Anyone with UC in China?

Hi, I am from china and have been living in the US for 4 years. i was diagnosed with UC 8 years ago and has been in remission/near remission for the past 3 to 4 years.


food/water: Some places are better but overall bad. they are not as safe as here in US and air pollution cannot be worse. soil is contaminated hence whatever grows on it and whatever eats it as a feed source are contaminated too and you cannot avoid them. Cancer rate goes up crazy past few years and hospitals are like refugee. and Chinese food is illegal to UC.

some major cities maybe better since restricter regulations are applied yet still far away from what is considered a good standard.

Which city of China are you going to and how is your situation?

Post Edited (toniling310) : 1/19/2015 6:12:18 PM (GMT-7)

你好，

I will not recommend you to study those things because they aren't really what you see on TV and live will be really tough.

I just read some of your posts before, are you still pursuing a degree?

I am currently working. May be my story helpful to you if you want to alter your treatment.

started at 2007, but I did not pay enough attention, basically just using antibiotics. I had really hard time back in 2009 at which time I was preparing some exams. I guess the situation was similar to yours. it was really really tough that I was hospitalized 3 times , almost 1 month each time and at same time i had to prepare exams. I was finally under control by prednisone. initial dose was 40mg ( i guess) and tapered down to 5mg and i was on that minimum dose for like 1 and half years. flares came back but mildly after i was totally off prednisone and I started to try Asocal HD but with very limited improvement. I would not say it was a bad flare up, just 2 to 3 bm trips per day and sometimes little blood and mucus. Then I saw some articles about SCD diet and decided to give it a try, I was not following it in a restrict way yet still very careful about food. and about same time my GI started to prescribe me Canasa suppository which now seems a life-change decision. I was brought to remission shortly and never found problem since then. i did a yearly scopy last Jun and GI said he only found very limited inflammation patches (5 cm) at rectum area and thought it was minor and totally manageable.

now I am using Canasa suppository 3 to 4 times per week and VSL #3 per pill per day and loosely follow SCD diet.
UC usually starts at rectum part so I guess suppository should be more helpful when it restricted to this area than when it extended. And if you can control it when it just starts you should be fine.

Post Edited (toniling310) : 1/19/2015 7:26:27 PM (GMT-7)

toniling310 said...
I am currently working. May be my story helpful to you if you want to alter your treatment.

started at 2007, but I did not pay enough attention, basically just using antibiotics. I had really hard time back in 2009 at which time I was preparing some exams. I guess the situation was similar to yours. it was really really tough that I was hospitalized 3 times , almost 1 month each time and at same time i had to prepare exams. I was finally under control by prednisone. initial dose was 40mg ( i guess) and tapered down to 5mg and i was on that minimum dose for like 1 and half years. flares came back but mildly after i was totally off prednisone and I started to try Asocal HD but with very limited improvement. I would not say it was a bad flare up, just 2 to 3 bm trips per day and sometimes little blood and mucus. Then I saw some articles about SCD diet and decided to give it a try, I was not following it in a restrict way yet still very careful about food. and about same time my GI started to prescribe me Canasa suppository which now seems a life-change decision. I was brought to remission shortly and never found problem since then. i did a yearly scopy last Jun and GI said he only found very limited inflammation patches (5 cm) at rectum area and thought it was minor and totally manageable.

now I am using Canasa suppository 3 to 4 times per week and VSL #3 per pill per day and loosely follow SCD diet.
UC usually starts at rectum part so I guess suppository should be more helpful when it restricted to this area than when it extended. And if you can control it when it just starts you should be fine.

Thanks for your story. I'm sorry to hear you were hospitalised but glad to hear you're fine now. Prenisolone helped me when I was really bad too and I've a lot of flares, mainly mild to medium. But because of the dangerous side effects of it, they switched me to budesonide as my go-to steroid which has less dangerous side effects. But again, I can't stay on them long time. For me, 2-3 bm is remission. A flare for me normally goes up to around 8-10bm. I have never tried the SCD diet - do you know of other people who have had success with this diet as well? I've tried the wheat-free diet but it didn't help much. I generally eat normally but avoid spicy, fibrous food, but I might give the SCD diet a go. I have used asacol suppositories before, but I don't think they helped that much. I've also used Salofalk enema which sometimes helps, sometimes doesn't do much (like recently). I've got some similar probiotic pills (but don't use regularly) to VSL#3 but those ones are so expensive!

I also use a shake (fortisip) but you don't drink any juices either? I don't know how I could survive without some flavoured drinks!

I'm seeing my doctor this week so she may suggest I try different treatment such as mecaptapurine or infliximab.