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stupid things others tell us

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Ulcerative Colitis
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Posted 8/30/2012 2:29 PM (GMT -5)
"Drink an Activia every morning."
Posted 8/30/2012 2:30 PM (GMT -5)
BTW, Activia has 25 grams of sugar. Just FYI.
Posted 8/30/2012 3:29 PM (GMT -5)
LOL Q, I still actually felt really bad for her when she told me she was DX with UC...I wouldn't wish IBD on my worst enemy cuz that's just mean...so I'm not happy that she has an IBD but I kinda smirk at the fact that she's still overweight...afterall, her goal was to have crohn's so she could be skinny...now she knows IBD doesn't necessarily work that way...now she's sick with an IBD and still heavy, go figure.
Posted 8/30/2012 4:02 PM (GMT -5)
Just hold it for a minuet longer we're almost to a bathroom
Should you be having that glass of wine with your disease?
Just eat right and exercise, and everything will turn out fine.
Posted 8/30/2012 7:49 PM (GMT -5)
shartz- OMG I got told that when I was starting to flare terribly and I was thinking, Yeah? Come closer so I can punch you in the face. lol
Posted 8/30/2012 7:49 PM (GMT -5)
the one about thinking positive ^
Posted 8/31/2012 4:21 PM (GMT -5)
pb4...hopefully, she'll realise you have the ability to be empathetic.

q
Posted 8/31/2012 4:35 PM (GMT -5)
"i wish I had what you have for just a few weeks -you're so thin!!"
Posted 9/2/2012 12:51 PM (GMT -5)
I'm tired of people telling me I probably have Celiac's. Are you freaking kidding me? The ONLY foods that give me comfort and causes no distress whatsoever are the starchiest carbs I can find. mmm yeast rolls, white bread, macaroni, I can't get enough. They make me fat as butter, but it feels so good. I've had UC for 20 years and I know by now what makes me feel bad and what makes me feel good.
Posted 9/2/2012 1:18 PM (GMT -5)
"stop thinking about it/focusing on it so much and you'll get better"
Posted 9/2/2012 1:36 PM (GMT -5)
Well, what did you eat that makes you run to the bathroom?

Oh, just try it (the response i get from people when turning down certain foods). A little can't hurt.
Posted 9/2/2012 7:53 PM (GMT -5)

sierratrinity said...

Just eat right and exercise, and everything will turn out fine.


+1, add Yoga to the equation. The yogis who developed yoga had no freaking clue of UC. Then people used to die of anemia for god sake!!!
Posted 9/2/2012 8:00 PM (GMT -5)

deltaforce said...
The yogis who developed yoga had no freaking clue of UC. Then people used to die of anemia for god sake!!!

lol...yogi bear invented yoga.
Posted 9/3/2012 5:01 PM (GMT -5)
while I don't believe chiropractic care can CURE UC, it does help matters a bit. I just started a few weeks ago getting adjusted, mostly in the lower lumber area. That area corresponds to the large intestine ... it seems that some of my nerves were a bit compressed. Let me tell you that my gut overall felt more soothed after being adjusted ... and this was before I know that the area was linked to the colon.

Yeah, I get the "can you hold it" a lot from people I am with that don't really know about UC or proctitis.
Posted 9/3/2012 5:24 PM (GMT -5)
My favourite was from a blood tech taking my blood in the hospital, and I had been on pred for almost 2 years - "I thought people with UC were really skinny".

Of course I got many others too:

"I talked to my wife, who's a nurse, and she says UC is no big deal"

"You just have to change your diet"


Good thread.
Posted 9/3/2012 8:44 PM (GMT -5)
What I absolutely hate, most times I just grin and bear it, is when people say I look so healthy. The main reason I look so healthy is because I decided to wear make-up on that day to hide the dark circles under my eyes and my waxy complexion that I get from going to the bathroom a zillion times a day.

Just once I would love to scream at them and say "NO! I am not healthy and while I may look it, it feels like a frickin' alien is trying to rip thru my intestines!"
Posted 9/3/2012 11:00 PM (GMT -5)
This weekend I was in a medical office getting some cosmetic stuff done and the nurse checking me in told me I should boost my immune system and UC is tied to not enough vitamin K in my diet. She was really trying to convince me my immune system was weak!
Wow
Posted 9/3/2012 11:10 PM (GMT -5)
"Can't you just control it with the right diet?"

unscientific bs
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