Posted 2/12/2014 5:48 PM (GMT -5)
Interesting that GIs have very few patients on simponi. I guess most people are taking the other biologics.
I asked a locum GI about it when I was in bad shape following antibiotic courses last year and he just refused to put me on it because of the limited and shady data on it. He would only prescribe it if I pressed him heavily on it. In some ways, he encouraged me to do the research and come to my own conclusions on it, so I'm thankful for that.
You folks are, in a sense, the true beta testers of the drug. I don't put much faith in clinical trails anymore because they control many variables and skew the data. Do your best to take it appropriately and please, please, please report any adverse reactions. Most people don't do this and the rest of the prospective patients suffer as a result. Reliable data should be the lynchpin of deciding any prospective treatment for us patients.
That being said, I hope everyone taking it here gets some semblance of relief from it. There's no question that I'm anti-biologics, but I'm definitely not pro-suffering. All of us deserve sound and reliable information on these matters, which isn't the case most of the time.