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Posted 3/20/2011 6:28 AM (GMT -5)
Hi All! Been a while since we have gotten incredibly busy with childrens birthdays, book reports, grandparents days.....on and on and on.

When Michael had his original bone scan back in December, we got called back and the DR told us that there were a few spots that were not normal and he wanted to do a rescan in 3 months. But that it was probably due to positioning, and not to worry. Ok, too much going on to worry about that and the URO, surgeons didnt seem concerned about it at all, we forgot about it. Due to Michael needing to complete retirement physicals with the Army getting prepared for his VA physical, he is now going to have this scan tomorrow. I am hoping it is nothing.....but am worried.

I dont know how many of you have an iphone, but they do have a prostate cancer app. It allows you to keep track of your PSA results, Voiding diary, AUA symptom score. I am not going to give the name I just wanted to share that there are these apps out there and sure there will be more to come. Of course.....if any of you are app-savy, you could take your knowledge and build a really good one, make lots of money!!! Just thought this might help someone keep their information organized, since I live by my iphone. Hope it helps.

Michael has been asking about pumps, I dont think he is going to need one, but since you all have the info. If you would send me in the right direction about where to gather some info about the "good and new pumps"

Thanks so much to you all.
Susan
Posted 3/20/2011 6:46 AM (GMT -5)
Susan, sorry about your worries. I understand, believe me...we love our men and want them to be healthy and happy.

As to "spots" on a bone scan, it's important to remember that every injury, spot of arthritis, or any repetitious activity will show up as a "spot" on these tests as the scan is highly sensitive to any and all injuries. My husband's bone scan showed one hot spot on his right clavicle (collar bone) in 2009. While the urologist and rad onc we were working with at the time felt it was nothing, the radiologist who read the scan said it must be investigated so a CT scan was ordered. When the rad onc called us with the results of the CT, she said "you have oldness." When she found out that John (my husband) likes to play tennis and uses his right arm, she said "that's what the spot is" and not to worry about it. We found out that people who play tennis, golf, or are in construction often have these spots due to the trauma inflicted on the bone over time.

As to the pump, I'll let others chime in as I have no knowledge of them. Hubby is on Viagra (from ADC) and hasn't tried the pump.

Come back and let us know how things went for your husband. We'll be waiting for you here.
Posted 3/20/2011 7:56 AM (GMT -5)
I remember thinking back in December that if they really thought your husband's "hot spots" on his bone scan were mets from the PCa, they would not do the surgery until they were sure everything was OK.  My own bone scan before surgery showed some suspicious spots on the lower ribs, but further testing showed everything normal, and I hope that's the way it turns out for your husband as well.

Posted 3/20/2011 8:48 AM (GMT -5)
My bone scan prior to RT showed up "hot spots". Two rad. oncologists identified them as bone islands. Both were very suspicious at the time.  I'm sure that things will turn out similarly

as. if I remember correctly, there wasn't the concern at the time for your husband's BS results.

j

Posted 3/20/2011 8:57 AM (GMT -5)
Susan,

What were your husbands initial stats?

Gleason score, PSA at dx.

If he was G6 PSA <10 and his post op. did not change. There is about a 100% chance the spots are not prostate related.
Posted 3/20/2011 9:40 AM (GMT -5)
he was Gleason 6, PSA was 10.6
Posted 3/20/2011 9:55 AM (GMT -5)
Good luck on this next bone scan, I was worried about my most recent one, but it came back clear from mets at this time
Posted 3/20/2011 11:34 AM (GMT -5)
Susan:

We had a medical physicist (radiology) speak at a recent local support group meeting.

He said that with a PSA under 20, it is unlikely that PC would show up on any of the assorted imaging devices, including a bone scan. So, my guess is it is something else, completely uninteresting!

Even with my PSADT of 2 months, with a 0.27 PSA none of my medicos even recommended a scan

Mel

Posted 3/20/2011 12:14 PM (GMT -5)
Hi Susan,

I use the osbon pump. Takes about five minutes and lasts as long as we want it. Not very good for serendipity but the pills don't work yet. I use the softest ring.

He will have to use it every other day to keep it easy to use. Hope he does not need it, but they do work well.

Mike

Posted 3/22/2011 4:36 AM (GMT -5)
Hi Susan!

Hopefully the bone scan results will be here.  From what I have read, things should be just fine!

Last week, I asked for some information about the ED pumps because my husband is going for an information conference on March 28.  We knew absolutely nothing about them.  I received several replies, but wanted to know more.  I used the small Google search on the top right of this page.  That led to several threads on the subject.  I ended up reading over 50 pages!

To help my husband, I printed out the most informational posts.  That resulted in 7 pages of reading.  He went through the sheets and put a few notes on things he wanted to understand better.  There seems to be much debate on which model is the best.  We are still trying to figure out how using two rings will help.  Hopefully, the doctor will answer our questions!  (It may end up being a sales rep instead of a doctor.)

Wishing you and Michael the very best!  Please come back with an update.

Best regards,

Aimzee

Posted 3/29/2011 7:10 PM (GMT -5)
Any news on his scans?
Posted 3/29/2011 11:28 PM (GMT -5)
osbon pump is covered by medicare
Posted 3/30/2011 3:59 AM (GMT -5)
Thanks, Logo.  My husband, Ron found out that his insurance company will not cover the pimp.  There may be one for $150 that he can buy.  I hope this is worth the time, money, and effort.  I am trying so hard to not be discouraged as I want to be strong for him.  But I have all these mixed feelings.

Susan, do you have the results yet?

Aimzee

Posted 3/30/2011 8:16 AM (GMT -5)
We have not gotten results of the bone scan, but this is what we do know. Michael went in to get the results from his primary care Doc, and he had the report in front of him. He said something about it being preliminary and wouldnt tell him the results until the "official" guy read the scan. So at this point we still wait. They have ordered an MRI and neurology appt, none PC related, so Michael wont meet with the Primary again until those things are done. We may not get the official word for a while. But I assume, no news is good news. If they found something I assume we would know by now. At least, I hope.

Thanks for following up with us!!!
Posted 3/30/2011 8:24 AM (GMT -5)
Susan, they sure kept me waiting after my most recent bone scan too, I know the feeling, But in the end, there was no bad news at this time, and that was the most important part.

David
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