I've come a long way uc-wise as in January I was tapering off of pred (after a yearlong flareup), battling urgency, and I was having an accident a month, and many close calls. Now, I was able to get away and go remote backpacking in the mountains for the weekend with no uc mishaps whatsoever .

Friday after work, we (DW, brother, and I) went car-camping a few miles from a mountain trailhead. We were at the trailhead at 9am on Sat (such an early time would have scared the crap out of me before) and ready to go backpacking. We hiked up to the mountain ridge, over several mountain peaks, and set up in the col (low point between mountains) at a designated camping spot with tent sites scattered around a wooden shelter. These sites are incredibly popular on summer weekends, the camp had about 65 people and one composting toilet (yikes!). I managed to get one poop in the early morning despite the long bathroom lines, with no incidents, and we were on the trail again at 7:40a (earlier than before). We hiked until mid afternoon when we got out of the woods and to the car, after a total of hiking 20+ miles over 5 mountain peaks.

No mad dashes into the woods to poop, I mostly forgot about uc (but uc anxiety is always there like a little devil on your shoulder as depicted in cartoons haha) especially in the early am (is it okay to leave yet, have I pooped enough, what about the 1-bathroom and so many people etc.). So to you new to uc, it is possible to overcome the worst of uc (a yearlong flareup with 20+bms a day, pred-dependence, and accidents in public) and live mostly normal.

I'm totaly agree with you. We went camping for July 1st weekend, and on the top of my UC, I also had C-diff! So I told my hubby, be ready to walk with me few times at night in the woods. However, I was totally fine at night. Yes, it was taking me 5-6 trips during the day, but I sleept whole night.

I have two small biys, 7 and 4, and there is no way I can be sick. i have to be ready for trips, hiking and etc. I do managing it so far good, so noone can say I'm sick. BUT! It is very hard to do all that when you have nooo enegry, and all you want is to stay in bed. Good luck all of us!

 

Remicade (infliximab)

Good to hear. I'm on Lialda and haven't made my way up to the biologics yet but they're next if this nightly Rowasa (going on 10 days now) doesn't help with my urgency.

I miss hiking and being out in the woods! It's one of those activities that I think is manageable with UC because if I'm outside in nature I don't mind taking a crap in the woods (assuming I'm with close friends who know of my condition).. but it's the car ride over that's worrisome.