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Prostate Cancer
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Posted 12/20/2016 5:12 PM (GMT -5)
Hi everyone,
I wanted to give an update on my husband Bob. Last October 2015 he was DX with advanced PCA, PSA of 1262, mets to bones and liver. Started chemo and lupron right away. PSA went down right away, and scans last January showed huge improvement. His PSA did flare in August, so he started another round of chemo in August, which ended at the end of October. Just went to the doc today, and his PSA is down from 46 at the start in August, to 16. I really do not understand all this to a large extent, but apparently the cancer in his liver and bones respond really well to lupron and chemo, but the PSA still is there. So I guess that is good since all his blood tests today are within normal range, including the AKL phosphate, and all the liver functions. Also he feels really good for being on lupron for a year now. His doc is from MD Anderson, and truly is a genius. He is going to now start him on enzalutamide. Hopefully he will remain stable, and the PSA will go down or stay stable with that.
Anyway, I just wanted to encourage the men here that get diagnosed as stage 4. There is hope and treatment. He is doing very well and has honestly never slowed down through all of this, and has never missed a day of work yet. I am sure his positive attitude helps too! When he was diagnosed, his doctor told him he had more tumor than liver-yikes.
Posted 12/20/2016 5:26 PM (GMT -5)
Glad to hear he is doing well.

There are so many treatments now, there is always hope.

Andrew
Posted 12/20/2016 5:29 PM (GMT -5)
Great news about your husband.

I haven't been here that long, but the information and support I've found here is remarkable.
Posted 12/20/2016 5:43 PM (GMT -5)


Dear Kitty,

Your story is a powerful testimonial ... it's a testimonial to your husband's determination, courage, and iron will ... combined with the skill and expertise of his medical team ... and the power of advancing treatments and medications that have helped so many of us here.

You've taken the power of LUPRON ... added some blasts of chemotherapy ... and now adding the mighty powers of XTANDI ... hoping that XTANDI will deliver yet another "knockout punch" against the cancer, as your husband's treatments continue ...

The story you shared is hopeful ... encouraging ... beyond that, even ... it's downright inspirational.

Thank you for sharing this update with all of us ... we all face tough days on the battlefield ... we all need to keep the torches lit, and keep shining the light for others who stand alongside all of us on the battlefield.

Thanks for your courage, thanks for your determination, and thanks for your HOPE !

Handshake of support, from across the miles,
"Cyclone Team Fan" ~ Iowa State University
Posted 12/20/2016 6:26 PM (GMT -5)
Hi Kitty, sounds like things are working and you have a good medical team. I wish you and Bob well. Take care. -JR
Posted 12/20/2016 8:14 PM (GMT -5)
Kitty, thank you for taking the time to post a positive story, that benefits so many new guys and their spouses that show up here.

Great that your husband is getting such a good response
Posted 12/20/2016 8:45 PM (GMT -5)
He's in a great place for great care! I was there a week ago for my follow up.
Posted 12/20/2016 11:37 PM (GMT -5)
I always appreciate ISU-CycloneFan's comments and this one is no different. I'd just add that the outstanding support we get from our loved ones makes a big difference too. Kitty19, you've obviously been through a lot with Bob and I am sure you are a big reason for his ability to fight as hard as he has so far. Well done to you too Kitty19!
Posted 12/21/2016 12:50 AM (GMT -5)
It looks to me like he is doing well. As my doctor tells me "enjoy your life, I have your back" The future looks brighter everyday for us stage 4 guys. Some guys will always show a PSA reading but still do well for a long time on treatment YEARS.
Keep up your support of him Kitty because you are the most essential medicine he has to fight the beast.
Posted 12/21/2016 1:59 AM (GMT -5)
Hi Kitty,
Thank you for giving us an update about Bob. Very nice response to treatment.
My DH has been battling the bone and lymph mets for 6 1/2 years and the liver mets for a year and a half. By the time he had mets to liver, the MO had nearly exhausted all his tx options battling the bone mets. But here it is a year and half later and his liver numbers are also good. So there is hope, Kitty.
You keep the faith and Bob keep the positive attitude and have a very joyful holidays.
Keeping you in prayer for continued successful tx. Keep us posted!
Beth
P.S. As far as PSA goes, once there is widespread mets, it would be unlikely to get lower than it is now, but it might. The best indication is how Bob is feeling and the other numbers are good. Gary has felt lousy with a PSA of 100 and good with PSA over 300.
Posted 12/22/2016 9:17 PM (GMT -5)
Kitty,

Thanks for the update. So very glad Bob is doing well and responding to treatments!

I'm keeping you and all my HW family in my daily prayers.

Happy holidays!

Dave
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