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Paying forward the generosity of those who passed this way before us!

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Prostate Cancer
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Posted 10/18/2014 6:13 PM (GMT -5)
Many of the helping interventions we have today are a result of the generosity of the PCa sufferers who came before us. Have any of you considered volunteering or registering as possible research subjects so that those who come after us could have better outcomes.

I have volunteered to be part of a cohort at the hospital who performed my RRP. I'm also considering to volunteer for a genetic/familial study; that is gene sequencing to determine the risk of familial factors like BRCA1 and BRCA2!
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Posted 10/18/2014 8:54 PM (GMT -5)
One of the things that I've done is be open about my diagnosis and treatment. By doing that, when someone else gets diagnosed, a friend or relative might put them in touch with me, and maybe I can help.

In the past year, a friend of a skiing friend got diagnosed and needed someone to talk to. I was able to help there.

A fellow gym member was diagnosed and our gym owner got us together to talk.

This coming week, I'm having lunch with someone from my local PCa support group to talk about ED. He's two years post-op, 10 years younger than I, and full ED. I hope I can help, even though I'm not fully recovered myself. Close, but not quite.

If someone had suggested 15 months ago, that I'd be having lunch with a prostate cancer survivor to talk about ED, I might have laughed out loud.

Life is funny that way.
Posted 10/19/2014 9:02 PM (GMT -5)
dmlvt,

Awesome Mate!

Sometimes all we have to do is listen, and let the medico's do their stuff. ED is such a sensitive area and most men find it difficult to talk about it; some "joke" about it as a coping mechanism.

Its good that you are doing it; keep on talking to these men!

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