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Is it true 1 in 6 men after surgery still have or cancer comes back?
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Prostate Cancer
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40buickcoupe
Regular Member
Joined : Dec 2016
Posts : 49
Posted 12/29/2016 7:23 AM (GMT -5)
I was told by my Dr that even after surgery 1 in 6 men will still have cancer or it will rear its ugly head. He said its close to 80% chance I will not have any reoccurring cancer.
Reading through a lot of the blogs here that a large majority of men are still fighting the battle. Perhaps the ones that are clear do not use the site anymore.
What are your thoughts?
Paxton
Veteran Member
Joined : Aug 2016
Posts : 1493
Posted 12/29/2016 8:16 AM (GMT -5)
I don't have the "real" statistics at hand, nor the links to the studies, so all I have is memory and opinion. I thought I remembered reading that even a higher percentage of men will have recurrence - something like 23-25%, but just a general sense from memory. Also, the patient's G-score prior to surgery would have a major impact on that statistic, as men with higher Gleason scores would have greater probability of remote mets than, say, a G6 case. I'm sure someone will come by later this morning with real data, but your doc is probably close.
As for who stays on the site and who drifts away, I think you are probably right. My experience over nearly 15 years at another medical support site is that the vast majority of patients who have the straightforward, low risk cases will come in for initial information but after treatment will drift away and just get on with their lives. There are some though, like myself in the case of the other site (and probably here as well) who feel so profoundly thankful for the support they received that they remain active and try to help others as they were helped early in their journeys.
InTheShop
Elite Member
Joined : Jan 2012
Posts : 11468
Posted 12/29/2016 10:09 AM (GMT -5)
Just to echo Paxton - most only stop by this site and then move on. It's the ones with difficult cases who tend to stay around the longest so you hear more of the guys who've had failed treatment. The one and down folks tend to drift away a few months after treatment.
I don't know the stats, but 1 in 6 seems high.
Andrew
F8
Veteran Member
Joined : Feb 2010
Posts : 5936
Posted 12/29/2016 10:18 AM (GMT -5)
you have a mixture of guys using this site. some are "cured" and others are not. i'm in my seventh year of remission. I figure I have a 50-50 chance of the cancer returning: it either will or it won't. the one in six odds wouldn't surprise me.
ed
ASAdvocate
Veteran Member
Joined : Feb 2015
Posts : 1076
Posted 12/29/2016 10:20 AM (GMT -5)
This study from 2005 calculates the 10 year statistics as 79 percent not having recurrence.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2231088/
NY-Sooner
Regular Member
Joined : Sep 2009
Posts : 484
Posted 12/29/2016 11:18 AM (GMT -5)
Cancer reoccurance all depends on how early you catch the cancer, and the gleason grade. I found mine in 2007 after watching my PSA go from 2.9 in 2005 to 4.5 in 2007 when I had my biospsy.
I was lucky in that I found mine before it escaped the prostate and I had a low gleason score of 6. After surgery, the pathology said I still had a G6 with negative margins. The cancer was 4 mm from escaping, and my surgeon said if I had waited 6 months or another year to have my surgery, today I might still be fighting this cancer.
It has been 9 1/2 years and my psa's have all been 0, so my uro told I can consider myself cured.
logoslidat
Veteran Member
Joined : Sep 2009
Posts : 7585
Posted 12/29/2016 1:12 PM (GMT -5)
It is true that there is an old statistic that 1 out of 6 men will be diagnosed with cancer...your uro mixed that up with his statement possibly...that statistic btw is probably higher now with everyone getting biopsies...that arguably are not necesarry... I personally believe that the only men that can reasonably expect a "cure" are true gleason 6 and...not all of them...This does NOT mean that only those will not die of pca...I think that number is much much higher....no evidence or substance to that other than that which is materialized by the F word....
Paxton
Veteran Member
Joined : Aug 2016
Posts : 1493
Posted 12/29/2016 3:43 PM (GMT -5)
40 - I guess it also depends upon how long you intend to live. Kidding aside, treatments like the current SBRT protocols for low-risk and favorable intermediate risk patients are showing something like 95+% non-recurrence at 9 years. (TA tells us that the 10-year study should be out soon.) If that is the case, and you are 70 years old now, there is a 95% chance you won't have any recurrence by the time you are about
80. If you did have a recurrence at 80, and it is low-grade slow-growing cancer, would you worry very much (assuming that you remained asymptomatic)?
Tall Allen
Elite Member
Joined : Jul 2012
Posts : 10645
Posted 12/29/2016 5:30 PM (GMT -5)
It's about
30% in the US, but many experienced surgeons get better results. But that depends on your diagnosis. It's 5% or less for low risk PC. If you want to know your odds, you can use this nomogram:
/www.mskcc.org/nomograms/prostate/pre-op
ChrisR
Veteran Member
Joined : Apr 2008
Posts : 890
Posted 12/30/2016 1:32 AM (GMT -5)
It's cancer...there is a reason why no doctor ever uses the word cure when talking about
it.
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