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Urgency seems to be the issue

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Ulcerative Colitis
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Posted 2/23/2013 5:10 PM (GMT -5)
My gi is bumping up my remicade from 5mg to 10 mg hoping to control this flare. Overall i feel fine still and usually im a zombie by now. I'm still eating a lot of food every day. Im going to the bathroom like 20x a day but each time there is very little stool. Blood here an there but not much, sometimes i dont see blood all day. Its just the dam urgency that seems to be my problem. I cant hold an enema in for more than an hour either. Fml.
Posted 2/23/2013 5:56 PM (GMT -5)
Does it feel like tenesmus, like the rectum is spasming causing the urgency even though there is very little to come out? If so, even though you have pancolitis you might feel a lot better using a suppository. It should be easier to retain and will focus the medicine to the part of the colon that might be causing the most trouble. Worth a try right? I was in a similar state and found I could buy myself a couple hours without BMs while I had a suppository in.
Posted 2/23/2013 8:15 PM (GMT -5)

Pluot said...
Does it feel like tenesmus, like the rectum is spasming causing the urgency even though there is very little to come out? If so, even though you have pancolitis you might feel a lot better using a suppository. It should be easier to retain and will focus the medicine to the part of the colon that might be causing the most trouble. Worth a try right? I was in a similar state and found I could buy myself a couple hours without BMs while I had a suppository in.

naa no spasms. i will feel it coming on then go to the bathroom and will just sit there wit the urge to go, then finally a little bit comes out, then the urgency slowly goes away. then this happens a lot throughout the day.
Posted 2/23/2013 10:23 PM (GMT -5)
I'm guessing that it is inflamed at the bottom b/c I believe that is where the urgency symptom would show up. If it is tough to hold an enema....what about using Cortifoam? Sticks to the walls better and not too hard to use once you get used to the applicator. If that can calm it down enough, you may be better able to retain an enema. Just a thought.
B
Posted 2/23/2013 10:25 PM (GMT -5)
Holding an enema for an hour is really good regardless. How about a half enema?

q
Posted 2/24/2013 1:54 AM (GMT -5)
I think that's why cortifoam works pretty well for me (of course the sooner I get on when needed, they better)...Even though I was always directed to use it twice/day, morning and night, it would have been a waste for me since generally mornings are the busiest for me toilet wise, so once/day at bedtime worked well for me.
Posted 2/24/2013 7:02 AM (GMT -5)
I can not answer the question, 'why' for urgency issue, as I am trying to figure that out myself.

I am in the same boat with you, using restroom ~20X a day and unable to hold enema, tail end on fire that I can not really sit. Can not sleep during the night and just an hour ago, for the first time I crapped my pants because I got 5 seconds late to get up from the bed. In such case, if I want to hold enema or suppository, I take 20mg Bentyl an hour before the administration. This does not solve urgency issue at all but helps you hold your medicine for at least couple of hours.
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