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Celiac Disease
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Posted 8/30/2017 9:00 AM (GMT -5)
I was diagnosed with Lyme 2 years ago and wasn't getting better so I switched doctors. My new doctor ran a bunch of tests. The tests were done on an empty stomach and I have been gluten free (almost, I did cheat once in a while) for a year before that.

My doctor shocked the heck out of me when she said and I quote: " you're a thumb print away from having Celiac Disease. Never ever eat gluten again, not even the size of a grain of rice and you should have your children tested." My lab tests also showed that I have a malabsorption problem and leaky gut.

I have the markers but obviously did not test over normal but was at the very top of normal. I did not do the gluten challenge prior to the test so that was with out it.

I was wondering if there is another test that can be done where you don't have to do the gluten challenge or a biopsy. I have read that sometimes if you haven't had CD long enough there may not be damage to the intestines so the biopsy may be inaccurate.

I'm scared to death of having Celiac Disease but if I don't have to be gluten free the rest of my life I want to know.

Any advice would be appreciated.
Posted 8/30/2017 11:01 PM (GMT -5)
Unfortunately, the only celiac test that does not require you to be consuming gluten is a genetic test. However, some 30% of the population has the genes that can develop into celiac disease. Only a tiny few actually go on to develop it. Doctors use the gene test to help rule out celiac disease -- not diagnose it.

If you have decided not to do a challenge, then you should probably stick to the GF diet. If you find that you can not adhere to the diet because you have doubts, then consider a gluten challenge for a biopsy. It is only 2 to 4 weeks compared to the blood test which requires 8 to 12 weeks.

Exactly what tests were given for celiac disease? I ask because if it was the TTG, that test, if slightly elevated or in your case borderline, could be due to other autoimmune issues or Lyme disease and not celiac disease. You can see why biopsies are still the gold standard for diagnosing celiac disease.

If your kids are consuming gluten, then ask your doctor to screen them for celiac disease. That might help with your diagnosis.
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