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CyberKnife - need your experience

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Posted 2/26/2017 5:08 PM (GMT -5)
You were lucky. about 3/4 of men on Casodex have a breast reaction to it. But they are usually taking 150 mg, and you were probably taking 50 mg. Tamoxifen is far superior to radiation in preventing those breast reactions.

www.thelancet.com/journals/lanonc/article/PIIS1470-2045(05)70103-0/fulltext

One might not want it if one has a history of blood clots, otherwise I don't know what the downside is.
Posted 3/26/2017 10:04 AM (GMT -5)
Three months now on Bicalutamide ( 150mg). To stop after CyberKnife treatment.

Placement of fiducial markers / spacer OAR this coming Monday and CyberKnife radiation about 1/2 weeks after.

tiredness, Breast tenderness / enlargement mild. No other noticeable side effect.

PSA 5.9 three months ago ,3.45 a month ago now 3.06.

Postrate volume - 53 ml after biopsy last November now 30 ml this week.
Posted 3/27/2017 7:43 AM (GMT -5)
Well, Bui, it sounds like you're all ready to go. My fiducial implant procedure was "memorable." Wouldn't want to do it again for fun, but no lasting effects either physical or mental.

Soon you will have this entire chapter of the book behind you. Hope you find the actual CyberKnife treatment as fascinating as did I. It really is a nifty process.

I'm still having some mild intestinal issues, 4 months after treatment, but I had issues before treatment and we knew that it could exacerbate things. I went ahead anyway, and I'm glad that I did.
Posted 7/6/2017 4:31 PM (GMT -5)
First three months follow up today after CyberKnife treatment
PSA 1.79 today from 3.06 three months ago
Urinary urgency still present sometimes but significantly reduced .
Urinary rate flow significantly improved. Did not need flowmax after CyberKnife
Told that these will gradually get back to normal but even now they are not problems.

No other side effect noticed .
Next PSA check in three months. Hoping and praying for permanent very low PSA.
Will follow up with urologist on ED. Last injection tried before CyberKnife worked but was painful. Need one that is not painful and can be transported with minimal ceremony.
Posted 7/7/2017 7:39 AM (GMT -5)
Hi, Bui,

It sounds like you have another success story brewing. Your experience is similar to mine and others. We did have some relatively minor side effects, but for each of us they resolved more or less on their own, without intervention (other than maybe Flomax or some other meds for a while). I'm now about 7 months out from my last treatment, and I think my side effects are pretty much history. Hope yours are gone by then, too.

Your PSA sounds good, too. For most of us, it drops gradually, not all at once. Just remember. . . the trend is your friend.
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