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remission, or close enough

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Ulcerative Colitis
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Posted 6/19/2014 10:10 AM (GMT -5)
Been waiting a month to say anything, but I have symptomatic remission. I might schedule a scoping later this year to see if that translates to histological remission.

Many days one formed BM in the morning. No bleeding for a while. No mucus for a while.

Cut down my Lialda form 3x to 2x, and have tapered off of Pred.

It sure took long enough.

Can't seem to get my signature to update.
Posted 6/19/2014 10:14 AM (GMT -5)
the update is in the signature on my profile. it was there before I posted this, and it was that after, when I went back to check.

Shouldn't changes show up right away?
Posted 6/19/2014 10:21 AM (GMT -5)
Glad you're dong well!

Changes to sigs often take a while to show up.
Posted 6/19/2014 10:38 AM (GMT -5)
I am happy to hear you're doing so well too. That's great!

I don't understand why the signature doesn't update instantly, but sometimes it does, and sometimes it doesn't. if it doesn't update in the near future, please let me know and i will contact the board admin to see if there is anything we can do.
Posted 6/19/2014 12:45 PM (GMT -5)
Woohoo! happy to hear you're doing so well!!!

Regarding the siggie changes. Do them, save, click out of the site and then come back. Sometimes if you log off and then sign back it, it changes.

q
Posted 6/19/2014 12:52 PM (GMT -5)
sig change = meh
butt change = woohoo !
Posted 6/19/2014 1:40 PM (GMT -5)
Great. Hope it stays with you.
Posted 6/19/2014 2:00 PM (GMT -5)
That is great news!! Do you feel it was just continuing on the Lialda/Rowasa and Pred path that eventually led you there? Awesome db!
Posted 6/19/2014 3:38 PM (GMT -5)
That's awesome!!!!!!!! I'm so happy for u!!
Posted 6/19/2014 3:53 PM (GMT -5)

hateuc said...
That is great news!! Do you feel it was just continuing on the Lialda/Rowasa and Pred path that eventually led you there? Awesome db!

Yes. I did some nutrition like oatbran for butyrate and flax fiber, and I did iron infusions for anemia. I also took small dose of Imodium (like 1/4 tablet) daily to slow things down and reduce gas. I occasionally did VSL, but mostly CVS brand probiotics. Kept up vit-D since I am missing part of right colon.

But mostly I think Lialda worked a bit, the colon improved, and that let Lialda work a bit more/further along.

I may try a little slippery elm to make stool less sticky.

----
p.s. Think I fixed sig. had to completely delete, and then re-enter

Post Edited (DBwithUC) : 6/19/2014 6:02:07 PM (GMT-6)

Posted 6/19/2014 5:22 PM (GMT -5)
Glad to hear you're doing better.

Hope you have better luck than me- I was 1 formed stool and mostly syptomatic remission for 2 solid yrs after my first flare and thought I could cut down my meds.

Had a scope that showed mild-mod and ended up going on 6MP, Uceris, and now Remi.

Feeling better and doing better on the outside while my insides were still not good.....
Posted 6/19/2014 7:03 PM (GMT -5)
I think I will stay on 2x Lialda indefinately
Posted 6/19/2014 9:29 PM (GMT -5)
Nicely done. Long may it last.
Posted 6/19/2014 9:41 PM (GMT -5)
Hey this is awesome... These are the best posts to read. Congrats!
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