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Posted 3/16/2021 10:05 AM (GMT -5)
I have a lot of pain in the spine area lately..
I'm a Gleason 9 and I'm concerned about Mets.
Do you have to have a high PSA to have Mets.. ?
What if any, Are the symptoms of having Mets...
Posted 3/16/2021 10:14 AM (GMT -5)
MG, yes, pain CAN be a symptom of mets. And, yes, spinal mets are not uncommon with PCa. For definitive answers, you need to be talking to your docs. They will probably run one or more scans to determine what is happening.

Best of luck.
Posted 3/16/2021 10:31 AM (GMT -5)
Thanks halbert.
I have not had a bone scan since I was first DX.
And I did not like the place I had it at, Their equipment looked antique.
I have since switched Insurance, I now have Kaiser.
I'll see what they have to say..
Posted 3/16/2021 10:39 AM (GMT -5)

Hello, MG0351 ~~~

Our comrade Halbert has shared sage advice.

The pain you describe is something your doctor would want to know about.

No matter what, your doctor will want to address the pain issues you are describing.

If there are metastatic spots in one's spine, there is spot radiation that can help.

It might be the case, cancer aside, that you might simply need some physical therapy.

I will echo Halbert's wise advice --- and further advise that you telephone your oncologist's office today.

Describe your specific symptoms, the pain you are experiencing, and ask for the first available appointment.

Oncoloists can get pretty booked up ---- but they often have an appointment time or two, each day ---- for situations that arise.

Above all else --- you are experiencing pain. Your doctor will certainly want to know this today.

MG0351 --- you deserve answers and insight ---- so that your pain can be addressed, diagnosed, assessed, treated, and mitigated.

My brotherly advice today? Be assertive, be proactive --- and be your own advocate --- and ask for the earliest available appointment that they can offer you.

We're all in this together ---- fellow travelers on the road we walk together --- all of us looking out for each other.

Keep us posted ... let us know how you're faring.

Sending my encouragement, well wishes, and support!

Wanting all the VERY best for you ~~~
CYCLONE - # Iowa State University
Posted 3/16/2021 12:21 PM (GMT -5)
Yes, you can have Mets with an undetectable PSA, but it is an uncommon situation.
Posted 3/16/2021 3:52 PM (GMT -5)
There are examples of Prostate Cancer, especially more aggressive G9 and 10, that give off low levels of PSA. But i would think yours would not be one of those examples, as you had a PSA of 5.2 at diagnosis with no Mets.
Still, as others above have said, you should address this with your Onc, asap. Good luck keeping our fingers crossed for you. Keep us posted if you can
Posted 3/16/2021 3:56 PM (GMT -5)
Definitely discuss your concerns with the Kaiser doc(s). Insist on a prostate cancer specialist!
What do your current PSA tests show?
Posted 3/16/2021 5:39 PM (GMT -5)
Define high PSA. What is your PSA? What is your current treatment? When you asked your oncologist about the pain what was the response?
Posted 3/17/2021 11:38 AM (GMT -5)
All well and good gentlemen...I believe we all know that mets in the bones are painful...the hidden question in the threader's post is/ar(imo)...does the pain come and go...how are they differentiated from aging pains that are not mets...do mets increase in pain...ya know stuff like that,,,if no one knows,,,thats fine,,,thou I would think...some who answered would know...but maybe not...I am just trying to avoid group think...where the first few posts are mimicked by following posts...I have seen this dynamic numerous times here over the years...my question is a valid one...if only in the sense that only one person(me) has posited it...straw men need not respond...actually no one need reply,,, I myself have validated it....
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