I just had my second infusion a week ago. Many things have improved. No D..(but that was the case before I started infusions..just long skinny stools) My daily nausea is gone. Aches have improved greatly Still a tiny bit of mucus and touch of blood. But the thing keeping most housebound was the urgency. That hasn't improved. I only go about
2-3 times a day at most(mornings the worst) some days I don't go at all. But, when I do have to go it's still a hurry hurry thing. I still have to take Lomotil to go out where I'm not sure they are bathrooms close by.
So is this par for where I am in my infusions? Will the urgency(especially in the AM) ever go away?
We are wanting so much to go on a driving vacation before winter, but I'm still too paranoid. My next infusion is 09/20/12. Am I expecting too much too soon?