Symptoms are slowly coming back

After living symptom free since going on Remicade last Dec and reaching remission in April, it's slowly rearing it's ugly head :(

I couldn't get over how every week it seemed like I kept feeling better. It seemed like each week I kept improving slightly until I was completely symptom free.

Then about 10 days ago I started noticing an increase in bm's, then the urgency came back, and then yesterday I saw it: blood... blood!! Now this am it's faithful companion: mucous.

I feel like having a major break down/pity party. Just remembering how bad I got, that steroids never did it for me, etc... But I have to keep a stiff upper lip for my husband and family. We also know what stress does to us. But still...

I'll be emailing my Dr tomorrow to see where we go from here. I'm on a REAL low dose of Remicade, and no rectal meds, so my hope is to be able to get this nipped in the bud (or butt, haha) quickly.

Thanks for listening... This forum is where I can come to vent. Any advice is appreciated.

In case my siggy doesn't appear: I'm on Remicade, Lialda (2 pills a day) and Imuran.

I go in every 8 weeks, and am on an extremely low dose. That's also one of the things I'm hoping for.

Although since my insurance isn't covering my meds, this will mean a huge added expense for our family :(

I just want to get back to the good place I was in, and my husband agrees that's what's most important. Santa will have to put an extra Remi vial in my stalking this year!

Thanks Notso... We've tried everything, but living in a third world country, ironically, there is no assistance from the company that imports it.

Only thing I've done is change my husband and kids to an insurance that does cover 100% of meds. Live and learn.

Anybody have any thoughts on adding the rectal meds???

If you are having rectal inflammation, sure you can add those to bag of tricks. It might even be enough to tide you over between infusions. The first line are the 5-ASA's and then if those don't work, there are the steroid enemas or foam.

That happened to me over the weekend.

I made a list and hit the stores, now am back on lots-of-water, salmon, psyllium seed, vsl3#DS and removal of new items and supplements aimed toward helping me put weight back on post-pred.

The freefall stopped and just in time as I need to sit in dentist chair for two crowns today probably going to be 4 hours.