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My Husband's Advocate
New Member
Joined : Feb 2018
Posts : 2
Posted 2/14/2018 12:04 PM (GMT -5)
My 50 year old husband has a PSA of 22 and Gleason of 7. The current recommendation is a radical Prostatectomy but we are told that doesn't guarantee he will not need chemo in the future. I'm so confused. None the less we are going to seek a second opinion. We're trying to decide between trying to get into John Hopkins or Cancer Treatment Center of America. Any input/advice is appreciated.
fiddlecanoe
Veteran Member
Joined : Oct 2016
Posts : 811
Posted 2/14/2018 12:12 PM (GMT -5)
Two questions right away:
Where do you live, and has he seen a radiation oncologist yet?
Without any doubt, he should see an RO before making a treatment decision.
It would also help the folks here if you could post information from his biopsy. Is it is 3+4 or a 4+3? How many cores were positive?, etc.
My Husband's Advocate
New Member
Joined : Feb 2018
Posts : 2
Posted 2/14/2018 12:40 PM (GMT -5)
We are in Southeastern Virginia. However, we are willing to travel for treatment on a reoccurring basis. Yes, we've seen a RO who can do the pellets but he recommends surgery as well. Sorry I don't have the biopsy info w/me and I'm at work. I'll post it later. It's so much information and we are both overwhelmed. I crash read a book last night and I'm sure I missed important info. Will read it again.
dbell
Regular Member
Joined : Nov 2017
Posts : 271
Posted 2/14/2018 12:56 PM (GMT -5)
I am in a similar situation (age wise) and after various research would opt for some sort of radiation TX rather than Prostectomy due to the SE. Similar long term results with less SE!
MSKCC is another great option for treatment!
Pratoman
Forum Moderator
Joined : Nov 2012
Posts : 10056
Posted 2/14/2018 12:58 PM (GMT -5)
Johns Hopkins would be a fine choice and is relatively convenient for you.
InTheShop
Elite Member
Joined : Jan 2012
Posts : 11468
Posted 2/14/2018 1:11 PM (GMT -5)
Welcome to HW, sorry you need to be here.
Check out your radiation options (SBRT, brachy) they might work as well or better than surgery. Don't let anyone push you into a decision - you have time to make an informed decision. Don't waste time, but a few weeks getting other opinions and options isn't going to make a difference.
Andrew
JNF
Veteran Member
Joined : Dec 2010
Posts : 6097
Posted 2/14/2018 1:34 PM (GMT -5)
See my profile and you will see that I effectively used radiation. My urologist/surgeon said no to surgery as it would not be curative and I would also need radiation. That could be your risk as well with a high risk diagnosis. The last thing you want from treatment side effects is a combination of surgery and radiation. That is the worst combination. If anyone is saying you will need radiation after surgery, that is the time to decline surgery. The most effective combination for your risk level has been shown to be a combination of brachytherapy (preferably HDR) and external beam radiation (IMRT/IGRT/SBRT).
We have two major centers in Atlanta that use this method, so I was lucky. Places like Johns Hopkins are very surgery biased, and excellent at it. The Cancer Treatment Center of America in Atlanta lists HDRBT as a therapy method. Is that the one you are looking at? Regarding permanent seeds, there is a leader here in Atlanta that pioneered seeds and IMRT together. Also a great clinic in Wheeling West Virginia. Duke University has a good reputation for PCa work and is closer. I suggest you do some research with them to see what types of treatments they offer.
That the radiation oncologist that uses seeds recommended surgery surprises me and my guess is that he really isn't a PCa specialist. Whether it is surgery or radiation you want to find practitioners that are truly specialists and focus their practice on PCa.
Michael_T
Veteran Member
Joined : Sep 2012
Posts : 4110
Posted 2/14/2018 1:45 PM (GMT -5)
Sorry about
your husband's diagnosis, but so glad you're advocating for him. Generally, but not always, urologists will recommend surgery (they're trained as surgeons) and radiation oncologists recommend some type of radiation. So I'm curious why the RO also recommended surgery--sometimes there are some prostate-related issues, such as retention where they feel surgery might be better.
Based on your
location, Johns Hopkins does make sense, but I recall they are oriented toward surgery. (Someone here please correct me if this is wrong.) If indeed the surgery route makes the most sense for you, it would be valuable to meet with another surgeon. But unless the door is completely closed on radiation, it might make sense to get another RO's opinion--I'm glad to see that JNF has some suggestions in his post.
Good luck to you and I hope we can help.
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