful RT apologists .

....and so it goes
Posted 4/22/2019 10:39 AM (GMT -5)
I had colo-rectal issues for years after SRT.

Now, 9 years out from SRT, I'm battling the almost total bowel incontinence that Jevtana has brought me. The Jevtana has torn up my stomach, requiring Prilosec, which has taken predictable loose bowels and turned them into worse.

The Taxotere created constipation, but worsened acid reflux to a point I couldn't swallow without issues.

Both the Taxotere and Jevtana have stopped working, so I'm off to trials and experimental stuff after some meetings on the book for Wednesday.

So I'm in conversations with multiple docs. What is worse? Pick one and live with it. And maybe it will all go away when the chemo is stopped.

So nothing new, just a different subject for decisions.
Posted 4/22/2019 10:56 AM (GMT -5)
142,
You have been through a lot. The word “resilience” comes to my mind. I’m hoping you are able to find improvements on several fronts.
Posted 4/22/2019 11:21 AM (GMT -5)

mattam said...
142,
You have been through a lot. The word “resilience” comes to my mind. I’m hoping you are able to find improvements on several fronts.

Ditto....no $hit
Posted 4/22/2019 11:24 AM (GMT -5)
double ditto...and also "no $hit" (seriously, and pun intended)
Posted 4/22/2019 4:51 PM (GMT -5)
I had this issue for a very short time and found that I could eliminate it by watching my diet carefully. Minimizing dietary intake of certain vegetables, grains and beans seemed to help. I could eat bran, wheat, oats but had trouble with some cereals that had inulin, chicory root powder if I recall correctly. You might keep a food log and see if you can identify the offending foods / ingredients.
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