Open main menu
☰
Health Conditions
Allergies
Alzheimer's Disease
Anxiety & Panic Disorders
Arthritis
Breast Cancer
Chronic Illness
Crohn's Disease
Depression
Diabetes
Fibromyalgia
GERD & Acid Reflux
Irritable Bowel Syndrome
Lupus
Lyme Disease
Migraine Headache
Multiple Sclerosis
Prostate Cancer
Ulcerative Colitis
View Conditions A to Z »
Support Forums
Anxiety & Panic Disorders
Bipolar Disorder
Breast Cancer
Chronic Pain
Crohn's Disease
Depression
Diabetes
Fibromyalgia
GERD & Acid Reflux
Hepatitis
Irritable Bowel Syndrome
Lupus
Lyme Disease
Multiple Sclerosis
Ostomies
Prostate Cancer
Rheumatoid Arthritis
Ulcerative Colitis
View Forums A to Z »
Log In
Join Us
Close main menu
×
Home
Health Conditions
All Conditions
Allergies
Alzheimer's Disease
Anxiety & Panic Disorders
Arthritis
Breast Cancer
Chronic Illness
Crohn's Disease
Depression
Diabetes
Fibromyalgia
GERD & Acid Reflux
Irritable Bowel Syndrome
Lupus
Lyme Disease
Migraine Headache
Multiple Sclerosis
Prostate Cancer
Ulcerative Colitis
Support Forums
All Forums
Anxiety & Panic Disorders
Bipolar Disorder
Breast Cancer
Chronic Pain
Crohn's Disease
Depression
Diabetes
Fibromyalgia
GERD & Acid Reflux
Hepatitis
Irritable Bowel Syndrome
Lupus
Lyme Disease
Multiple Sclerosis
Ostomies
Prostate Cancer
Rheumatoid Arthritis
Ulcerative Colitis
Log In
Join Us
Join Us
☰
Forum Home
|
Forum Rules
|
Moderators
|
Active Topics
|
Help
|
Log In
The Unending PSA Controversy
Support Forums
>
Prostate Cancer
✚ New Topic
1
2
3
4
❬ ❬ Previous Thread
|
Next Thread ❭ ❭
davidg
Veteran Member
Joined : Feb 2011
Posts : 4093
Posted 8/14/2014 8:00 PM (GMT -5)
I just thought your prior three statements:
"I think men with this set of stats (this would be me), regardless of age should absolutely not have an invasive procedure"
"I think I would actually be somewhat nuts to undergo any invasive treatment"
"Docs with patients with these stats should absolutely not even recommend any invasive treatment"
come across as a bit harsh to the tens of thousands of men with your same stats who do chose treatment. I don't think they're nuts.
This board has taken a militant approach if not crusade against treatment and often in the crossfire, statements are made that I find offensive and certainly counter productive for the newbies who come here seeking advise for treatment.
I know someone above just posted that he wished medical experts follow his line, but you can imagine how someone may feel if he consults with multiple experts who suggest he seek treatment only to be told he's nuts to do so
open reading here.
GeetarMan
Regular Member
Joined : Mar 2014
Posts : 381
Posted 8/14/2014 8:06 PM (GMT -5)
The first and third are my opinion and I stand by them. My opinion shouldn't piss you off.
In the second one, please notice the pronoun "I", as in me, and I was referencing the fact that my PSA had dropped down to .5 and yes, I think I would be nuts to have a radical procedure at this point.
Really, you need to take it down a notch and not take everything so personally.
davidg
Veteran Member
Joined : Feb 2011
Posts : 4093
Posted 8/14/2014 8:13 PM (GMT -5)
Well of course it's your opinion, you wrote it.
so if several men militantly posted that they thought AS would be nuts in circumstances like yours, that docs should absolutely not recommend AS to men with your stats, and that men with your stats should absolutely not consider AS you wouldn't be a little miffed or cross at how this might be perceived by newbies? It's an honest question.
GeetarMan
Regular Member
Joined : Mar 2014
Posts : 381
Posted 8/14/2014 8:21 PM (GMT -5)
No, I would not. I would tell them that I respect their opinions and that we should agree to disagree. Life, death and cancer evoke strong feelings and strong passions. I fault no one for whatever conclusions they have come to and understand their passion.
Have a good day, I believe we're done here.
Purgatory
Elite Member
Joined : Oct 2008
Posts : 25448
Posted 8/14/2014 8:33 PM (GMT -5)
Gee, let's be careful with all these "David" posts. We have davidg posting and myself, david/purgatory, I thought on some of them I was being jumped, but they were being directed to davidg not myself, I have no problems just being called purgatory or purg to keep our opinions clear and separate. thanks
------------------
geeterman - thanks for your endorsement about
my view on AS. you are the poster child for AS being a viable option. I hope you can continue forever without needing any invasive treatments, think of all that standard quality of life you have maintained over this time period. I am happy for you.
From the day my surgery was done in 2008 to now, its been one endless disaster for me, I no longer can even remember my former days of having quality of life.
so let's keep encouraging AS to any man that can safely meet the criteria, personally, I think that is the smart choice. Panic and/or fear are terrible decision makers.
PeterDisAbelard.
Forum Moderator
Joined : Jul 2012
Posts : 6432
Posted 8/14/2014 10:58 PM (GMT -5)
Ed (F8):
You made a comment just before I left work to head home and make supper, eat it, walk the dog, etc., etc., etc. and now the conversation has moved on. But, with your permission I'd like to revisit your "can't tell if you were overtreated" thing. I have an analogy that might help those confused.
Suppose there was a proposal to implement a lottery in your state and you were trying to figure out who would benefit and who would be hurt by it. For simplicity sake let's limit our thinking to the actual winnings and loss and ignore such things as the program the lottery might fund or whether non-players are free-riding on the system.
So, if you vote against the lottery and it doesn't pass, who is helped? The guys who would have played the lottery and lost. And who is hurt? The ones who would have played and won.
From the experience of similar states that have passed a lottery you can estimate how many people would play. From the design of the game you can work out the odds -- you can know how many winners and losers there would be. Assuming that you know that you are the kind of guy who would play a lottery if there was one, then based on self interest and the information above, can you know for sure whether you would or wouldn't be hurt by voting against the lottery?
Without a time machine there is no way to point at anyone and say "this guy would have won ten million dollars so he was hurt by the lottery not passing." But some state lotteries start at 10 mil for the grand prize and go up, so you can know that guy is out there... someone, somewhere didn't get that ten million bucks but you don't know who he is nor does he.
The guys who are overtreated for prostate cancer are the guys who would have won the gamble if they had chosen not to be treated. Statistically, you can show that they are out there but there is no way for them to know that they would have won.
Purgatory
Elite Member
Joined : Oct 2008
Posts : 25448
Posted 8/14/2014 11:37 PM (GMT -5)
Peter, I realize you were specifically addressing F8, but I read your entire analogy, and I simply don't get the point you are making in regards to the overtreatment question. I get it from a lottery vantage, but not the point you are trying to make. What am I missing? Perhaps the forest for the trees?
F8
Veteran Member
Joined : Feb 2010
Posts : 5936
Posted 8/15/2014 1:50 AM (GMT -5)
Comments deleted for Rule 3 violation
ed
Post Edited By Moderator (Tudpock18) : 8/15/2014 5:01:56 AM (GMT-6)
Tony Crispino
Veteran Member
Joined : Dec 2006
Posts : 8160
Posted 8/15/2014 3:35 AM (GMT -5)
GeetarMan,
Hang in there. Your decision is a reasonable decision and I wish you the very best.
Tudpock18
Forum Moderator
Joined : Sep 2008
Posts : 5676
Posted 8/15/2014 6:13 AM (GMT -5)
Hi guys, this thread has reached 4 pages and we finally had to do an edit for a Rule 3 violation. As was expressed earlier in this thread, we can and should address each other without resorting to pejorative comments. This is a serious subject that evokes strong feelings but PLEASE address each other respectfully and in the spirit of our forum. Agreeing to disagree is ok.
Thanks,
Jim
RCS
Veteran Member
Joined : Dec 2009
Posts : 1357
Posted 8/15/2014 6:35 AM (GMT -5)
David (Purg),
I understood Peter to mean: Statistically your treatment may be designed to not over treat you; however, you may beat the odds and be over treated.
When I choose health treatment options, I have found that I tend to over treat .... I want to be sure I do not have a recurrence. For example, I take antibiotics even though I know a non-antibiotic protocol might work ... better living with chemistry ... get the bug out of me ... Etc., etc reasoning (rational/emotional or otherwise?), maybe my taking antibiotics before my biopsy was over treatment (statistically it probably was) but I would not do a biopsy without them.
Tudpock18
Forum Moderator
Joined : Sep 2008
Posts : 5676
Posted 8/15/2014 7:58 AM (GMT -5)
Temporary lock at the request of the OP
Tudpock18
Forum Moderator
Joined : Sep 2008
Posts : 5676
Posted 8/16/2014 6:31 AM (GMT -5)
Unlocked. Please play nice.
Jim
truckdriver52
New Member
Joined : Jun 2015
Posts : 1
Posted 6/19/2015 10:08 AM (GMT -5)
hi, I would be considered a newbie, I was diagnosed with pc a year ago and had a random biopsy my psa at the time was 6.3 and I believe my gleason score was 3.5, ten out of 12 cores came back negative two positive. my urologist sent me to see a robotic surgeon and he was adamant that I undergo radical robotic surgery, I then went to see an oncologist and between he and my uro they told me with my numbers I had a lot of options but it was their suggestion that I should watch and wait. my uro said why get aggressive with it if it wasn't getting aggressive with me and have another random biopsy in a year, i underwent another biopsy a month ago. 8 cores came back negative 4 positive psa 2.3 gleason score 6 now my uro is pushing me towards radical robotic surgery. if everything i read about
this with my new numbers i am still considered low risk. i have read about
mri guided laser ablations and i believe this is the way to go unfortunately there are only a few places that perform this procedure and although they are fda approved most insurance companies are not covering them as of yet. so i guess if i am in fact low risk would i have time to watch and wait in hopes of this procedure is approved. your thoughts please
gunfighter
Veteran Member
Joined : Sep 2012
Posts : 1249
Posted 6/19/2015 1:28 PM (GMT -5)
Thanks Yoop. "UNENDING"--Yeah, I imagine we have members who recommend that their sons get the test as well as those that advise against it!!
Bill
Buddy Blank
Veteran Member
Joined : Jan 2013
Posts : 2700
Posted 6/19/2015 3:01 PM (GMT -5)
truckdriver52 - from my poor understanding of PCa I'd say it is hard to say what to do. Many men who opt for surgery later have their Gleason scores upgraded/downgraded. If it were me I'd do something about
it before you get a "random" biopsy that comes back as a G7 or higher.
Tudpock18
Forum Moderator
Joined : Sep 2008
Posts : 5676
Posted 6/19/2015 3:30 PM (GMT -5)
Temporarily locked again so that folks respond to Truckdriver52 on his own thread.
Jim
✚ New Topic
1
2
3
4