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Posted 8/29/2013 5:23 AM (GMT -5)
Hope all is well with everyone out there!! Dad got his 3 month check up and he slipped backward a bit. His PSA went from around 4.6 to 9.5 since May... His ct scan was unremarkable. It did show his bone liaisons is multiple places which we knew about from the original diagnosis. The largest was 2 cm by 3 cm on the pelvic bone. He still has had no pain with any mets! Gonna recheck in a month and switch from casodex to ??? Forgot the name- dr said it was nearly the same as casodex but he would take 6 pills a day. Still a first line drug. So we are not freaking out yet as this board has some legendary beginning PSA vets here still doing well. Can anybody chime in on thoughts of upcoming med changes or what may have worked when the refractory phase began?
Thx again to all!!
Posted 8/29/2013 8:52 AM (GMT -5)
Sorry about his increase, but please never give up hope, the battle goes forward.

Glad he is not dealing with any real pain with known mets.

Please keep us posted like this, and my best to you and him

david
Posted 8/29/2013 10:38 AM (GMT -5)
Hi, Very sorry to hear about your dad's increase. As I was told last Oct./Nov., there are a lot of drugs out there that we have to choose from once our first line stops working. Keeping the faith and knowing that things will work out for the best. Just taking it one day at a time.

Dave in Bartlett, TN
Posted 8/30/2013 3:38 AM (GMT -5)
Purgatory thanks for response he did not have pain when we discovered the psa at 765.... I found that to be strange an have wondered how things like tha play into gauging the strength o the disease in each individual. I review your entries all the time. You and others are a beacon out there for many! I read through your post today and hope you make some headway with things. On a stamp note, were you fortunate enough to collect the entire Columbia series or the Zeppelins? Dad and I also collected years ago got them out an looked through when you spoke of the stamps a bit ago. Thx for that!
Grandpaof4 your stats seemed to resemble my dads the most when you joined here. Your psa was 5 times lower but as others have said that is just a number! Glad you are doing well also! Thx for adding in as well.
Posted 8/30/2013 8:06 AM (GMT -5)
Lesions could maybe be radiated to stop pain and maybe kill off PCa at the site. Lots of drugs possible for PCa, see www.hrpca.org to see proven therapies. Estrogenic drugs can be useful for some and can work on hrpca cells, can work when Lupron or casodex fails. Builds bone density and helps memory too. No money in it and most docs never offer it or subscribe it, Dr. Fred Lee used it on himself with emcyt and this incureable guy is still alive 33 yrs. later, he didn't do the other drugs (fyi) and he invented cryo therapy many decades ago, probably knows a thing or two about PCa (ha-ha). This thing of PCa is full of arguments and discussions, practicing medicine is alive and well. The newest drugs are very pricey so one hopefully has great insurance, spending $100,000 a year is not unheard of anymore.

Study up on various options and get envolved in your actual choices or find a doc that will work with you for having choices (good idea anyway).  I had a lesion zapped back in Jan. and seems to have done its thing, via comparison scans and such.  Try to enjoy whatever time frame we have, many unknowns as to events and things in this world, so PCa might not be our biggest worry. (that includes my optimistic outlook-LOL)

Post Edited (zufus) : 8/30/2013 7:11:53 AM (GMT-6)

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