Posted 1/23/2016 11:48 PM (GMT -5)
Just. Checking in. It's been awhile. I thought it would be a good idea to post. I am doing pretty well. My last ultra sensitive PSA was .007. I developed bladder hyperplasia a year after RALP. The affected site was removed during a cystoscopy after an episode of hematuria. My Uro sent the slides to Johns Hopkins just to be sure. Three cystoscopes later and no recurrence. I think it was a reaction from the RALP anastomosis sutures but my Uro says it was a coincidence.
Also two incidences of kidney stones. I guess another coincidence.
Just slight stress incontinence. Never know when it will happen so I wear a pad. No big deal. It took a lot of time for consistent erections to occur. I am doing okay. Often need 5mg of Cialis but that definitely does the trick. My "little friend" is definitely smaller than before surgery. I am not sure if the cause is just an erection that is not 100% of what is was before, but it is not a big deal. ( no pun intended).
I guess that the most persistent side effect of the surgery has been bowel issues.After surgery my bowel never really fully recovered.Motility has not been the same but I manage.
Most importantly, I feel very lucky to be feeling fine. I don't go for another PSA until April and as long as I keep getting good results, I have no complaints.
I just want to let those of you who have been diagnosed or who have had surgery recently that things do get better. They call you the patient for a reason. It took me two years to get maximum recovery but I did get there.