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A break needed from adt

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Posted 10/29/2011 2:39 AM (GMT -5)
HI gents I was dx,d with high stats about 12 months ago and have been receiving Zoladex shots ever since I've had pretty well all the side effects ,but at this point now my head feels fuzzy and I wake up with a head ache most mornings.I'm only 45 years of age and prior to zoladex I was fighting fit strong and full of energy.if I'm honest now I feel worn out.I still excersise every other day for unto three hours but my muscle mass as deteriated and I've no strength.I'm due my next zoladex shot but I don't want t do it.I presented with a PSA of 144 and about 5 areas with bone mets.I felt great then but now I feel like an old man.IF I STOP ADT TREATMENT for a physical recovery period how long will it take for me t start feeling more energetic again and regain some strenghth???? Also can anyone guess what my fate would of been and how long it would have been before I was getting bone pain or other symptoms if I'd never discovered the Pca in the first place.Would I have been symptomatic in 2 yrs ,5 yrs,10 yrs ??? At the minute I feel that these drugs themselves have destroyed my life !!!!!What about the quality of life issues everyone was talking about when they started injecting the zoladex ??Can I do anything differently that will give me my old life back so I can enjoy it again.I'm totally dissatisfied with how I'm feeling right now and Want a Break at the very least from this feeling.
Posted 10/29/2011 7:03 AM (GMT -5)
leeanglo

Sorry you are having so much trouble. I went and checked side effects for Zoladex and Casodex - the headache maybe a side effect of the Zoladex, the "muscle mass as deteriated and I've no strength" is not listed as a side effect of either drug.

Have you spoke with your medical team?

I wish you well, I'm lso on Zoladex but have just started.

Bud
Posted 10/29/2011 7:18 AM (GMT -5)
Raddad the muscle loss does seem well documented and goes hand in hand with my loss of strenghth.I tolerated the drugs well for sometime but I feel generally tired now and it's just not my usual character so I want the real me back asap .... If that's ever possible .Hope ADt works for you and you tolerate it well.
Regards Lee .
Posted 10/29/2011 7:28 AM (GMT -5)
leeanglo. very sorry about your current situation. It sucks. I did 12 months of ADT3 after SRT and my SEs were very annoying, but not really bad. The most significant SE was loss of muscle mass in my legs. It is due to the lack of testosterone. Best thing to do is to keep hitting th weights. I am 4 months post HT any I have just starting feeling truely myself over the last 3-4 weeks. T is comming back and hot flashes diminishing. Everyone is different however.

I would wait until my PSA was undetectable, or at least reached its nadir, before going off HT (but of course I am not a Dr or in your position). I would follow your docs orders on this one, or at least get another opinion. Best wishes. BB
Posted 10/29/2011 7:40 AM (GMT -5)
Hi Leeanglo, I am not a professional of this, but it is my understanding that it is the lack of testosterone that is causing you to feel this way. The cancer feeds on testosterone, the idea of HT is to lower the testosterone to starve the cancer. Eating right and excercising is supposed to combat the side effects. I think also, some medical onocologist will ask you to take some vitamins to help with bone strength. You probably already know all of this, so hopefully some other members will chime in that have experience with this. It would not hurt to also ask your doctor and if you are not satisfied with his response, then feel free to call another doctor in your area to get a second opinion. Best wishes to you in having the strength to continue fighting PCa.
Posted 10/29/2011 12:25 PM (GMT -5)
the "muscle mass as deteriated and I've no strength" is not listed as a side effect of either drug.

if you are a physical person who works out it will probably be more obvious to you -- without testosterone your body deteriorates.  you can slow down that change through diet and exercise but it takes discipline and a plan that you stick to no matter how bad you feel.  what other choice do you have?

the good news is the flesh quickly reasserts itself once testosterone is restored if you keep exercising.  if you lose the battle in your head the body is going to follow.

ed rader

 

Posted 10/30/2011 6:15 AM (GMT -5)
" If you lose the battle in your head the body is going to follow " Thats a great succinct way of putting it. I think it was 60 michael who said " worrying is like praying for something bad to happen ". Top 2 quotes for me, since being here.


F8, read " F8 is the Hunter " by Earnest K Gann ". Its all about F8 in early aviation, You will not want the book to end.
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