Hi, I really love this forum because whether I'm feeling great or poor, there's always such a great support group.
I lurked but haven't posted in a few years. I've been in remission since my first hospitalizatoin 2 years ago. Now I'm flaring again and my doctor is actually encouraging me to be admitted. Back in 2011 I was admitted because prednisone wasn't working, plus I was losing so much blood I was severely anemic. I was in the hospital for 2 full weeks and got 2-3 blood transfusions and steriod IVs, in addition to bowel rest and an colonoscopy. I've been feeling lightheaded and I've only been flaring for 3 weeks, so we're thinking my hemoglobin is super low again. Going in for blood work today and by Thursday we'll know if I should be admitted. In the meantime, my prednisone is being upped to 50 mg (from 40mg). I'm so not happy about being on prednisone again and I really don't want to be hospitalized, but I'm hoping since it's only been a few weeks of flaring, maybe it'll be a shorter trip at least.
Thanks for listening...